QUOTE (Lizzy @ Sep 23 2009, 05:57 PM)

hello I am new to this forum and really am in need for some help. My brother 55 who is a wonderful man, philosopher and music composer had a misfortunate sitaution. He has, or had, at this point we are unsure to be honest, muscular dystony (generalized rigidity). After developing broncoaspiration pneumonia and recuperating, he was given salbutamol, for him to be able to breathe better, which did not react favorably in his system. His muscles became totally weak and therefore was not able to breathe nor eat properly. They gave him salbutamol AGAIN believe it or not and almost lost his life to a heart failure and respiratory arrest. He is now systemically just fine, his heart is in perfect condition, his intestines are fine, kidneys are fine as well, BUT... now has a tracheostomy with mechanical ventilation, a gaseostromy and has lost ALL muscle mass in his body and therefore is completely weak. But does have transmission through his nerves and is slowly being able to move little by littel. My question is ,do you feel there is hope that he WILL regain muscle mass and do you feel he will EVER be able to breathe without the ventilator again? There is really no paralysis but yes atrophy. Please tell me what I can do?
He really needs to move everyday as much as he can. If he feels any burning sensation when he moves he needs to increase that sensation by moving more. Everything he does needs to be an excersise. Even breathing. Instead of breathing normally, he should take deep breath's as much as he can untill he cant do it any longer. When he gains his strength back from breathing heavily, he should start over. Doing it everyday untill he starts to get results. Which in my opinion he will definatly get. It might take months of doing the same thing everyday, but what other choice does he have? The same thing goes for any other movement he has. If it functions, it needs to be excersised. Excersised with full effort untill he starts to see improvement. Hope this helps.
-j0hnny