9 replies to this topic

[dakoda]

i have been nursing a pressure wound on my right ischial for two years now, having had surgery to remove necrotic tissue about a year and a half ago. it closed about a month ago only to open again. i have a quantum 600 chair w/ a aquila alternate pressure cushion. during the day i recline almost all the way back. my shoulders won't let me lay on my side in bed, and if i stay in bed too long my bottom burns. i had a culture done a few days ago, so i'm waiting on lab results. i'm sure there's at least a bacterial infection. we have been treating it w/ panafil (debridement paste), and prisma (anti-microbial quaze), whatever is needed on a given day. also, my top leans to the left, so i'm not sure if that's why the right wound was much worse than the left. at this point, the wound doctor is not much help (does things and tells us things we already do or know). it gets so close to healing, and this time it's getting a little worse than better. i hang in my open sling on hoyer lift (sling doesn't touch wound, i guess you would call it a toileting sling), but is that really pressure relief? w/o getting pressure mapping done, how far back does the chair need to tilt (seat-tilt---halfway, all the way?) to acheive enough pressure relief to heal. i try to get enough protein and calories to heal, but not so much to keep stomach from getting bigger. any ideas? i'm tired of having my life ran by a wound. thanks for any input.

[Irenec]

dakoda, on May 10 2009, 04:33 AM, said:

i have been nursing a pressure wound on my right ischial for two years now, having had surgery to remove necrotic tissue about a year and a half ago. it closed about a month ago only to open again. i have a quantum 600 chair w/ a aquila alternate pressure cushion. during the day i recline almost all the way back. my shoulders won't let me lay on my side in bed, and if i stay in bed too long my bottom burns. i had a culture done a few days ago, so i'm waiting on lab results. i'm sure there's at least a bacterial infection. we have been treating it w/ panafil (debridement paste), and prisma (anti-microbial quaze), whatever is needed on a given day. also, my top leans to the left, so i'm not sure if that's why the right wound was much worse than the left. at this point, the wound doctor is not much help (does things and tells us things we already do or know). it gets so close to healing, and this time it's getting a little worse than better. i hang in my open sling on hoyer lift (sling doesn't touch wound, i guess you would call it a toileting sling), but is that really pressure relief? w/o getting pressure mapping done, how far back does the chair need to tilt (seat-tilt---halfway, all the way?) to acheive enough pressure relief to heal. i try to get enough protein and calories to heal, but not so much to keep stomach from getting bigger. any ideas? i'm tired of having my life ran by a wound. thanks for any input.

Hi
Look at the ISCH-DISH made by SPAN AMERICA

[dakoda]

Irenec, on May 10 2009, 10:40 AM, said:

dakoda, on May 10 2009, 04:33 AM, said:

i have been nursing a pressure wound on my right ischial for two years now, having had surgery to remove necrotic tissue about a year and a half ago. it closed about a month ago only to open again. i have a quantum 600 chair w/ a aquila alternate pressure cushion. during the day i recline almost all the way back. my shoulders won't let me lay on my side in bed, and if i stay in bed too long my bottom burns. i had a culture done a few days ago, so i'm waiting on lab results. i'm sure there's at least a bacterial infection. we have been treating it w/ panafil (debridement paste), and prisma (anti-microbial quaze), whatever is needed on a given day. also, my top leans to the left, so i'm not sure if that's why the right wound was much worse than the left. at this point, the wound doctor is not much help (does things and tells us things we already do or know). it gets so close to healing, and this time it's getting a little worse than better. i hang in my open sling on hoyer lift (sling doesn't touch wound, i guess you would call it a toileting sling), but is that really pressure relief? w/o getting pressure mapping done, how far back does the chair need to tilt (seat-tilt---halfway, all the way?) to acheive enough pressure relief to heal. i try to get enough protein and calories to heal, but not so much to keep stomach from getting bigger. any ideas? i'm tired of having my life ran by a wound. thanks for any input.

Hi
Look at the ISCH-DISH made by SPAN AMERICA

thank you, good website

[leafybug01]

u might need to get u a air-loss bed that will really help on releasing the pressure while u are in bed.

