[Leedogg]

Hello, my name is Lee, and I have cerebral palsy with muscle spasticity. Back in June, before I had the pump implanted I was taking 50 mg bacofolen oral three times a day. I had scolsis so my spine is fused from my neck to almost tail bone. They implanted the cathedar in my neck. Everything was good at 250 mmg until October when I got tight again over a couple days. The doctor upped the baccoflen all the way up to 850 mmg. But the whole time i was still tight. Then my legs started getting looser again, back in January, sitting in my wheelchair. And now they are so weak I can't even move them. I went from walking 150 feet in my walker in October to barely moving my feet now. But yet I my arms and toes draw up on me when i lay down on my bed. (spasticity) And I'm back down to 350 mmg on the pump. And my legs are still extremely weak.

Could the cathedar be kinking in my neck?

This post has been edited by Leedogg: 05 March 2009 - 09:49 PM

[Vicki]

Lee,
My question is have you had the dosage reduced to compensate for the floppy arms and toes?

The reason I ask this question is because recently I had the dosage reduced by 5 mg just to feel some spacticity after 2004 when had the pump introduced into my body. Every time I have a very mild spasms now, I always think "hello old friend".

Cheerio
Vicki