79 replies to this topic

[MTNBOY]

HI EVERYONE...MY NAME IS STEVE...I HAD A SCI 12 YRS AGO..AT T11 T12 INCOMPLETE..I WALK WITH A WALKER OR CRUTCHES...AND WORKOUT 5X A WEEK..I REALLY WANT TO SPEAK TO ANYONE WITH A CHRONIC SCI WHO HAS GOTTEN STEM CELLS...GOOD OR BAD..I KNOW 1 GIRL WHO WENT TO THE DOMINICAN AND GOT THEM ...SHE WAS ALMOST A COMPLETE SCI..NOW SHE CAN WALK..NOT 100% BUT FAR BETTER THAN THE WHEELCHAIR..PLEASE HELP..I AM COMMITTED AND SERIOUS..I WILL GIVE YOU MY # AND E-MAIL... THANKS AGAIN!! STEVE

[Bevan-L]

MTNBOY, on May 4 2009, 08:24 AM, said:

....SHE WAS ALMOST A COMPLETE

Hi Steve... so was she complete or incomplete?

[MTNBOY]

Bevan-L, on May 3 2009, 07:42 PM, said:

MTNBOY, on May 4 2009, 08:24 AM, said:

....SHE WAS ALMOST A COMPLETE

Hi Steve... so was she complete or incomplete?

hi bevan-l she was almost a complete and was 2yrs post injury and wheelchair bound

[City Girl]

I'd also be interested in any information on stem cells, muscle development and regeneration. I'm attending a Centre For Inquiry film screening called "Potent Biology: Stem Cells, Cloning and Regeneration" in June. It's a discussion by Douglas A. Melton, PhD who is a founding member of the Harvard Stem Cell Institute; and Nadia Rosenthal, PhD who is a leader in stem cell research and regeneration research and Director of the European Molecular Biology Laboratory.

I've heard of a few cases of stem cell treatment but they always seem to be from third world countries and I am wholly skeptical of their validity.

I am closing in on two years post-injury, T12 incomplete. I've had very good recovery but I still can't walk without assistance. I need a cane or nordic walking poles or my husband's arm. I am at the gym 20 hours/week and still am not seeing the results I'd like. The connect between the femoral and sciatic nerves and my left leg in very poor. Consequently, that leg still has a fair bit of flaccid muscle (atrophy).

I just finished a month-long treatment of femoral and sciatic 'nerve flossing' and will see how this month unfolds in terms of response but I'm not holding my breath.

I see my surgeon in September and will inquire about the progress of stem cell treatment in North America but if anyone has any current information, I'd appreciate hearing about it.

Also, MTNBOY, you're either 'complete' (the spinal cord is completely severed yielding no motor function/no sensory function) or, you're 'incomplete' (the spinal cord is damaged and there may be some sensation and/or motor function).

[Pierre21]

Hi I am T12 L1 injury non completed I had airplain crash last year, well I am in Costa Rica right know getting ready for stem cell treament, my doctor told me that the stem cell treament is not successful for spinal cord injury right now, but I can tell you the pilot was with me did it and he is better than me he is stronger no pain we had same injury so he been on the tv telling the world that stem cell help, the cost of stem cell from $30,000 to $35,000 the $30,000 it give you 5 injection and the $35,000 give 7 injection. Know if you like anybody on the site like to come here to get all the imformation and see some result they can contact me, I have 4 bedroom appartment in San Jose I will charge a little as $30 a night take to the Hospital where they do it and you can ask all kind of the question.
The ticket from the state or Canada run $300 to $400 depend how early u do your reservation, so if anybody are interested please contact me so I can help. Like here I have people to help you they will wash your closed cook for you give shower for extra and they clean up for you try it for a week let me know bedore two weeks so I can pick you from the airport and make the tour for you at the hospital for stem cell.

Thank you guys I wish one day will be a complete medical solution for spinal cord injury.


Pierre.

[stemcellblogger]

Wayne State Study Shows Adult Stem Cell Grafts Help Paralyzed
via http://media.wayne.e...rafts-increased

A new study by a Wayne State University School of Medicine researcher details the outcome of adult stem cell grafts in spinal cord injuries and how the procedure led to increased mobility and quality of life for patients...

...The injuries in the study patients were 18 months to 15 years old. The patients, ages 19 to 37, had no use of their legs before the treatment. One paraplegic treated almost three years after the injury now ambulates with two crutches and knee braces. Ten other patients ambulate with physical assistance and walkers (with and without braces). One 31-year-old male tetriplegic patient uses a walker without the help of knee braces or physical assistance. When the stem cell transplant and scar removal process was combined with an advanced form of rehabilitative training that employs brain-initiated weight-bearing movement, 13 patients improved in the standard measures used to assess functional independence and walking capabilities.

