Urostomy Information And Help

Urostomy Information And Help Last option is a Urostomy so I am looking for information Rate Topic:

#1 DJ1

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Posted 06 March 2009 - 01:15 PM

Hi folks

I posted this message HERE some time ago and I have just had a meeting with my Consultant who has advised me that the only option left is to have a Urostomy.

Has anyone in the UK had a Urostomy who would be willing to give me some of the answers I am looking for?
I do appreciate that there will be people from all over looking at this thread and I really appreciate comments but if you live in the UK and have had a Urostomy I would love to hear how it is going for you and how you manage with it.

Any thoughts would be gratefully appreciated

Regards

DJ1

#2 Interpol

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Posted 06 March 2009 - 08:38 PM

Not meaning to be nosey, I noticed you are from Scotland so did you see the urology consultant at the siu , southern general or some other hospital?

Once you respond i can tell you why i am asking.... cheers

#3 DJ1

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Posted 07 March 2009 - 02:05 PM

Southern General, through spinal unit

#4 Interpol

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Posted 07 March 2009 - 05:47 PM

DJ1, on Mar 7 2009, 02:05 PM, said:

Southern General, through spinal unit

just going out just now mate , but i will be online later tonight , i will send you a private messsage when i come back..... don't worry yourself too much about this , i know you must be feeling anxious , i read your previous posts and obviously you are unsure about all of this. ttyl ..

#5 DJ1

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Posted 18 May 2009 - 03:30 PM

I just thought I would bump this back up again to see if anyone in the UK has had a urostomy and whether or not it was good or bad.

I am looking to speak to someone who has a spinal cord injury, a urostomy and live in the UK.

I know it is a lot to ask but I would really like to speak to someone who meets the criteria mentioned above.

DJ1

#6 purple_faeries

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Posted 19 May 2009 - 08:44 AM

hiya

I belong to another support forum for people with bowel and bladder difficulties, and I know that one of the moderators on there has a colostomy and a urostomy, he doesn't have an SCI but he does have significant disabilities including problems with his back (I think).

Their website is

http://forum.bladderandbowelfoundation.org

and I know you will be welcome there, they also have tons of information about stuff on their main website.

Take care

Hannah

#7 DJ1

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Posted 19 May 2009 - 12:13 PM

Many thanks Hannah.

I will have a look and see what is there.

I really want to speak to someone with an SCI who has a urostomy because there is the possibility of some complications with the SCI so I am told hence my persistance with this issue.

Cheers

DJ1