Quadriplegic & Paraplegic Spinal Cord Injuries: Are There Other Quads That Live On Their Own? - Quadriplegic & Paraplegic Spinal Cord Injuries

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Are There Other Quads That Live On Their Own? Moving out of my parents house! Rate Topic: -----

#1 User is offline   wheelchairbarbie 

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Posted 16 January 2009 - 06:41 PM

(I wasn't sure where I was supposed to post this, so I'll post here and hope that it's fine.)

Hey,

So, I have been wanting to move out of my parents house for a while now. I'm almost 22 and feel that it's time that I get out, get my own life and a job, etc. I have found an apartment that I am going to be moving into. I have to sign the contract, and I already put down the security deposit. I know I'll have the funds to pay my rent, etc, but paying for attendant care is another story.

I had a meeting with my disability support worker today, (I live in Canada, btw), and we discussed how much money they could provide for an attendant. They said all they could provide is $1,100/month. I need someone around basically 24/7, and if I had someone around that much, we figured that it'd cost $8,000/month. (This is paying the person $12/hour, which is as cheep as I could probably find)

So, all in all, I DO NOT have $8,000 to pay out each month, but I have no idea what to do. I want to move out, and I don't want to put it off any longer, but I'm in a bit of a pickle.

There has to be other quads that live out on their own, so I'm wondering how do they pay for attendant care?

This post has been edited by wheelchairbarbie: 16 January 2009 - 06:43 PM

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#2 User is offline   wheelchairbarbie 

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Posted 17 January 2009 - 05:28 PM

I'm very surprised that no one has any advice for me! Wow...
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#3 User is offline   Texas Angel Ang 

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Posted 17 January 2009 - 08:01 PM

I'm sorry Jen, I don't know what to tell you, I'm a quad but do not live on my own. $12 an hour is pretty cheap but understand that $8,000 a month is not feasible for you. Were you planning on having roommates?? Maybe have a friend that would fill in on some of those hours to cut back?? I don't know.

I know that you want to move out... I'm trying to think (I'm not familiar with Canada's system, hell I'm not even familiar with the US system LOL)

are you planning on working or found a job??
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#4 User is offline   wheelchairbarbie 

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Posted 17 January 2009 - 09:33 PM

View PostTexas Angel Ang, on Jan 17 2009, 04:01 PM, said:

I'm sorry Jen, I don't know what to tell you, I'm a quad but do not live on my own. $12 an hour is pretty cheap but understand that $8,000 a month is not feasible for you. Were you planning on having roommates?? Maybe have a friend that would fill in on some of those hours to cut back?? I don't know.

I know that you want to move out... I'm trying to think (I'm not familiar with Canada's system, hell I'm not even familiar with the US system LOL)

are you planning on working or found a job??



I've been on the computer today trying to work out different schedules and amounts that I could pay!

I will have a roommate, so I'm thinking if she's around I can free up some more time w/o having a attendant around.

I will be finding a job once I get down there, but everyone says I should get settled before I get a job!
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#5 User is offline   qbounce 

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Posted 17 January 2009 - 10:18 PM

Jen,
It tends to slow down during the weekend, so waite 'til Monday to get the responses flying in!

Sorry I can't help much, 'cus I only needed care for the night bathroom stuff. Then I started dating her, and . . . . well, it's free care now!!--hehe

Maybe it'll be a fight you'll have to explain to your insurance providers how much MORE it costs when you're in an assisted living place versus paying for your own apartment.

Good luck tp you!
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#6 User is offline   eks 

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Posted 19 January 2009 - 12:30 AM

hi,

I thought I would jump in seeing as I just moved in to apartment to live on my own. I am a C4/C5 with limited use of my right arm. I recently moved into an apartment after having been institutionalized for the past 17 months since my accident. I thought maybe sharing my experience might be helpful.

In my case I started "training" to be able to live alone a couple months prior to the actual event. Step one was being able to spend a long night on my back without being turned. This was accomplished by finding a really good mattress and slowly getting accustomed to not being turned. This meant decreasing the frequency and increasing the time between turns until I was spending the whole night on my back. At first involve a lot of waking up in the middle of the night to verify my skin condition, but now I just have to check every morning to make sure all is still good.