“We concluded that olfactory mucosal autograft is feasible, relatively safe and possibly beneficial in people with chronic spinal cord injury when combined with post-operative rehabilitation,” Peduzzi-Nelson said. “There are clear indications of efficacy based on neurological, functional and electrophysiological testing that justify moving forward to a larger, controlled clinical trial. ...

Admin Note: Edited to show source article

[love&hate]

heya

I really think we need to be patient. At this point most of the stem cells treatments in western world are performed as clinical trials and they never guarantee anything.

I believe it is smart to wait even few more years to get the treatment that is well tested, trialed so we can benefit to the fullest extent possible. Stem cell treatment along with few others are

really promising but going to 3rd world countries and spending ~30k $ is rather silly. Dont get me wrong i understand that some people really want to get better asap and will do whatever it

takes but in my opinion it will only drain you from money,energy and maybe even will close your way to future advanced,tested stem cell treatment.

We need to realize that there are 1000s of treatments performed in this 3rd world clinics every year and from all this treatments only few end up with some sort of improvement.

Obviously we are going to read/hear only about the successful stories simply because its a part of their marketing. Its a business, very profitable one.

We are not going to hear about those hundreds of dissapointed people coming back with no improvements whatsoever.

That being said, this is only my opinion on this subject. I know that the breakthrough has been made and its a matter of time before some legitimate western facilities will start to offer some revolutionary stem cell treatments not only for SCI but for all kinds of diseases ect.

I think the question is when not if.

Good luck to you guys. What ever you will decide keep us posted.

Regards,Bart.

Edited by love&hate, 24 October 2009 - 07:46 PM.

[AngelHeart]

MTNBOY, on May 3 2009, 07:24 PM, said:

HI EVERYONE...MY NAME IS STEVE...I HAD A SCI 12 YRS AGO..AT T11 T12 INCOMPLETE..I WALK WITH A WALKER OR CRUTCHES...AND WORKOUT 5X A WEEK..I REALLY WANT TO SPEAK TO ANYONE WITH A CHRONIC SCI WHO HAS GOTTEN STEM CELLS...GOOD OR BAD..I KNOW 1 GIRL WHO WENT TO THE DOMINICAN AND GOT THEM ...SHE WAS ALMOST A COMPLETE SCI..NOW SHE CAN WALK..NOT 100% BUT FAR BETTER THAN THE WHEELCHAIR..PLEASE HELP..I AM COMMITTED AND SERIOUS..I WILL GIVE YOU MY # AND E-MAIL... THANKS AGAIN!! STEVE

HI,I'M HERE TRYING TO FIND HELP ALSO. I HAVE A C-5C-6 SPINAL CORD INJURY,INCOMPLETE,1995. I WAS TOTALLY PARALYZED FROM MY NECK DOWN,WITH NO PROGNOSIS,I CAN STAND NOW WITH MINIMAL ASSISTANCE AND HAVE FEELING EVERYWHERE. I'M TRYING DESPERATELY TO GET A STEM CELL TREATMENT. I HAVE TO RAISE 35,000 TO GO TO CHINA. PLEASE CONTACT ME IF YOU HAVE ANY IDEAS AS TO HOW I MIGHT GENERATE THESE FUNDS? arizona_311@yahoo.com
THANKS,ANGELHEART

Attached Thumbnails

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[dangerousdave]

Hi, my names Dave
Went to E-dog for some injections of guey red syrup
Quess what - I can walk and run and lift heavey weights after 25 shots costing zowee bucks
Contact Ratty for further lies and induendo

Get real guys

After all these stemcell research in various countries, not just the USA
There is still no evidence of it working
There is proof that it might work one day - but that aint today
When it does happen it is unlikely to be of benefit to old injuries

Sorry E-dog and ratty
Thought using you would give credability to my reply

Edited by dangerousdave, 07 April 2010 - 09:53 AM.

[Ben]

Thats good you got something going. I'm a complete so I've been the same since my thing happened. I think there would be more research done if you could keep the govt, and religion out of it. But then you'd also have many clones of sheep etc.... So I guess some regulation is good. Sort of........

[mcferguson]

Ben, on Apr 7 2010, 11:17 AM, said:

Thats good you got something going. I'm a complete so I've been the same since my thing happened. I think there would be more research done if you could keep the govt, and religion out of it. But then you'd also have many clones of sheep etc.... So I guess some regulation is good. Sort of........

There would be more research if there was more money in the field of SCI research and testing. Need to do some clinical trials to see if the stuff that works on rats will work on humans also. Clinical trials take some serious cash. Not everyone will work just to be the Medical Jesus, causing the lame to walk.

[KeepTheFaith]

The stem cell treatments offered in the Dominican by Medra.com is ran by Willaim C Rader and is a scam company that offers fetal stem cell treatment to desperate people for $30,000. Don't do it! Do your research and be careful.

