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Which, If Any, Meds Do You Take For Your spinal cord injury And How Much?




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47 replies to this topic

Poll: Meds (115 member(s) have cast votes)

Do you take meds for your spinal cord injury?

  1. Yes (103 votes [89.57%])

    Percentage of vote: 89.57%

  2. No (12 votes [10.43%])

    Percentage of vote: 10.43%

Which kind of meds/how much do you take for your spinal cord injury

  1. Pain meds, i.e., oxycontin, percocet, tylenol 3, etc. (57 votes [24.78%])

    Percentage of vote: 24.78%

  2. Nerve meds, i.e., lyrica, gabapentin, amitriptyline, etc. (59 votes [25.65%])

    Percentage of vote: 25.65%

  3. Muscle meds, i.e., baclofen, naproxen, etc. (57 votes [24.78%])

    Percentage of vote: 24.78%

  4. Other meds (55 votes [23.91%])

    Percentage of vote: 23.91%

  5. Non (2 votes [0.87%])

    Percentage of vote: 0.87%

Do you expect to remain on meds for your spinal cord injury lifelong?

  1. Yes (82 votes [70.09%])

    Percentage of vote: 70.09%

  2. No (32 votes [27.35%])

    Percentage of vote: 27.35%

  3. Unsure (3 votes [2.56%])

    Percentage of vote: 2.56%

Vote Guests cannot vote

#31 nomis

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Posted 02 May 2011 - 09:57 AM

Took nothing till a few years ago but age is exposing me. Now take 150mg trimethoprim and 25mg atenolol daily along with supplements Joint Food and fish oil.

"We are all different - but we share the same human spirit. Perhaps it's human nature that we adapt - and survive." - Stephen Hawking 2013


#32 pinkcloud

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Posted 04 May 2011 - 01:35 AM

[quote name='Beautiful' timestamp='1264218794' post='146841']
This is really interesting reading other peoples replies. I don't take any medication at all for SCI. Now it has me wondering if I should be? I know every case is different, but I see some incompletes are taking some too. Obviously if you don't need it there is no reason to take it, but still. It has me wondering!


Hi beautiful I only take medication because I am in horrific pain with new neurological deterioration. Before I was very anti-medicine, the longer time progressed the more I needed as pain got worse, this isnt so in all cases.

spasm
20mg baclofen 3x daily
2mg at night clonazepam
Botox injections

joint pain
Brutens patch 10mcg per hour
Diclofenac 50 mg 3 times daily
codeine 60mg 4 times a day
panadol 8 tablets a day

nerve pain
Amitriptylin 60 mg at night
Duloxetine 60mg 1 daily
Lidocaine patches as an when (3 a day)

bowels
2 senna a day and lactose

I am not 'off me face'....all them side effects disappeared... because i have so much pain, the 'la la land' effects are less, I am told by pharmasist. And as you can see, from times of me postings, neither do they knock me out to sleep anymore...pain awakes me too often.

and couldnt live literally without them - I would be dead from pain via shock/heart attack by now I think. This painrelief only helps me walk a little and lay down without too much crippling pain.

All pain is felt in the brain.
Thats why amputtees still feel pain when they have no limb there anymore.
Medication is there to 'distract the nerves and muscles from over-reacting to pain. The more pain we feel, the more the nerves and muscles over-react as it tries to send us warnings to stop activity/deal with injury to the area below sci level'.

Medicines are to the nerves, kind of like the equivalent of a good friend who takes a troubled loved one to the cinema, to distract their minds from the problem for a while, the problems still there, but it kind of dont seem to thought consuming for a while at least.

Some incompletes need medicine because some of us have the same or more pain due to sci than completes do.
Some incompletes or completes need no medicine because they feel no pain.

Some of me body parts have certain types of paralysis below injury - some parts dont. And now....some parts above injury too.

These medicines are not used to cure us, as such, they are there to help us with pain/nerve pain- and this help may help lead to more recovery.

This is my interpretation from my consultants anyway. Yes, do look into medicine if you hurt bad and want relief. If not, stay well clear. After all, we wouldnt take around the clock paracetamol for a headache that wasnt there.

I hope this helps beautiful - apologizes for long post the rest of you.

Edited by pinkcloud, 04 May 2011 - 01:37 AM.


