I saw a new neurologist a week ago. My old neurologist no longer will accept my insurance and so I had to find a new one. My old neurologist has told me that she clinically diagnosed me with MS because of issues I have had all of 2008 and after I woke up paralyzed on March 12, she said that she thought it was possibly Progressive MS. She said that the only thing they could do about it was to put me in the hospital on high doses of steroids. Since I am pregnant, she didn't want to do that. So, that has been the rest of the story. Learning to live in a wheelchair with the only therapy being was the PT showed my hubby how to bend my legs every day so they won't get stiff. I have learned everything I have from You Tube videos and this wonderful forum. Until....
I saw the new neurologist. He was horrified by all of this and the old neurologist. He said that although everything I have been experiencing in 2008 was symptomatic of MS, but that there was still so many other things it could be and that she just labeled me to be done with it all. He said that once that happens, you are then classified and nobody looks into anything else. He said that the sudden paralysis that I woke up with can happen with MS but it is very rare. He said that it could be a tumor or a blood clot or many other things and he wants an MRI of the spine to start with to see what is going on and see if something can be helped or reversed. The sad thing is, is that it has been 3 months like this already so he knows that even if there is something he can find, the chance of me getting everything back to normal is not high. However, I am thankful that he is at least willing to search and see what can be done. His diagnosis is L3 paraplegia.
I feel that I have kind of been let down by every aspect of the medical world and they have all written me off as "we hate this happened to you but there is really nothing we can do about it" attitude. This is the first time that I have felt a glimpse of hope since all of this. I see people talk about all this therapy and therapists working with them and trying to get them to work on walking again (even if they never do) and I have not had one shred of that (except the leg stretches my hubby does). I am within 6 weeks of having my baby boy unless they induce me earlier to run more extensive testing. The neuro says the longer you wait, the more time has ticked away that may have been needed for recovery. I was supposed to have an MRI this morning, the OB ordered it and said I could do it on my side since I pass out on my back since the baby lays on my aorta. But the neuro said that he has never heard of an MRI on my side and it would be a waste of time so I cancelled it. The neuro is talking to an OB dr. that he knows and will call me today with some answers. So, we will see.
Oh well, I have rambled long enough but this is my update and what it going on.

Sorry to hear that you had to go through that. I really hope you get the final answer, the real reason. Knowing the reason for your condition is very important in being able to move on.

Your neurologist is right: it's very rare for a patient to be reinvestigated after a diagnosis has been set. It's good that he's willing to explore other options.

All the best,
Derek.

Well on the plus side is that if it turns out to be something else than it has the potential to be lessened if not alleviated. While being pregnant I'm not sure if you could have taken the MS meds or not......but if you were diagnosed with MS was it just on basis of symptoms or were other tests done? There are other tests including vision & hearing tests & an MRI that will show the signs of MS. I hope all is sorted out soon.......I know the "not knowing" can be very stressful. Thoughts are with you.