On another note, Reeve-Irvine Research Center in California is getting ready to start Phase I, FDA approved, embryonic stem cell treatments this August on humans with acute injuries. This will hopefully lead to treatments for chronic injuries. Many, like Dr. Wise Young, think a cure is possible within the next 5-7 years if the funding holds out.

[ShatteredShield]

Think I speak for everyone here when I say F*%$ 5 to 7 years!!!!!!!!!

[victorsci]

hi to all.
I'm waiting for response from XCELL CENTER (sent them MRI via their representative), looked throughout lots of different info - reviews are different, but I still have a hope that this will help me to improve my life.

[KeepTheFaith]

There has been evidence of tumors from defective and untested stem cell treatments.

[Tetracyclone]

KeepTheFaith, on Apr 7 2010, 02:00 PM, said:

The stem cell treatments offered in the Dominican by Medra.com is ran by Willaim C Rader and is a scam company that offers fetal stem cell treatment to desperate people for $30,000. Don't do it! Do your research and be careful.

On another note, Reeve-Irvine Research Center in California is getting ready to start Phase I, FDA approved, embryonic stem cell treatments this August on humans with acute injuries. This will hopefully lead to treatments for chronic injuries. Many, like Dr. Wise Young, think a cure is possible within the next 5-7 years if the funding holds out.

Good to get updates on specific clinics. Thanks.

[FlyPelicanFly]

An interesting documentary about X-Cell Centre:

http://www.rte.ie/ne...753071,null,230

Save your reddies for a real treatment - or if you are feeling flush - contribute to Clinical Trial Networks. There is SCINetUSA and Spinal Research UK now have a Translational Science Fund.

Keep an eye out for Dr Youngs UCB + Lithium trials (SCINetUSA and SCINetCHina) as well as Dr Stephen Davies' work with Decorin which is making some progress.

[MDK]

Kevin had stem cells in China & his physical condition has improved quite a lot.
He was almost 5 years post injury.
Now stem cells (autologus ) are available in Thailand so perhaps he'll have them again as is not as expensive .

Mioara

Edited by MDK, 16 May 2010 - 06:54 AM.

[victorsci]

MDK, on May 15 2010, 02:05 PM, said:

Kevin had stem cells in China & his physical condition has improved quite a lot.
He was almost 5 years post injury.
Now stem cells (autologus ) are available in Thailand so perhaps he'll have them again as is not as expensive .

Mioara

Miora, can you tell what clinic you're talking about, and what was the price of operation? thanks.

[t5 incomplete]

City Girl, on May 5 2009, 03:31 PM, said:

I'd also be interested in any information on stem cells, muscle development and regeneration. I'm attending a Centre For Inquiry film screening called "Potent Biology: Stem Cells, Cloning and Regeneration" in June. It's a discussion by Douglas A. Melton, PhD who is a founding member of the Harvard Stem Cell Institute; and Nadia Rosenthal, PhD who is a leader in stem cell research and regeneration research and Director of the European Molecular Biology Laboratory.

I've heard of a few cases of stem cell treatment but they always seem to be from third world countries and I am wholly skeptical of their validity.

I am closing in on two years post-injury, T12 incomplete. I've had very good recovery but I still can't walk without assistance. I need a cane or nordic walking poles or my husband's arm. I am at the gym 20 hours/week and still am not seeing the results I'd like. The connect between the femoral and sciatic nerves and my left leg in very poor. Consequently, that leg still has a fair bit of flaccid muscle (atrophy).

I just finished a month-long treatment of femoral and sciatic 'nerve flossing' and will see how this month unfolds in terms of response but I'm not holding my breath.

I see my surgeon in September and will inquire about the progress of stem cell treatment in North America but if anyone has any current information, I'd appreciate hearing about it.

Also, MTNBOY, you're either 'complete' (the spinal cord is completely severed yielding no motor function/no sensory function) or, you're 'incomplete' (the spinal cord is damaged and there may be some sensation and/or motor function).

