2 replies to this topic

[saintcat]

Hi there I'm from sunny South Africa and I'm so glad I found this forum and be able to correspond with people who has been there and got the wheelchair sticker.

I got injured on the 3rd of May 1997 during a rugby match, my injury level is C5. Lets jump to the present, as I'm sitting here I'm sweating like a race horse and I keep on bypassing. I am using an indwelling foley catheter for the last almost 12 years now, I started with the latex ones but they got blocked so often and I hardly could hold them in for more then a week, I later developed a allergy for the latex and stinky yellowish mucus used to flow from my penis from the wear of the latex one, I now use the silicone one which are much better but nowadays I seem to bypass more. For a while now I see my leg bag and bed stand turn a purplish colour. During the last year I had 3 severe bladder infections, one time my local clinic gave me an antibiotic that was too weak and I suffered from autonomic dysreflexia. Yeah our health care can be better! I drink a lot of water and when my brother changes my cath we try to keep everything as clean/sterile as possible but still I keep getting these infections. I also keeping remembering the staff sister's words of my body will tell me when it does not want the cath anymore, is this time to move off the cath and to what do i move? Can anyone assist me with my options?

[brython2]

saintcat, on Jan 25 2009, 04:28 PM, said:

Hi there I'm from sunny South Africa and I'm so glad I found this forum and be able to correspond with people who has been there and got the wheelchair sticker.

I got injured on the 3rd of May 1997 during a rugby match, my injury level is C5. Lets jump to the present, as I'm sitting here I'm sweating like a race horse and I keep on bypassing. I am using an indwelling foley catheter for the last almost 12 years now, I started with the latex ones but they got blocked so often and I hardly could hold them in for more then a week, I later developed a allergy for the latex and stinky yellowish mucus used to flow from my penis from the wear of the latex one, I now use the silicone one which are much better but nowadays I seem to bypass more. For a while now I see my leg bag and bed stand turn a purplish colour. During the last year I had 3 severe bladder infections, one time my local clinic gave me an antibiotic that was too weak and I suffered from autonomic dysreflexia. Yeah our health care can be better! I drink a lot of water and when my brother changes my cath we try to keep everything as clean/sterile as possible but still I keep getting these infections. I also keeping remembering the staff sister's words of my body will tell me when it does not want the cath anymore, is this time to move off the cath and to what do i move? Can anyone assist me with my options?

Hi mate! Similar injury and bladder probs here too, "beam me up scotty!"

I found this booklet through the American Care Cure website :- http://www.pva.org/s....pdf?docID=1101 which explains a lot of things about the bladder, so it may be worth you having a look or printing it out ( I've had to order a new ink cartridge for my printer for the job!)

I've been on conveen/sheath drainage 13yrs but alas my bladder pressure is too high now, so I had to give that up.
Now I'm on intermittent catheters, but there's too much pressure still, so I have to choose between a Sphynctorotomy, Urethral Stent or a Bladder Augemntation. There is Suprapubic as well, not sure if that's a choice for me yet, if you do a search for these on the Bladder Care section of this website, or try Google, you'll find a lot of usefull information.
Also it may be worth you seeing a urologist to check your bladder pressures etc

Good luck!

[SCOTIE]

saintcat, on Jan 25 2009, 04:28 PM, said:

Hi there I'm from sunny South Africa and I'm so glad I found this forum and be able to correspond with people who has been there and got the wheelchair sticker.

I got injured on the 3rd of May 1997 during a rugby match, my injury level is C5. Lets jump to the present, as I'm sitting here I'm sweating like a race horse and I keep on bypassing. I am using an indwelling foley catheter for the last almost 12 years now, I started with the latex ones but they got blocked so often and I hardly could hold them in for more then a week, I later developed a allergy for the latex and stinky yellowish mucus used to flow from my penis from the wear of the latex one, I now use the silicone one which are much better but nowadays I seem to bypass more. For a while now I see my leg bag and bed stand turn a purplish colour. During the last year I had 3 severe bladder infections, one time my local clinic gave me an antibiotic that was too weak and I suffered from autonomic dysreflexia. Yeah our health care can be better! I drink a lot of water and when my brother changes my cath we try to keep everything as clean/sterile as possible but still I keep getting these infections. I also keeping remembering the staff sister's words of my body will tell me when it does not want the cath anymore, is this time to move off the cath and to what do i move? Can anyone assist me with my options?

hi

my son is also a C4 rugby injury, he has a suprapubic cathetar, could this be an option for you