#33 The Black Sheep

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Posted 04 May 2011 - 02:00 AM

I count my blessings every day that somehow I ended on the good end of the SCI stick, if there is such a thing. No pain below the chest, but I have pressure sensitivity, so I know when something is about to be sore. A few years ago I took baclofen 4x daily, 30mg doses, and was a wicked bitch. Scuze the language. I turned into a depressed monster and decided kicking the crap out of people was better than screaming at them. They agreed. That was about 4 years ago and I haven't considered it since.

Other than the normal multivitamins, zinc and vitamin B to wake my arse up in the morning, I take Tylenol for the occasional, non-SCI head aches. I wish I could give my sensations to some of you folks. I can't imagine that sorts of pain every single day.
3 doctors diagnosed me with hysterical paralysis (weee!), 1 diagnosed an incomplete T7, another T2 and the last (and most accurate) T5. Trampolines are BAD. Sleep is unpredictable. And never kiss strangers. Life has moved on.

#34 isobar

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Posted 04 May 2011 - 05:48 AM

Exercising on my Bowflex / riding Pedal - in - Place cycle , Lite Feet unit along with stretching , heated massager and good water intake/ diet control work better than any Meds for me. I do use Organic Frog's Powerhouse Formula which contains a host of vitamins, nutrients and many other things good for your overall health. I also take a capsule with calcium , magnesium , potassium and phosphorous after exercising which aids nerve function. I find that certain foods cause spasms to increase such as soda , bacon . soy sauce and some others.
LITUT = "Life Is The Ultimate Teacher"

#35 Zack

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Posted 03 December 2011 - 05:48 AM

20 mg Baclofen QID
10 mg Oxycodone QID
10mg Valium QID
Multiple vitamin Daily
~Kill them with Kindness~

#36 A trophy guy

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Posted 03 December 2011 - 07:15 AM

Not for my SCI, but I have to take these damned meds for my daily migraine prevention regimen. Ughh, I hate them soooo much. Just not quite as much as the migraines (which I would not wish on my worst enemy).

50mg Pamelor (before bed)
60mg Corgard (twice/day)
50mg Topamax (twice/day)
50mg Zoloft (twice/day)

Just in case anyone is not familiar, that's two different types of anti-depressants, a blood-pressure med and an anti-seizure medication. All of these medications are prescribed off-label, meaning they are prescribed by the doctor for reasons other than what the drug's manufacturer intended. I'm not being treated for depression, high-blood pressure or epilepsy. These meds have just been shown to be effective at preventing migraine as well. But the side effects suck!!

Blessed but Cursed


#37 Niceparalegs

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Posted 28 February 2012 - 06:49 PM

Almost 3 mos post op:
75mg Lyrica once daily (nerve pain)
20mg Lasix once daily (got swelling)
.5mg Attivan 3 times daily (anxiety)
100mg Tramadol prn (pain)
10mg Oxy prn(one or the other,never both)(pain)
5mg Vicodin prn(pain)
600mg Ibu prn(pain)
I hope to be off of most of them eventually.


#38 LeviM

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Posted 01 March 2012 - 08:21 AM

For SCI I'm on
baclofin 20 mg 3 times a day- spasms
septra low dose-uti preventative
dolcolax suppository every other day
colace- daily
Lovenox 80 mg x 2 daily
ditropan 10 mg x 2 daily.

Non Sci related meds.
Verapamil ER 180 x 2 daily
Zestril 10 mg x 2 daily
Protonix 40 mg x 2 daily
Albuteral via nebulizer q 6 hrs
Atrovent via nebulizer q 6 hrs

#39 harlton

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Posted 05 March 2012 - 05:29 PM

Hi

Injured 1990, Took nothing for first few years, excersize, water lots, supplements, Ammino Acids for body building, 5-htp and usually minerals and vitimins. Fourght a loosing battle, went thru most drugs available in the 90's, and most didn't work. I Always kept some excersize program going until recently.