At the same time as the mattress training, I was trying out different environmental control systems. I finally found a really good unit that could control my bed, raising or lowering their feet and head, he could also control all the lights, and electronic equipment in the house. We also had a door opener installed that worked with the same unit. So basically I could answer the intercom, let someone into the building, and then open my own front door. This unit also included a telephone built-in. So I always had the phone with me with a lot of pre-programmed numbers. This control stayed on my chair in the day and at night it clips to my bed.

So those were two big things. Then came finding the apartment, which I managed to do in a co-op near downtown.

I then faced the same dilemma as you did. I had a limited budget to staff my life. Here in Québec I was entitled to 44 hours a week at $11 per hour for home care. This does not include nursing care which I get as required.

This is how I use the 44 hours.

Early morning: 3 to 4 hours to get me up and prepared and put in my chair. I shower every other day so some days are shorter and some days are longer.
Lunchtime: between 12-1 I have someone come in to prepare a light lunch and feed me.
Supper: between 5 and 6 I have someone come in to prepare supper and feed me.
Bedtime: between 9 and 10 someone comes to transfer me from my chair to my bed and get me ready for the night.

Each time someone comes I have them do a couple of things. For example, when the person has finished in the morning I will have a load of laundry put in the washer. at lunchtime I will have that person switch out the laundry and fold. I will also have them fill up my water bottle, etc.

So far I've been here just over a month with no major events. It took a lot of work and planning but so far it's working out. I have someone to help me if I need to go to an appointment or something. And there are also different community groups that can help out. There is an organization just there just to accompany one to appointments. There's Meals on Wheels, and we have an IGA grocery store that has full online ordering and delivery. I know that all this varies from community to community but it might be worth checking out what services are there to help.

All this to say, when I first thought of leaving the health care system I also wondered how I would cope without 24/7 care. So far so good. And it's way better than the other option for someone in my condition which is living in an old-age home.
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#7 User is offline   WildKat 

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Post icon  Posted 19 January 2009 - 01:09 AM

View Postwheelchairbarbie, on Jan 16 2009, 01:41 PM, said:

(I wasn't sure where I was supposed to post this, so I'll post here and hope that it's fine.)

Hey,

So, I have been wanting to move out of my parents house for a while now. I'm almost 22 and feel that it's time that I get out, get my own life and a job, etc. I have found an apartment that I am going to be moving into. I have to sign the contract, and I already put down the security deposit. I know I'll have the funds to pay my rent, etc, but paying for attendant care is another story.

I had a meeting with my disability support worker today, (I live in Canada, btw), and we discussed how much money they could provide for an attendant. They said all they could provide is $1,100/month. I need someone around basically 24/7, and if I had someone around that much, we figured that it'd cost $8,000/month. (This is paying the person $12/hour, which is as cheep as I could probably find)

So, all in all, I DO NOT have $8,000 to pay out each month, but I have no idea what to do. I want to move out, and I don't want to put it off any longer, but I'm in a bit of a pickle.

There has to be other quads that live out on their own, so I'm wondering how do they pay for attendant care?


Hi,

Its great that you have one thing out of the way at least in finding an apartment. I know how much work that can be! I'm Canadian also! Are there any organizations there that provide care for free or for a smaller price? I use to live in NS and there was a program like that there, but I can't remember the name of it. I never bothered using them because the only things I needed help with was taking the trash out and getting my laundry out of the washing machine. It might be worth looking into though.

Other than that can your parents or friends help out with some of the things you need? What type of things do you need help with exactly? If it's cooking and cleaning and things like that would your mom or dad mind coming by once a week or so and helping with that? You could get together and cook meals enough for a week at a time and freeze them. Then all you have to do is put them in the microwave. Then you would just have to worry about having someone come in for the other things and it wouldn't cost so much.

Once you go to bed do you really need someone there then? I guess you just have to take a look at the things you absolutely need help with and the things you can manage on your own. Once you figure out ways to do things living on your own shouldn't be that hard. I'm a c6 complete and have been totally blind since birth. I've been living alone with no help since I left rehab so I'm probably not much help. Sorry. I'm not sure what else to suggest.

