QUOTE (Lucydog @ Jun 18 2007, 03:47 AM)

Im confused. Is she quad or para? We do need to know so we can suggest a few things.
cheers
L
Thank you all for your thoughtful replies, but I made a serious mistake in my post. She's effectively a QUADRIplegic. I know the difference, but I just mistyped. She has cerebral palsy, but something else has been going on for years and she's been in so much denial or she's so unable to advocate for herself that she's never found a diagnosis. A bad fall caused her to break her femur and she hasn't been able to walk since. Being prescribed the wrong sort of wheelchair threw her head forward and caused her cervical vertebrae to pinch the brachial nerves coming out of her spine and damage them irrevocably. Anyway, now she can't move her arms or legs at all, to speak of. She can kick her feet out about six inches or so, but that's a tremendous effort. She can raise her left hand from her stomach to her chin, but this is also very difficult and she can't hold objects in it or manipulate things. Her right arm is completely motionless. Getting her significant other to take her anywhere is very difficult because it's always tricky to find an accessible path from the street where we usually have to park in my city to their destination. He's also a bit of a stick-in-the mud, very stubborn, and so accustomed to being right (he usually is) that he doesn't spot it when he's wrong.
If you all can offer something substantial to back up your suggestions (endorsements from medical or disability professionals or people with similar qualifications, or suggestions that have worked for many quads in a way that he can verify) he might sign on to this.
I hope we can find a way. Her weight is causing a lot of other problems that wouldn't seem to be connected. For instance, the way we have to lift her on a daily basis, aggrivated by her weight, is causing problems with her skin, and this daily lifting broke open the stitches from a surgery designed to correct the problem. If she were her normal weight, she wouldn't have had this problem. Now she's going to have horrible scarring and the continual lifting has caused the problem to recurr, right at the site of the scar. This is heartbreaking to see and it's worse to watch her slip even further into the escape of denial because she can't see any hope for her situation.
We both would be grateful beyond words for any effective suggestions.