hi my name is aaron horsley i was hit by a truck on my dirt bike then the driver ran and drug me 200 yards before running me over breaking my back in october of 2007 you can put my name in google and see the news report but anyways my back was broken at t5 they had to remove my t5 virtabra because it was in pieces and with the miracle that i lived my spinal cord stayed intact so i was incomplete and i remember the doctors telling me your never going to walk again but i am stubern and there is no way in hell i am staying in a chair for the rest of my life lol i am a christen and i have became even closer to God since all of this for the last 3 years i prayed every day and night for gGod to let me walk again and he is answering my prayers we got in touch with a stem cell doctor from new mexico and she was very excited when i got in touch with her but it was going to cost 30 thousand dollars for three stem cell injections plus the hospital bill since it would be done in mexico then i lost all hope again because where am i going to come up with 30 thousand dollars but 4 or 5 months ago the doctor called us back and between privet doners and the doctor her self they raised me a 100 thousand dollars to pay for the stem cells we are all very excited to start actualy i think the doctore is almost as excited as me i am waiting on the victums fund to approve me because i need them to pay the hospital bill so its any day now i am going to be the first parapligic this doctor has ever put stem cells in these stem cells are so promising dont give up people stay strong we will get the heck out of these chairs melt them down to a bat then hit the doctors that told us we will never walk over the head lol i am 19 its been almost 3 years since the accident also very promising a few months ago i was laying in bed and for three hours strait i tried to move my toes then i felt them like release and i could move then very slightly but i could feel my whole body it wasent how it was before but it was deffinently feeling but once i woke up in the morning it was gone what i belived happend was my brain was sending the signals down so much that they found a way to get throu and it keept that path untill i fell asleep and the brain forgot where the conection was but im not sad that it left because that just shows me there is a path throu and with the injections it will only be a matter of time dont give up and dont let these libral doctors tell you what you can and cant do they told me i would never ride again but i have a quad that i ride and resently thanks to sponcers and loving people i can actually ride my two wheeled dirt bike with help getting on taking off and stopping if any one wants information on the doctor i am going to or if you need any tips on anything i have figured out how to do just about everything on my own my email is kawirideramh@yahoo.com

[Tetracyclone]

Simon

smells like

[greybeard]

Tetracyclone, on May 20 2010, 02:19 PM, said:

Simon

smells like

You think so? More like horses doofers to me lol.

[pistol_pete]

I turned blue and nearly passed out reading that.
Not one single fullstop, comma, nothing.
Phew!!!

[Tetracyclone]

pistol_pete, on May 20 2010, 10:15 AM, said:

I turned blue and nearly passed out reading that.
Not one single fullstop, comma, nothing.
Phew!!!

You have to account for the sketchy English skills of the busy spammers in Nigeria or wherever trying to reel in clients for somebody.

[Apparelyzed]

Hi,

Actually, Aaron's registration looks legit.

Further details of Aaron can be found here: http://www.hesperias...sley-aaron.html

Simon

[slyd]

Makes me think of a recent response from Illinois Boy . . .
QUOTE (Illinois Boy @ Apr 11 2010, 07:25 PM)
Yes, we will walk again.........


Right after this...........
When Pigs fly !

Edited by slyd, 20 May 2010 - 06:25 PM.

[qbounce]

Well, he hasn't gotten the injections yet. Either way, I'm not holding my breath for a change.

And Aaron, I'd advise not to melt your chair down any time soon. It's better to have wasted others donated money over your own, so I'll give you that.

[dangerousdave]

All you idiots out there thinkin of stem cells
Just remember this fact
The chord is a direct access route to the brain
So when the chord is damaged the damaged area is immeadeatly shut down and sealed with scar tissue to stop any chance of a brain infection, or we would all have died a long time ago
So heres the point
How does chord regeneration from so called stem cells attach itself to the damaged chord
IT CANT

[t5 incomplete]

dangerousdave, on May 21 2010, 07:44 AM, said:

All you idiots out there thinkin of stem cells
Just remember this fact
The chord is a direct access route to the brain
So when the chord is damaged the damaged area is immeadeatly shut down and sealed with scar tissue to stop any chance of a brain infection, or we would all have died a long time ago
So heres the point
How does chord regeneration from so called stem cells attach itself to the damaged chord
IT CANT

it depends on where the injury is and how sever i have had feeling every now and then that means there is a conection somewhere it deppends how much scar tissue has formed and i hardly doubt its a scam because im not paying a thing thay are putting all the money to pay for the injections and its hard to be sceptical when thay have had progress already its not a mirrical im not going to roll in the haspital then walk after the injections its going to still be alot of hard work training the brain how to do everything again thay already have proven that if placed in a spinal cord of a animal or a human the cells do become new stem cells its your call im going for it im hopefull and i was kidding about melting down my chair if i was able to walk again God willing i would donate it

slyd, on May 20 2010, 11:24 AM, said:

Makes me think of a recent response from Illinois Boy . . .
QUOTE (Illinois Boy @ Apr 11 2010, 07:25 PM)
Yes, we will walk again.........


Right after this...........
When Pigs fly !

well thats your oppinion if you like your wheel chair then be my guest and be a sceptic you can stay in your chair buy im not 3 years is plenty enuf

[mellowgator]

t-5,

please post again after your procedure. i'm interested to hear if it helps you regain function. be careful in mexico. i've heard some horror stories. don't let anyone near you unless you see them wash their hands.

i know a girl who went to india for stem cell treatments and regained bladder function. she's a para who had been injured 15 or so years.


good luck,

mellowgator