Have you considered having a roommate? Maybe that would help because you'd have someone around that wasn't your parents and you could help each other with the cleaning and upkeep of the apt. etc. Then the person you pay to come in would only have to help you with the personal things. I hope it works out for you!
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#8 User is offline   KarenFerguson 

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Posted 19 January 2009 - 01:29 AM

Hubby lived on his own before he met me. He would have a nurse come out 3 times a week to help with the bowel program. He also had home health aids which would come in each day at 10:00pm, they would leave at 10:00am after a 12 hour shift. They would help hubby into bed each evening and they would be there in case he needed anything in the middle of the night. Then in the morning they would help hubby get dressed and out of bed, and occasionally help with breakfast. The aids also helped with laundry and light house cleaning. For lunch and dinner would prepare his own meals mainly using a microwave.

Once he was in his chair in the morning, he was pretty much on his own throughout the day. Following his accident he has 24 hour care, but later on he was fine with just the night and morning shifts.

Feel free to PM me with any other questions ... :)
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#9 User is offline   norma 

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Posted 19 January 2009 - 02:01 PM

Wow! Getting out on your own, that's exciting! I'm always amazed at the courage and drive you all have. My thoughts on this are what about family helping? I'm from Ontario and I've been to PEI and it has very small towns. Maybe there are volunteers you could tap into. Like people that volunteer at the hospitals?? Just a thought. Church family?? Hope that this works out and freedom comes soon. All the best, Norma
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#10 User is offline   wheelchairbarbie 

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Posted 19 January 2009 - 05:18 PM

Thank you all for replying with ideas/experiences. I think I should give a little more of an explanation of my situation.

I will have a roommate, but she is my friend, and I don't want her to be taking care or helping with my care at all. It would just cause me too feel like a burden to her, and I know it would make our relationship weird, and she's the only really close friend I have. I don't want to lose that. She's a very nice person and I know she'd do anything for me if I asked, but I just can't allow her to. She will be there most the time and I'm sure she'll be making our meals etc., so I'm okay with that type of thing.

My family will be about 2 hours away from me, so getting them to be around and help me isn't really realistic. Though my mum is coming with me for the first few weeks to help me find an attendant and help train them.

One of the biggest challenges that I face is around bladder care. I'm not on a set schedule when it comes to cathing because I know when I need to go, but I can't cath myself. So I'm not sure what to do. Sometimes I can cath and an hour later I need to cath again, but other times I can go 5 or 6 hours without needing to cath. And that's one of the biggest reasons I need someone to be around because I don't want to wet myself, or on the other extreme, I don't want to go dysreflexic from needing to cath.

I really don't want someone around me watching over me the whole time, so I'm not sure what to do. If I never had to cath this would be so much easier!
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#11 User is offline   eks 

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Posted 19 January 2009 - 05:51 PM

have you thought about indwelling catheter? I have one that discreetly connects to a 4 L bag hidden behind my leg rests. This allows me to go a whole day without ever having to worry. It sucks having to make these kind of choices, but on the plus side this allows me to drink as much water as I want. I don't know if it's a coincidence but since I stopped getting caths I've gotten almost no UTIs. I drink about 3 L of water a day. I've had indwelling for a year now it's really given me a lot more freedom.
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#12 User is offline   wheelchairbarbie 

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Posted 19 January 2009 - 06:26 PM

View Posteks, on Jan 19 2009, 01:51 PM, said:

have you thought about indwelling catheter? I have one that discreetly connects to a 4 L bag hidden behind my leg rests. This allows me to go a whole day without ever having to worry. It sucks having to make these kind of choices, but on the plus side this allows me to drink as much water as I want. I don't know if it's a coincidence but since I stopped getting caths I've gotten almost no UTIs. I drink about 3 L of water a day. I've had indwelling for a year now it's really given me a lot more freedom.



But isn't it harder on females to have an indwelling cath?
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#13 User is offline   WildKat 

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Posted 19 January 2009 - 08:56 PM

View Postwheelchairbarbie, on Jan 19 2009, 01:26 PM, said:

But isn't it harder on females to have an indwelling cath?