[Wheelz 16]

dakoda, on May 10 2009, 05:33 AM, said:

i have been nursing a pressure wound on my right ischial for two years now, having had surgery to remove necrotic tissue about a year and a half ago. it closed about a month ago only to open again. i have a quantum 600 chair w/ a aquila alternate pressure cushion. during the day i recline almost all the way back. my shoulders won't let me lay on my side in bed, and if i stay in bed too long my bottom burns. i had a culture done a few days ago, so i'm waiting on lab results. i'm sure there's at least a bacterial infection. we have been treating it w/ panafil (debridement paste), and prisma (anti-microbial quaze), whatever is needed on a given day. also, my top leans to the left, so i'm not sure if that's why the right wound was much worse than the left. at this point, the wound doctor is not much help (does things and tells us things we already do or know). it gets so close to healing, and this time it's getting a little worse than better. i hang in my open sling on hoyer lift (sling doesn't touch wound, i guess you would call it a toileting sling), but is that really pressure relief? w/o getting pressure mapping done, how far back does the chair need to tilt (seat-tilt---halfway, all the way?) to acheive enough pressure relief to heal. i try to get enough protein and calories to heal, but not so much to keep stomach from getting bigger. any ideas? i'm tired of having my life ran by a wound. thanks for any input.

I suggest you use hi profile Roho Quadtro cushion. I've healed wounds sitting on them.

[Irenec]

My husband use to keep getting really bad red marks on his left ischial.If he hadnt have sorted it ,it would have been a sore(he hooks on the right side of his chair, to balance] He tried nearly every cushion. The isch-dish is the only one that worked.We found it on the internet.It is made in the U.S. You have to measure you ischial span in order to get the right size.
He paid for the first ones himself. Now wheelchair servces pay for them.

I cannot emphasize how life changing this cushion was for him.
GOOD_LUCK

Edited by Irenec, 16 May 2009 - 05:10 PM.

[dakoda]

Irenec, on May 16 2009, 12:04 PM, said:

My husband use to keep getting really bad red marks on his left ischial.If he hadnt have sorted it ,it would have been a sore(he hooks on the right side of his chair, to balance] He tried nearly every cushion. The isch-dish is the only one that worked.We found it on the internet.It is made in the U.S. You have to measure you ischial span in order to get the right size.
He paid for the first ones himself. Now wheelchair servces pay for them.

I cannot emphasize how life changing this cushion was for him.
GOOD_LUCK

thank you very much. i spoke w/ span america the other day about this cushion. it will be worth a try.

[Irenec]

dakoda, on May 18 2009, 03:10 PM, said:

Irenec, on May 16 2009, 12:04 PM, said:

My husband use to keep getting really bad red marks on his left ischial.If he hadnt have sorted it ,it would have been a sore(he hooks on the right side of his chair, to balance] He tried nearly every cushion. The isch-dish is the only one that worked.We found it on the internet.It is made in the U.S. You have to measure you ischial span in order to get the right size.
He paid for the first ones himself. Now wheelchair servces pay for them.

I cannot emphasize how life changing this cushion was for him.
GOOD_LUCK

thank you very much. i spoke w/ span america the other day about this cushion. it will be worth a try.

Hi, Did you try the ISCH DISH CUSHION?
irenec

Edited by Irenec, 22 December 2009 - 05:28 PM.

[SuzinNYC]

MY BF has been dealing with a pressure sore that tunneled on his left ischial since September. We changed hospital systems and went to a wound care specialist that I knew through my Dad's care. The biggest thing that Doc stressed today was staying off of it and out of his chair. He has a Roho cushion....and the doc still wants him in bed....which is restricting and frustrating. Roger complains about shoulder soreness, so they ordered him a bed that has sand in it and the air blows the sand around to relieve the upper body discomfort. They told us today that we should plan on him being in bed for 3-6 months, since the first wound care team screwed up so badly.He has a wound-vac from KCI, and that may speed up the healing process....but the wound care doc really stressed staying off his bum, or it would never heal. I am making a new wedge for the bed using high density foam for the bottom part and memory foam for the top, so he can reposition his shoulders somewhat....I'll let you know if that helped as far as keeping him off of it in bed and relieving the shoulder discomfort.

I can't stress how important it is that you find the BEST wound care doc you can find.....there are alot of hacks out there.

Edited by SuzinNYC, 29 January 2010 - 10:09 AM.

[kiwiquad]

Without knowing what stage your sore is at, you should be on bedrest, period.. it's a pressure sore for god's sake!!, Perhaps change your doc if you are getting up.. he is supplying you with inadequate info. I found applying a cinnamon/honey paste to be the best medicine for repair when I had your exact prob.
I have a Roho, on a tilt & space Quickee. I think these awesome wheelchairs can be potentially lethal if you're tilting too often or you're wrongly positioned even if your skin is merely pink. But until your wound is healed 100%, & is back to it's normal colour, STAY OFF IT...you have no choise or you will have on going problems with it.
Good luck.