Hi all [ dont know why this message keeps getting moved????]
Can you tell me please if others have this;
If I NEED the bathroom then my legs and arms get worse so it becomes harder and slower to get to the bathroom....what a cruel thing!
If I use my arms too much and that being too much can vary then my legs get slower and vice versa can be something like changing the duvet or using a dustpan and brush that sets things in motion to get worse.
Bending over definately makes things worse ie slower I then feel tireder
If I CONTINUE BEYOND FEELING worse either legs or ams then pain kicks in like the back and neck and the legs and arms.
If I get too cold I SHiver , teeth chatter really out of proprtion etc.
When feeling worse my bladder gets worse more frequent and/or hesitantcy.
Guess I am asking do others experience these things and how do you cope etc. Is it just a case of having to slow down rest ect. But somethines even rest doesnt do it I still feel heavy weak etc.
PLEASE DONT JUST READ THIS GIVE ME SOME FEEDBACK!!