I still use an indwelling cath sometimes if I'm going on a long flight or in situations like that. I don't think it's any harder really. If you used a big leg bag no one would even notice and you wouldn't have to empty it so much. I forget the name of the valve that I'm thinking about but you can get different ones and you can try a few different kinds to figure out what one works best for you.
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#14 User is offline   allis53ca 

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Posted 19 January 2009 - 09:00 PM

i do as Eks does, only hang bag in bag behind backrest/under seatpan
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#15 User is offline   Texas Angel Ang 

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Posted 20 January 2009 - 12:46 AM

View Postwheelchairbarbie, on Jan 19 2009, 12:26 PM, said:

View Posteks, on Jan 19 2009, 01:51 PM, said:

have you thought about indwelling catheter? I have one that discreetly connects to a 4 L bag hidden behind my leg rests. This allows me to go a whole day without ever having to worry. It sucks having to make these kind of choices, but on the plus side this allows me to drink as much water as I want. I don't know if it's a coincidence but since I stopped getting caths I've gotten almost no UTIs. I drink about 3 L of water a day. I've had indwelling for a year now it's really given me a lot more freedom.



But isn't it harder on females to have an indwelling cath?


they always caused more UTIs for me!!!
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#16 User is offline   wheelchairbarbie 

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Posted 20 January 2009 - 01:10 AM

View PostTexas Angel Ang, on Jan 19 2009, 08:46 PM, said:

View Postwheelchairbarbie, on Jan 19 2009, 12:26 PM, said:

View Posteks, on Jan 19 2009, 01:51 PM, said:

have you thought about indwelling catheter? I have one that discreetly connects to a 4 L bag hidden behind my leg rests. This allows me to go a whole day without ever having to worry. It sucks having to make these kind of choices, but on the plus side this allows me to drink as much water as I want. I don't know if it's a coincidence but since I stopped getting caths I've gotten almost no UTIs. I drink about 3 L of water a day. I've had indwelling for a year now it's really given me a lot more freedom.



But isn't it harder on females to have an indwelling cath?


they always caused more UTIs for me!!!


Yeah, that's what I figured. : /
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#17 User is offline   Ches 

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Posted 20 January 2009 - 03:42 AM

Thats a tough one Barbie, you're gonna have to find a volunteer of some sort. I wish I could help more.

All I can think is just keep sorting through your resources and programs available to you.

I know I've asked before, and I dont mean to snoop but why is cathing difficult for you? I only ask cause two things came to mind; If it a matter of arm function, and holding on to the cath, is it possible to get some sort of glove or tool that can help? Or, if its the actual positioning itself, but you can cath yourself once in position, would it be possible to just get some help getting on and off the potty?
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#18 User is offline   wheelchairbarbie 

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Posted 20 January 2009 - 06:58 PM

View PostChes, on Jan 19 2009, 11:42 PM, said:

Thats a tough one Barbie, you're gonna have to find a volunteer of some sort. I wish I could help more.

All I can think is just keep sorting through your resources and programs available to you.

I know I've asked before, and I dont mean to snoop but why is cathing difficult for you? I only ask cause two things came to mind; If it a matter of arm function, and holding on to the cath, is it possible to get some sort of glove or tool that can help? Or, if its the actual positioning itself, but you can cath yourself once in position, would it be possible to just get some help getting on and off the potty?


I just don't have the hand/arm function to cath myself. I also can't position myself, and even if I could, it'd still be hard to reach. I recline my chair when I cath, so it's just not something I can do.

I mean, if I need help to be positioned/etc, that still means someone is going to have to be there to help me, which equals money.
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#19 User is offline   Trinity 

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Posted 20 January 2009 - 10:54 PM

Have you considered a suprapubic cath? Less chance of infection than a regular indwelling although still more than intermittent. But may be a good trade off with independence. Plus is reversible if you decide it's not the way to go
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#20 User is offline   Ches 

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Posted 21 January 2009 - 02:15 PM

That just may be your most indie option, unless you can come up with the funds...
Even with the funds the SP may be the best way to go, one more step towards complete independence.
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#21 User is offline   wheelchairbarbie 

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Posted 21 January 2009 - 03:50 PM

View Posttrinity, on Jan 20 2009, 06:54 PM, said:

Have you considered a suprapubic cath? Less chance of infection than a regular indwelling although still more than intermittent. But may be a good trade off with independence. Plus is reversible if you decide it's not the way to go


I have researched that before. I'm not even sure if I can get it done in Canada.