This mix of meds has worked well for me

6000mg gabapentin 3 x /day
4mg diluadid x /day now 8mg
200mg celebrex 1/day
diazepam 10mg 2/day
temazepam 30mg at night
testosterone Since second surgery in 1992
Since heart problems Inderal 80mg x /day

I've rebelled numerous times and gone off my meds, figuring excersize and supplements will do it for me, but I just sieze up sooner or later. These days it's much sooner/ most of the time. Very high imflamation levels have done me a lot of harm, 3yrs ago all I took was gaba, 2mg of diluadid4x/day and the testosterone. A fine mess I'm in now Ollie. I Was always very fit, swam a mile a day +, weight lifting. Over did it and getting old sucks.

All the best Ian

#40 Cathelena

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Posted 21 March 2012 - 03:22 AM

Alot more than i would like to - baclofen, gabapentin, oxycontin, oxynorm, imipramine, hiprex, deloxatine and ascorbic acid.

#41 Wobbly

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Posted 22 April 2012 - 07:34 PM

Cymbalta 120mg nerve pain
Tramaol between 0 and 400mg a day depending what's going on pain
Celebrex for inlammation 200mg daily inflammation
Mulivitamin wth probiotics and iron
Natural endorphins from exercise


When life gives you lemons reach for the gin and tonic

#42 Quadroller7399

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Posted 12 May 2012 - 11:17 PM

I've been a high level quad for 12yrs. Fortunately I'm 100% independent. I live on my own. I cook,clean,do my own laundry, get dressed,wipe my own as and drive a S10 4x4. I have a medtronic pump wit a cocktail of Baclofen,Bupivicaine and Morphine. I love the pump because there is no side efects like there is from oral meds. I also take straight oxycodone for breakthrough pain. Mobic and Concerta. My doses are as follows.
1. Baclofen- 153.95 micrograms / Day
2. Morphine- 0.4926 mg / Day
3. Bupivicaine- 1,1392 mg / Day
4. Mobic- 15 mg / 1 a Day
5. Concerta- 18 mg / 1 a Day
6. Oxycodone- 15mg / 5 a Day
The pump is refilled every 90 days.

#43 NancyE

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Posted 01 June 2012 - 09:17 AM

Baclofen-10mgs 4x a day
Zaniflex 8mgs bedtime
OxyContin 20 mgs 2x a day


Coumadin-dosage varies( have had a PE)
Increase in diabetes drugs due to lack of exercise
Seroquel, klonapin ( inhibits my desire to choke idiots )
Reality continues to ruin my life. - Calvin and Hobbes

#44 ksheja

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Posted 18 January 2013 - 01:07 AM

Baclofen 20 mg 4 times a day for spasticity - I usually take it only once or twice a day because I think it makes me sleepy.  Even at full dose it does not help that much.  I have severe spasticity but I don't want a baclofen pump.  If there is a med to reduce spasms that does not make you sleepy, I'd like to know about it.  I want to retain some spasticity - I think my legs look better because of it.

 

Ditropan XL 10 mg 4 tablets once a day - can't live without it.  Better a dry mouth than wet pants.

 

I have neurogenic pain but I don't take anything for it, have tried Elavil and gabapentin but not that helpful.  Again, do not want to be sleepy.

 

Tylenol occasionally for headache or muscle ache, not definitely related to SCI though. 

 

I take Prozac.  SCI is a contributing factor but I can't say it's the only one. 

 

Calcium.

 

vitamin D for a vitamin D deficiency.

 

I am supposed to be on medicine for osteoporosis once a week but I often forget to take it. 

 

Iron - I am sometimes anemic.



#45 bantughost

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Posted 16 February 2013 - 08:15 PM

Baclofen 15mg 3/day.

#46 JerseyBoy

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Posted 17 February 2013 - 07:37 AM

Mostly crack cocaine
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Either you choose to be blessed to be cursed or cursed to be blessed. I choose to be blessed to be cursed. 

#47 Crepe

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Posted 22 July 2013 - 01:18 AM

This poll is flawed.  If you check that you do not take any medications you have to answer the next question which asks what medications you take.  There is no place for "none".  The next asks how long, etc.  When you finish it says you have to check all the boxes for your vote to count.  How do you answer which ones you take when you take none?  It would be interesting to know how many actually do take none.



#48 Apparelyzed

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Posted 22 July 2013 - 08:43 AM

Thanks Crepe,

 

I've now edited the poll.

 

Simon :)


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Spinal Cord Injury & Cauda Equina Syndrome Support

This website is a way for those with spinal cord injuries and cauda equina syndrome to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.