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Quadriplegic & Paraplegic Spinal Cord Injuries > Disabled Living & Spinal Cord Injuries > Spinal Cord Injury Health Issues > Pain Management
ClaraTaylor
Okay so firstly when I say walk I mean (gracefully float mm above the ground like a delicate butterfly) aim in an almost straight line and by park I mean the walk from work to Tescos and back (about two miles in total).

I've been noticing that since the epidural "issue" when ever I try and walk any distance the "pins and needles" in my legs, rump, and especially feet suffer an after shock where they go manic and the pain rises from the "uncomfortable but maintaining a British stiff upper lip" to "unable to be comforted by cups of tea" and then onto "hanging onto the desk trying to maintain a proffessional imagine while crying like a baby inside". It is agony and then some - I can't bare to put my feet down on the floor and even just sitting on a soft cushion to try and relieve the pressure is /awful/.

But yet the non neuropathic pain doesn't increase (that much) ???


What's going on?
nipper123
QUOTE (ClaraTaylor @ Oct 21 2009, 03:53 PM) *
Okay so firstly when I say walk I mean (gracefully float mm above the ground like a delicate butterfly) aim in an almost straight line and by park I mean the walk from work to Tescos and back (about two miles in total).

I've been noticing that since the epidural "issue" when ever I try and walk any distance the "pins and needles" in my legs, rump, and especially feet suffer an after shock where they go manic and the pain rises from the "uncomfortable but maintaining a British stiff upper lip" to "unable to be comforted by cups of tea" and then onto "hanging onto the desk trying to maintain a proffessional imagine while crying like a baby inside". It is agony and then some - I can't bare to put my feet down on the floor and even just sitting on a soft cushion to try and relieve the pressure is /awful/.

But yet the non neuropathic pain doesn't increase (that much) ???


What's going on?



I hate to say it but it sounds like Arachnoditis and if it is, it;s a wicked disease. Just when you mentioned aa problem with an epidural, and the pain symptoms I would have a neurourgeon look at into it asap. I have Adhesive Arachnoiditis in the advance stqage so I know the pain.

Just put Arachnoiditis in you search engine and look at the symptoms and the cause you never know.

Nipper
Wicket
It might be a good idea to get an X-ray and/or an MRI to see if there's anything off.
If it only happens after walking but is alleviated with rest then it might be a neurological aggravation of the spine or a pinched nerve.
ClaraTaylor
Thanks peeps.
I'll be phoning for an appointment tomorrow. Chances are I might even get one in six months.

If anyone could suggest ways to help with the pain I'd really appreciate it - the vibrations in my friends Land Rover (coming up through my feet) were enough to have me crying.
Tortfeasors
QUOTE (ClaraTaylor @ Oct 21 2009, 10:53 AM) *
Okay so firstly when I say walk I mean (gracefully float mm above the ground like a delicate butterfly) aim in an almost straight line and by park I mean the walk from work to Tescos and back (about two miles in total).

I've been noticing that since the epidural "issue" when ever I try and walk any distance the "pins and needles" in my legs, rump, and especially feet suffer an after shock where they go manic and the pain rises from the "uncomfortable but maintaining a British stiff upper lip" to "unable to be comforted by cups of tea" and then onto "hanging onto the desk trying to maintain a proffessional imagine while crying like a baby inside". It is agony and then some - I can't bare to put my feet down on the floor and even just sitting on a soft cushion to try and relieve the pressure is /awful/.

But yet the non neuropathic pain doesn't increase (that much) ???


What's going on?



That sounds like what happens when I walk. In my case, it's nerve root compression in the cauda equina region. Worse when walking, standing, or laying flat. Best when keep hips at 90 degrees. Must have the effect of mechanically opening up the areas that are compressed. I have one bulging disc to blame, and the other area with nerve root compression is from arthritis in the area. When those symptoms are flaring, I also can't pee sad.gif
ClaraTaylor
Peeing has never been a problem here (luckily!!) = must be all of the tea I drink at work (enginers+tea = happy office)

I now have an appointment for the 19th November.
Googling is not coming up with much that will "help" this issue (plus normal pain flaring like a dog on heat making me not the happiest of bunnies) which is rather depressing.

Even the boss is noticing something isn't right which is not a good sign (he didn't notice one of the chaps was on holiday until the third day).

28 days to go...

*owie* sad.gif
bobm
Clara

try googling Neurogenic Claudication;

I've got this as a result of lumbar stenosis, [as if cervical stenosis wasn't enough] and my shuffling range is now crashing, in consequence.

More surgery for me....good luck to you.
greybeard
QUOTE (ClaraTaylor @ Oct 22 2009, 01:49 PM) *
I now have an appointment for the 19th November.

28 days to go...

*owie* sad.gif

You're really not having a happy time lately are you?

You know how after waiting for a week to see the dentist, Sod's law always stops your teeth hurting by the time you get there? Well, if it's working to form, you should be fully recovered by the afternoon of the 18th at the latest! Fingers crossed. I wish you well for the 19th. Can you grit your teeth that long? hug.gif
ClaraTaylor
QUOTE (greybeard @ Oct 22 2009, 11:24 PM) *
You're really not having a happy time lately are you?

You know how after waiting for a week to see the dentist, Sod's law always stops your teeth hurting by the time you get there? Well, if it's working to form, you should be fully recovered by the afternoon of the 18th at the latest! Fingers crossed. I wish you well for the 19th. Can you grit your teeth that long? hug.gif


Considering what some people are going through this is a breeze. Just a particularly cold and sharp breeze.

For starts - I'm not a complete rump hole, this might be cured / controlled / no longer be a problem right? But the chap at work is stuck with that gaping hole forever.

The irony is that it's about this time last year that we noticed I was having issues with my shoulder which after much brutalisation (i.e. intense physio including my shoulder being accidentally* dislocated by the overly enthusiastic lass) led the physio to realise (after she ripped into me about my awful posture) I'd broken my pelvis / back (again)

* at least I thought it was an accident

Passed out briefly while my body reset it's pain levels last night (does anyone else have a body that does that?) - work up with my face pressed in the soil of the mini lemon tree in the kitchen. Wish I hadn't taken a huge breath in *cough baby bio!*
greybeard
I really love the way that you retain your unique sense of humour no matter how rough you feel. Hang on to that.
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