I mean, I know it would be great. I'm also terrified of being put to sleep for surgeries. (idk why, I've had a number of operations before!)
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#22 User is offline   Bandy 

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Posted 21 January 2009 - 04:34 PM

hiya

I have a supra pubic catheter, and works great for me. Had few infections over 8 years. They even do surgery under a sinal block, so no nee for general anaesthetic.
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#23 User is offline   wheelchairbarbie 

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Posted 21 January 2009 - 04:53 PM

View PostBandy, on Jan 21 2009, 12:34 PM, said:

hiya

I have a supra pubic catheter, and works great for me. Had few infections over 8 years. They even do surgery under a sinal block, so no nee for general anaesthetic.



Is it like a major surgery?
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#24 User is offline   Bandy 

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Posted 21 January 2009 - 04:58 PM

no not at all

takes about 10 or 15 mins, longer to prepare than anything else. You'll need to take oxybutanin xl tablets to reduce bladder spasms afterwards. I've never had any side effects though.
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#25 User is offline   eleanorigby 

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Posted 21 January 2009 - 05:14 PM

Hey wheelchairbarbie,

Congrats on moving out! I'm dying to do so, but unfortunetly money is a real issue for me. Basically, I had to choose between my car and moving out, and I chose car. So as long as I have monthly car payments, I'm living at home :)

Anyway, about the cathing situation. Like you, I cannot cath myself due to hand problems. I'm hoping against hope that I will figure out a way one day so I can be fully independent (hey, I figured out pretty much everything else including my bowel program and how to tie my shoes with one hand), but until then I use an indwelling. I will tell you now that this is a temporary solution, but it does give you so much freedom. I was really resistant to wearing an indwelling cath all through high school and so I had to have an aide at school to help me cath and this led to accidents and dyserflexia (I know the spelling is horrible). Whenever I went out with friends, I had to worry about the same thing and could never be seperated from my mother (who cathed me outside of school) for more than a few hours. With the indwelling I depend on no one for bathroom stuff. I don't use a leg bag, I use a plug and just unplug my cath and empty it into a bottle when needed (I too can tell when I need to "go").

As for UTIs, I've always been prone to them, so I get them either way. However, for me the indwelling leads to less UTIs overall. Eventually I will have to get an SP because an indwelling is not meant to be permanent, but I am putting that off for as long as possible as it just feels a little overwhelming to me right now.

Good luck out there!

This post has been edited by eleanorigby: 21 January 2009 - 05:14 PM

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#26 User is offline   wheelchairbarbie 

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Posted 21 January 2009 - 05:42 PM

View PostBandy, on Jan 21 2009, 12:58 PM, said:

no not at all

takes about 10 or 15 mins, longer to prepare than anything else. You'll need to take oxybutanin xl tablets to reduce bladder spasms afterwards. I've never had any side effects though.



Really? I remember when I was in rehab, a lot of the female SCIs were getting a procedure done that they could cath through their belly button.

With a SP do you need to use an indwelling cath?
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#27 User is offline   wheelchairbarbie 

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Posted 21 January 2009 - 05:50 PM

View Posteleanorigby, on Jan 21 2009, 01:14 PM, said:

Hey wheelchairbarbie,

Congrats on moving out! I'm dying to do so, but unfortunetly money is a real issue for me. Basically, I had to choose between my car and moving out, and I chose car. So as long as I have monthly car payments, I'm living at home :)

Anyway, about the cathing situation. Like you, I cannot cath myself due to hand problems. I'm hoping against hope that I will figure out a way one day so I can be fully independent (hey, I figured out pretty much everything else including my bowel program and how to tie my shoes with one hand), but until then I use an indwelling. I will tell you now that this is a temporary solution, but it does give you so much freedom. I was really resistant to wearing an indwelling cath all through high school and so I had to have an aide at school to help me cath and this led to accidents and dyserflexia (I know the spelling is horrible). Whenever I went out with friends, I had to worry about the same thing and could never be seperated from my mother (who cathed me outside of school) for more than a few hours. With the indwelling I depend on no one for bathroom stuff. I don't use a leg bag, I use a plug and just unplug my cath and empty it into a bottle when needed (I too can tell when I need to "go").

