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"I have been paraplegic for six years and I really would not wish this on my worst enemy. I often go to sleep hoping I will be delivered from the prison my body has become. The neuropathic pain I feel is constant and indescribable. Like fellow SCI people, I see my body gradually deteriorating and there is little to nothing I can do. I feel helpless. Please help us, promote research to help millions of suffering individuals get well."
"My beautiful little boy suffered brainstem infarction after undergoing a LP to diagnose meningitis, he is now in a wheelchair and permanently on a ventilator. He is only six years old. I want to know that everything is being done out there to find treatments for these untreatable conditions. I want to wake up every morning with hope."
"My son is a 24 yr. old quad. Injured 4 yrs ago. His life has been ripped out from underneath him due to this injury. NOTHING is the same. To be confined to a wheelchair is worse than death for him and for many young people who have suffered a sci. NO ONE, except those directly affected by sci, have any clue as to the heartbreak that this injury inflicts. My son is moving forward with his life, however, he truly wishes he had not survived his accident."
"I myself am a paraplegic of three and a half years due to an accident that could happen to anybody, could happen to your child, sister, brother mother, father, ... I think you get the picture. The happy picture of the disabled life that the public usually gets to see is one of happy paralympians winning medals and people being engaged in all manner of disabled sports, disabled this and disabled that and that we are really not any different from able bodied people. BUT THE PAINFUL TRUTH IS: WE ARE DIFFERENT. Our lives are not, I REPEAT: NOT THE SAME. I should know; I have been on both sides of the divide. I have lost two very dear friends (both paraplegics) who have committed suicide because they could not deal with the pain (both physical and otherwise) the huge sense of loss and the bouts of depression any more. Matt and Clayton, this letter and signature are dedicated to your memory. It is high time the worldwide media stopped telling what I would call "THE BIG LIE" by highlighting the "sexy" parts of the disabled life and completely ignoring the dark, ugly, debilitating underbelly of the disabled lifestyle that includes such unpleasant things as depression, infections, skin break down, a diminished social life, social isolation, bowl and bladder movements "gone wrong". I could go on and on and on. I would urge all of you to sign this petition if you suffer from paralysis or have a friend or family that does; or simply because you feel it's the right thing to do and freedom from paralysis is a human rights issue. Thank you."
Edited by topperf, 16 December 2008 - 01:32 PM.
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