7 replies to this topic

[Tab]

Hi.My name is Tabitha and my sis is a T-12 ,incomplete and has a bachlophen/morphine pump.She is in severe pain for a total of 12 hours a day ,not straight ,but a total.She sees her doc. all of the time and he tweaks it for her but she thinks that hes just moving the hours around so she's still in pain.She on nurotin also and she hates taking it and thinks that why should she take it if she has this pump in but shes in to much pain to not take it.She says that she doesnt want to live in this pain anymore and she wants to blow her head off.Please someone help......Please.......

[Tab]

Me and her were in a car accident when we were 13 in 1987.I don't know what to do or say to her.I'm there for her when she needs me and her husband is there also.I'm married and I live 40 minutes away so it's difficult to be there all the time.Plus I work about 60-70 hours a week.I told her to get a computer which she says she's going to.Are you supposed to be in so much pain still when you get this pump in?? It's so sad to see her in her room all day long lying in bed because of her pain.She's been lying in her bed for years now.She only gets up and does anything if she's loaded on her meds. Can some one please tell me what to tell her? or is her doc. doing something wrong?

[EileenM.]

 Tab, on Jan 24 2009, 08:45 PM, said:

Hi.My name is Tabitha and my sis is a T-12 ,incomplete and has a bachlophen/morphine pump.She is in severe pain for a total of 12 hours a day ,not straight ,but a total.She sees her doc. all of the time and he tweaks it for her but she thinks that hes just moving the hours around so she's still in pain.She on nurotin also and she hates taking it and thinks that why should she take it if she has this pump in but shes in to much pain to not take it.She says that she doesnt want to live in this pain anymore and she wants to blow her head off.Please someone help......Please.......

[Tab]

ANYONE??????????????????

[longhaul]

Hi Tab. pain is one of the hardest things in SCI to deal with because it makes no since. If she were my sister I would try to get her to see a pain specialist one into pain management not pills. There are just to many things to consider to give you advise and that's why the lack of responses. The majority of the people on here deal with pain and it's different for each and everyone. When someone focuses on the pain it becomes all consuming. Good Luck

[Tab]

Thanks for the responce.Does anyone here have the pump? If so , are you in that much pain? And how many mc's are you on? Thanks

[joesgarage]

 Tab, on Jan 25 2009, 03:38 PM, said:

Thanks for the responce.Does anyone here have the pump? If so , are you in that much pain? And how many mc's are you on? Thanks

Hi Tab,

I'm Joe a paraplegic based in Belfast Northern Ireland, I've just recently been seen by a hospital consultant who has recommended a pump to me so I to am very interested in what any long term users have to say. I had a motorcycle accident 23 years ago and have been confined to a wheelchair ever since. I am in pain every day and up until recently feel I have coped reasonably well, I use a combination of drugs including Morphine patches, Severdol (morphine sulphate) tablets, Co-Dydramol tablets and Ibrufen tablets to control my pain. It never completely takes the pain away but takes the edge of it enough to a level were I can function. Though for some reason every few months my pain gets out of control, I then spend the next 3-4 days and nights in agony in a dark bedroom. I can't sleep, eat, tolerate light, noise, heat or cold and especially people. I'm either screaming, shouting, sobbing or crying and take every prescribed drug I'm allowed to until eventually the pain begins to settle down and eventually ease. By this time I am completely exhausted and every muscle in my body aches due to spasms caused by the pain, but at least I can finally sleep. Up until a few years ago my Doctor would have came out, given me a Morphine jab which usually settled the pain a lot quicker and helped the other drugs break-through the pain. But for whatever reason Doctors won't even consider this option anymore, I sometimes think if only a Doctor could take my place they might just see and think a lot differently. Don't get me wrong, I don't doubt they completely are sympathetic and even probably frustrated at the level of help/relief they can or are allowed to administer. But for f**k's sake! this is 2009 no-one should have to suffer like this. I have a partner and a ten year old son, what must it be like for them when I'm in severe pain, especially for my son to have to listen to his Dad screaming and crying? It's at times like this that I feel so alone and so very angry, why can't someone help surely there must be something someone can do in this day and age?

Anyway sorry for the rant, I guess what I'm trying to explain Tab is that I think I know exactly how your sister feels and also how you feel having to stand by and watch on helplessly as your sister suffers. I just wanted to show you guys that are not the only ones going through this and that there are many family's just like you and your amazing sister.

If it was up to me, I would INSIST that your sisters Doctor refers her to a dedicated 'pain clinic' as far as I know every major hospital has one. Pain clinics specialise in patients with acute pain and will often try many different and sometimes unorthodox methods to deal with severe pain, who knows the pump might be ideal for your sisters type of pain. So I urge you to try the pain clinic, even just the feeling that there are people who listen and totally understand what your trying to describe to them can give you such a lift. But I would like to point out that I'm not an expert and that this is just my opinion based on my experience in dealing with pain. I hope this helps somehow and feel free to email me.

Big love from Ireland,

Joe

[Vicki]

I agree with Joe Tab. Try a pain clinic as that is the best way to go in my humble opinion.

I am one of the lucky few with an SCI who does not have pain. However I have plenty of people and went through the spinal injuries unit with who do.

Cheerio
Vicki