As for UTIs, I've always been prone to them, so I get them either way. However, for me the indwelling leads to less UTIs overall. Eventually I will have to get an SP because an indwelling is not meant to be permanent, but I am putting that off for as long as possible as it just feels a little overwhelming to me right now.

Good luck out there!


That is the same as me. I can only be away from my mother for a few hours incase I need to cath. Because if I don't cath I either wet (which is embarrassing and no fun) or I could go dysreflexic.

Like an indwelling would be okay, and it would help a lot....but I'm thinking what if I met a guy and decided to be spontaneous? Then I have this cathiter....not so sexy. (though I'm sure being spontaneous with a guy is quite unlikely... :/ lol)
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#28 User is offline   Texas Angel Ang 

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Posted 21 January 2009 - 06:35 PM

View Postwheelchairbarbie, on Jan 21 2009, 11:50 AM, said:

View Posteleanorigby, on Jan 21 2009, 01:14 PM, said:

Hey wheelchairbarbie,

Congrats on moving out! I'm dying to do so, but unfortunetly money is a real issue for me. Basically, I had to choose between my car and moving out, and I chose car. So as long as I have monthly car payments, I'm living at home :(

Anyway, about the cathing situation. Like you, I cannot cath myself due to hand problems. I'm hoping against hope that I will figure out a way one day so I can be fully independent (hey, I figured out pretty much everything else including my bowel program and how to tie my shoes with one hand), but until then I use an indwelling. I will tell you now that this is a temporary solution, but it does give you so much freedom. I was really resistant to wearing an indwelling cath all through high school and so I had to have an aide at school to help me cath and this led to accidents and dyserflexia (I know the spelling is horrible). Whenever I went out with friends, I had to worry about the same thing and could never be seperated from my mother (who cathed me outside of school) for more than a few hours. With the indwelling I depend on no one for bathroom stuff. I don't use a leg bag, I use a plug and just unplug my cath and empty it into a bottle when needed (I too can tell when I need to "go").

As for UTIs, I've always been prone to them, so I get them either way. However, for me the indwelling leads to less UTIs overall. Eventually I will have to get an SP because an indwelling is not meant to be permanent, but I am putting that off for as long as possible as it just feels a little overwhelming to me right now.

Good luck out there!


That is the same as me. I can only be away from my mother for a few hours incase I need to cath. Because if I don't cath I either wet (which is embarrassing and no fun) or I could go dysreflexic.

Like an indwelling would be okay, and it would help a lot....but I'm thinking what if I met a guy and decided to be spontaneous? Then I have this cathiter....not so sexy. (though I'm sure being spontaneous with a guy is quite unlikely... :/ lol)


Ummmmmyou can still being spontaneous with an indwelling catheter -- no it's not the sexiest thing in the world but not impossible :) just be extra careful if that should happen-- ;)
"Become your own roll model, your wheelchair is just another accessory in life" Me
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#29 User is offline   wheelchairbarbie 

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Posted 21 January 2009 - 06:52 PM

View PostTexas Angel Ang, on Jan 21 2009, 02:35 PM, said:

View Postwheelchairbarbie, on Jan 21 2009, 11:50 AM, said:

View Posteleanorigby, on Jan 21 2009, 01:14 PM, said:

Hey wheelchairbarbie,

Congrats on moving out! I'm dying to do so, but unfortunetly money is a real issue for me. Basically, I had to choose between my car and moving out, and I chose car. So as long as I have monthly car payments, I'm living at home :(

Anyway, about the cathing situation. Like you, I cannot cath myself due to hand problems. I'm hoping against hope that I will figure out a way one day so I can be fully independent (hey, I figured out pretty much everything else including my bowel program and how to tie my shoes with one hand), but until then I use an indwelling. I will tell you now that this is a temporary solution, but it does give you so much freedom. I was really resistant to wearing an indwelling cath all through high school and so I had to have an aide at school to help me cath and this led to accidents and dyserflexia (I know the spelling is horrible). Whenever I went out with friends, I had to worry about the same thing and could never be seperated from my mother (who cathed me outside of school) for more than a few hours. With the indwelling I depend on no one for bathroom stuff. I don't use a leg bag, I use a plug and just unplug my cath and empty it into a bottle when needed (I too can tell when I need to "go").

