im 22 years old been sci for 1year and 6mo and find myself fighting meantly to be alble to do want to and this didnt start to after i got hurt ,,i stay at home were i pay rent but when the person whos takeing care of me wants to take a brake ,,i got a choice ,go to a forsilty or pay for a nurse thats costly..,,also nurses tellin me that if there no one to sit at home with me then i have to live in a forsilty,, and im tellin them this is my house i pay all the bills how can sombody tell me how and where to live ,,,and they double team me everytime,,sayin social service will come take me weather i want to or not,,and think thats crazy,,

Sorry to hear your story, aaaa . . .
Not to seem ignorant, but what's a ''forsilty''? Is that like a nursing home/ retirement community for the elderly?

Just curious. Also, it seems to me that if the governmrnt pays for this type of home the nurses are talking about putting you in, it would be more cost effective to keep you where you are, as a contributing member of society, and not a debt to tax payers. Why they always insist on doing things ass-backwards is beyond me!

i understand your frustration and i'm sure being helped at home is the cheapest option for social services. however, social services have systems in place and are never flexible. when are they going to employ people with an ounce of common sense?

on the plus side being double teamed by nurses sounds pretty cool...!!

Hello guys

I think we all wonder about caregivers etc... and living expenses. Paying all the bills and not being able to llive the way u want to is very upsetting. Try to find a relative or someone u can trust to be there with u to help u out when needed.

I am having problems to adjusting to my sci lifestyle and my household.

We all are in this together keep your head up , plan ahead and work hard to take care of yourself.

About the nurses hmmm .. tell them where it hurts the most.... u might get lucky..

later ~ coolbreeze

I may be reading a lot into your post,,, but it sounds to me like you are at some relatives house ( parent, sibling, etc) and have that, or another relative as your main carer.

If this is the case,,, your only recourse is to talk to an attorney. He will be able to tell you what your rights are.

By the way,,, if your carer wants a break,,,, their pay should stop then , too,,,right???

That should give you money to help pay for the temporary replacement.

Money is always the problem. If we had a lot,, we could hire people who would do it OUR way. Usually that's not the case, though.

The local Bar Association will help you find a lawyer who is familiar with SCI matters, and speaking to your doctor will tell you if you need constant care.

There are also plenty of people here who will be glad to help you assess your situation if you give enough particulars.

I hope things start going better for you soon.
ed