Hi folks
I posted this message HERE some time ago and I have just had a meeting with my Consultant who has advised me that the only option left is to have a Urostomy.
Has anyone in the UK had a Urostomy who would be willing to give me some of the answers I am looking for?
I do appreciate that there will be people from all over looking at this thread and I really appreciate comments but if you live in the UK and have had a Urostomy I would love to hear how it is going for you and how you manage with it.
Any thoughts would be gratefully appreciated
Regards
DJ1
0
Urostomy Information And Help
Started by
DJ1
, Mar 06 2009 01:15 PM
6 replies to this topic
Top#2
Interpol
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Posted 06 March 2009 - 08:38 PM
Not meaning to be nosey, I noticed you are from Scotland so did you see the urology consultant at the siu , southern general or some other hospital?
Once you respond i can tell you why i am asking.... cheers
Once you respond i can tell you why i am asking.... cheers
#4
Interpol
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Posted 07 March 2009 - 05:47 PM
DJ1, on Mar 7 2009, 02:05 PM, said:
Southern General, through spinal unit
#5
DJ1
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Posted 18 May 2009 - 03:30 PM
I just thought I would bump this back up again to see if anyone in the UK has had a urostomy and whether or not it was good or bad.
I am looking to speak to someone who has a spinal cord injury, a urostomy and live in the UK.
I know it is a lot to ask but I would really like to speak to someone who meets the criteria mentioned above.
DJ1
I am looking to speak to someone who has a spinal cord injury, a urostomy and live in the UK.
I know it is a lot to ask but I would really like to speak to someone who meets the criteria mentioned above.
DJ1
#6
purple_faeries
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Posted 19 May 2009 - 08:44 AM
hiya 
I belong to another support forum for people with bowel and bladder difficulties, and I know that one of the moderators on there has a colostomy and a urostomy, he doesn't have an SCI but he does have significant disabilities including problems with his back (I think).
Their website is
http://forum.bladderandbowelfoundation.org
and I know you will be welcome there, they also have tons of information about stuff on their main website.
Take care
Hannah
I belong to another support forum for people with bowel and bladder difficulties, and I know that one of the moderators on there has a colostomy and a urostomy, he doesn't have an SCI but he does have significant disabilities including problems with his back (I think).
Their website is
http://forum.bladderandbowelfoundation.org
and I know you will be welcome there, they also have tons of information about stuff on their main website.
Take care
Hannah
#7
DJ1
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Posted 19 May 2009 - 12:13 PM
Many thanks Hannah.
I will have a look and see what is there.
I really want to speak to someone with an SCI who has a urostomy because there is the possibility of some complications with the SCI so I am told hence my persistance with this issue.
Cheers
DJ1
I will have a look and see what is there.
I really want to speak to someone with an SCI who has a urostomy because there is the possibility of some complications with the SCI so I am told hence my persistance with this issue.
Cheers
DJ1
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