As for UTIs, I've always been prone to them, so I get them either way. However, for me the indwelling leads to less UTIs overall. Eventually I will have to get an SP because an indwelling is not meant to be permanent, but I am putting that off for as long as possible as it just feels a little overwhelming to me right now.

Good luck out there!


That is the same as me. I can only be away from my mother for a few hours incase I need to cath. Because if I don't cath I either wet (which is embarrassing and no fun) or I could go dysreflexic.

Like an indwelling would be okay, and it would help a lot....but I'm thinking what if I met a guy and decided to be spontaneous? Then I have this cathiter....not so sexy. (though I'm sure being spontaneous with a guy is quite unlikely... :/ lol)


Ummmmmyou can still being spontaneous with an indwelling catheter -- no it's not the sexiest thing in the world but not impossible :) just be extra careful if that should happen-- ;)


But it would be weird! lol Like I said though...I'm sure I have no worries for that happening! lol
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#30 User is offline   Texas Angel Ang 

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Posted 21 January 2009 - 07:09 PM

View Postwheelchairbarbie, on Jan 21 2009, 12:52 PM, said:

View PostTexas Angel Ang, on Jan 21 2009, 02:35 PM, said:

View Postwheelchairbarbie, on Jan 21 2009, 11:50 AM, said:

View Posteleanorigby, on Jan 21 2009, 01:14 PM, said:

Hey wheelchairbarbie,

Congrats on moving out! I'm dying to do so, but unfortunetly money is a real issue for me. Basically, I had to choose between my car and moving out, and I chose car. So as long as I have monthly car payments, I'm living at home :(

Anyway, about the cathing situation. Like you, I cannot cath myself due to hand problems. I'm hoping against hope that I will figure out a way one day so I can be fully independent (hey, I figured out pretty much everything else including my bowel program and how to tie my shoes with one hand), but until then I use an indwelling. I will tell you now that this is a temporary solution, but it does give you so much freedom. I was really resistant to wearing an indwelling cath all through high school and so I had to have an aide at school to help me cath and this led to accidents and dyserflexia (I know the spelling is horrible). Whenever I went out with friends, I had to worry about the same thing and could never be seperated from my mother (who cathed me outside of school) for more than a few hours. With the indwelling I depend on no one for bathroom stuff. I don't use a leg bag, I use a plug and just unplug my cath and empty it into a bottle when needed (I too can tell when I need to "go").

As for UTIs, I've always been prone to them, so I get them either way. However, for me the indwelling leads to less UTIs overall. Eventually I will have to get an SP because an indwelling is not meant to be permanent, but I am putting that off for as long as possible as it just feels a little overwhelming to me right now.

Good luck out there!


That is the same as me. I can only be away from my mother for a few hours incase I need to cath. Because if I don't cath I either wet (which is embarrassing and no fun) or I could go dysreflexic.

Like an indwelling would be okay, and it would help a lot....but I'm thinking what if I met a guy and decided to be spontaneous? Then I have this cathiter....not so sexy. (though I'm sure being spontaneous with a guy is quite unlikely... :/ lol)


Ummmmmyou can still being spontaneous with an indwelling catheter -- no it's not the sexiest thing in the world but not impossible :) just be extra careful if that should happen-- ;)


But it would be weird! lol Like I said though...I'm sure I have no worries for that happening! lol


It's Extremely weird At first...But once you're getting into The moment...Your concentration goes Elsewhere LOL. When I use the indwelling I just put a blanket over it. However,If you do choose To do this Be aware that During sexual activity It can Irritate you and cause blood in the urine! Oh and girl when you do move out and YOU WILL... you will be having a lot more "spontaneous" moments :(
"Become your own roll model, your wheelchair is just another accessory in life" Me
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