MTNBOY
May 3 2009, 10:24 PM
HI EVERYONE...MY NAME IS STEVE...I HAD A SCI 12 YRS AGO..AT T11 T12 INCOMPLETE..I WALK WITH A WALKER OR CRUTCHES...AND WORKOUT 5X A WEEK..I REALLY WANT TO SPEAK TO ANYONE WITH A CHRONIC SCI WHO HAS GOTTEN STEM CELLS...GOOD OR BAD..I KNOW 1 GIRL WHO WENT TO THE DOMINICAN AND GOT THEM ...SHE WAS ALMOST A COMPLETE SCI..NOW SHE CAN WALK..NOT 100% BUT FAR BETTER THAN THE WHEELCHAIR..PLEASE HELP..I AM COMMITTED AND SERIOUS..I WILL GIVE YOU MY # AND E-MAIL... THANKS AGAIN!! STEVE
Bevan-L
May 4 2009, 01:42 AM
QUOTE (MTNBOY @ May 4 2009, 08:24 AM)

....SHE WAS ALMOST A COMPLETE
Hi Steve... so was she complete or incomplete?
MTNBOY
May 4 2009, 11:49 AM
QUOTE (Bevan-L @ May 3 2009, 07:42 PM)

QUOTE (MTNBOY @ May 4 2009, 08:24 AM)

....SHE WAS ALMOST A COMPLETE
Hi Steve... so was she complete or incomplete?
hi bevan-l she was almost a complete and was 2yrs post injury and wheelchair bound
City Girl
May 5 2009, 10:31 PM
I'd also be interested in any information on stem cells, muscle development and regeneration. I'm attending a Centre For Inquiry film screening called "Potent Biology: Stem Cells, Cloning and Regeneration" in June. It's a discussion by Douglas A. Melton, PhD who is a founding member of the Harvard Stem Cell Institute; and Nadia Rosenthal, PhD who is a leader in stem cell research and regeneration research and Director of the European Molecular Biology Laboratory.
I've heard of a few cases of stem cell treatment but they always seem to be from third world countries and I am wholly skeptical of their validity.
I am closing in on two years post-injury, T12 incomplete. I've had very good recovery but I still can't walk without assistance. I need a cane or nordic walking poles or my husband's arm. I am at the gym 20 hours/week and still am not seeing the results I'd like. The connect between the femoral and sciatic nerves and my left leg in very poor. Consequently, that leg still has a fair bit of flaccid muscle (atrophy).
I just finished a month-long treatment of femoral and sciatic 'nerve flossing' and will see how this month unfolds in terms of response but I'm not holding my breath.
I see my surgeon in September and will inquire about the progress of stem cell treatment in North America but if anyone has any current information, I'd appreciate hearing about it.
Also, MTNBOY, you're either 'complete' (the spinal cord is completely severed yielding no motor function/no sensory function) or, you're 'incomplete' (the spinal cord is damaged and there may be some sensation and/or motor function).
Pierre21
Sep 25 2009, 08:38 AM
Hi I am T12 L1 injury non completed I had airplain crash last year, well I am in Costa Rica right know getting ready for stem cell treament, my doctor told me that the stem cell treament is not successful for spinal cord injury right now, but I can tell you the pilot was with me did it and he is better than me he is stronger no pain we had same injury so he been on the tv telling the world that stem cell help, the cost of stem cell from $30,000 to $35,000 the $30,000 it give you 5 injection and the $35,000 give 7 injection. Know if you like anybody on the site like to come here to get all the imformation and see some result they can contact me, I have 4 bedroom appartment in San Jose I will charge a little as $30 a night take to the Hospital where they do it and you can ask all kind of the question.
The ticket from the state or Canada run $300 to $400 depend how early u do your reservation, so if anybody are interested please contact me so I can help. Like here I have people to help you they will wash your closed cook for you give shower for extra and they clean up for you try it for a week let me know bedore two weeks so I can pick you from the airport and make the tour for you at the hospital for stem cell.
Thank you guys I wish one day will be a complete medical solution for spinal cord injury.
Pierre.
stemcellblogger
Oct 21 2009, 08:56 AM
Wayne State Study Shows Adult Stem Cell Grafts Help Paralyzedvia
http://media.wayne.edu/2009/10/16/study-sh...rafts-increasedA new study by a Wayne State University School of Medicine researcher details the outcome of adult stem cell grafts in spinal cord injuries and how the procedure led to increased mobility and quality of life for patients...
...The injuries in the study patients were 18 months to 15 years old. The patients, ages 19 to 37, had no use of their legs before the treatment. One paraplegic treated almost three years after the injury now ambulates with two crutches and knee braces. Ten other patients ambulate with physical assistance and walkers (with and without braces). One 31-year-old male tetriplegic patient uses a walker without the help of knee braces or physical assistance. When the stem cell transplant and scar removal process was combined with an advanced form of rehabilitative training that employs brain-initiated weight-bearing movement, 13 patients improved in the standard measures used to assess functional independence and walking capabilities.
“We concluded that olfactory mucosal autograft is feasible, relatively safe and possibly beneficial in people with chronic spinal cord injury when combined with post-operative rehabilitation,” Peduzzi-Nelson said. “There are clear indications of efficacy based on neurological, functional and electrophysiological testing that justify moving forward to a larger, controlled clinical trial. ...
Admin Note: Edited to show source article
love&hate
Oct 24 2009, 07:41 PM
heya
I really think we need to be patient. At this point most of the stem cells treatments in western world are performed as clinical trials and they never guarantee anything.
I believe it is smart to wait even few more years to get the treatment that is well tested, trialed so we can benefit to the fullest extent possible. Stem cell treatment along with few others are
really promising but going to 3rd world countries and spending ~30k $ is rather silly. Dont get me wrong i understand that some people really want to get better asap and will do whatever it
takes but in my opinion it will only drain you from money,energy and maybe even will close your way to future advanced,tested stem cell treatment.
We need to realize that there are 1000s of treatments performed in this 3rd world clinics every year and from all this treatments only few end up with some sort of improvement.
Obviously we are going to read/hear only about the successful stories simply because its a part of their marketing. Its a business, very profitable one.
We are not going to hear about those hundreds of dissapointed people coming back with no improvements whatsoever.
That being said, this is only my opinion on this subject. I know that the breakthrough has been made and its a matter of time before some legitimate western facilities will start to offer some revolutionary stem cell treatments not only for SCI but for all kinds of diseases ect.
I think the question is when not if.
Good luck to you guys. What ever you will decide keep us posted.
Regards,Bart.
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