3 replies to this topic

[Jorge]

Being paraplegic is hard enough, but having Ulcerative colitis and being paraplegic is worse! A few days ago I caught my little ones evil FLU virus, and well the lethargy, aches, and high fevers kicked in. Before I got sick my UC was under control, but now its all gone to hell. Im going #2 4-5 times a day! Along with feeling extremely crappy, still sore from the flu Im constantly in the bathroom. Sometimes I just want to start crying and when Im feeling horrible its easier for the tears to start flowing. With the possiblity of also having PSC(Primary sclerosing cholangitis) a liver disease associated with ulcerative colitis Ive been under some serious stress lately. Its like I have a time bomb inside of me, and I just have to live with it until it goes off. Having to go to work early every morning is also taking a toll on me, I can only use so many sick days and well Ive used them up for April now and well whether I feel good or bad I have to go in tomorrow. Im just venting on this forum. This is another reason I never do anything. Awhile ago I posted how I wanted to go to culinary school, but realistically how can I? With this disease it completely runs my life. The only solution is to have my colon and rectum removed and live with a poop bag, sheesh a poop bag, a pee bag...sigh....then theres the looming doom of PSC...no cure for that...just a liver transplant or I die...I find myself questioning myself, trying to deduce a reason as to why Im plagued in this lifetime, but then others are worse off than I am. What did I do to deserve this? Genetics and bad luck is all I come up with. Im not religious but I cant find myself blaming this on God, Im not that important. Im sorry Im just down, in pain and hurting right now.

[jackiev]

terribly outdated reply but how are things going with this?
I highly recommend a perscription dose probiotic vsl #3 ? have you tried anything like this?

[edlee]

Seems I missed your post, last year, too. Hope you are feeling better now, than then.
ed

[luis85]

hope ya doing better than things were at that time in your life! i sure kno how it is to be in rough situations like that.. you say your not religious but religion could very well be the savior of oneself, maybe you should consider that.