Quadriplegic & Paraplegic Spinal Cord Injuries: Whats The Truth And Hope For Ever Walking - Quadriplegic & Paraplegic Spinal Cord Injuries

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#1 User is offline   geek1 

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Posted 15 July 2009 - 06:20 AM

Do you good people out there feel the same as I do with my paralysis?
Sometimes ,I am depressed about my disability ,look rejected ,appear as a failure a non-achiever ,totally losing all my confidence.It eats away ,leaves me in unpredictable moods and just reduces me to a directionless non-confidence individual wondering if I can ever make it in life.
Does anyone know any future about the stem cells ? Do we have people that have walked as direct result of this s-c-research?What hopes do we have ? Sometimes ,I feel like I am bulldozing life just to live ,like I am forcing my way for something that probably God had written off.Im confused ,help me understand whats left of me ,help me to see whats the future of my condition is going to be,can i live like this for the next decade ,,,,,,,,help folks before I lose my mind.My heroes /heroines are those who have fought paralysis for decades,,,,Im scared ,im in anxiety ,confusion ,just a total idiot.I need to start growing faith ,hope and confidence.I have tried the bible but no much help.HELP pls help.
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#2 User is offline   wheeliebear75 

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Posted 15 July 2009 - 07:01 AM

Well I've been disabled now since 1990.....and there are many who make that amount of time look like nothing.....we're talking 30 & 40 yrs. of it. Nobody can make it "OK" for you.......this isn't something that will happen overnight or even in a matter of months.......it takes years even for those of us who do "come to terms" with it. Many people do find comfort in religion.....others feel let down by it......I guess that is up to the individual. Personally I've just learned to take each day as it comes & to take pride in things that to many may seem quite trivial.........I folded a basket of clothes. :blink: No this life is not as "easy" as being an AB.......but it can still be a life that brings moments of great happiness & joy.....it's just mixed in with a bit more crap than it is for most. :happy:
*Enjoy every sunset, but be grateful for every dawn.*
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*I USE a wheelchair, that does NOT make ME a wheelchair!*
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#3 User is offline   brython2 

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Posted 15 July 2009 - 01:29 PM

View Postgeek1, on Jul 15 2009, 07:20 AM, said:

Do you good people out there feel the same as I do with my paralysis?
Sometimes ,I am depressed about my disability ,look rejected ,appear as a failure a non-achiever ,totally losing all my confidence.It eats away ,leaves me in unpredictable moods and just reduces me to a directionless non-confidence individual wondering if I can ever make it in life.


Yes I get these feelings, they are natural reactions to a devastating injury. Somedays I indulge in them, but most days I don't have time, things to do etc
"With time*" even though they are still lurking somewhere inside you, their power over you can decrease, you just get tired of the same old bad feelings and realise you have to disconnet yourself from the negatives, even though at times it's difficult.

I've read it so many times on websites like this one, sometimes you have to dig deep inside yourself and find the strength from somewhere, to smile, to say hello to a stranger in the street, be extra kind to a loved one or family, you'll get feedback and it will build confidence in yourself and people won't see you as a "failure" but as an induvidual facing life's difficulties with a positive attitude. Negativity can push people away from you, make them feel uneasy, even if you try to bring yourself out of it for a small period of the day for example, it's a start, you'll feel better in yourself and hopefully your confidence will grow. :blink:

Even though lots of the jargon can be complicated, I've been following spinal research since my own accident. Things could have been going faster, but at least there are some scientists, labs and Dr's out there working on the case, we're such a minority that they don't get the best funding for their work, but they are working on it and some trials are starting to happen ( check out CareCure) nobody can put a timescale on things unfortunatley.

Personally, when I feel down I check out some of burt hardings or Mooji's vids on youtube, it's not everyones cup of tea, but sometimes they help (me). :happy:

Take care!
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#4 User is offline   tspence 

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Posted 15 July 2009 - 04:46 PM

View Postgeek1, on Jul 15 2009, 07:20 AM, said:

Do you good people out there feel the same as I do with my paralysis?
Sometimes ,I am depressed about my disability ,look rejected ,appear as a failure a non-achiever ,totally losing all my confidence.It eats away ,leaves me in unpredictable moods and just reduces me to a directionless non-confidence individual wondering if I can ever make it in life.
Does anyone know any future about the stem cells ? Do we have people that have walked as direct result of this s-c-research?What hopes do we have ? Sometimes ,I feel like I am bulldozing life just to live ,like I am forcing my way for something that probably God had written off.Im confused ,help me understand whats left of me ,help me to see whats the future of my condition is going to be,can i live like this for the next decade ,,,,,,,,help folks before I lose my mind.My heroes /heroines are those who have fought paralysis for decades,,,,Im scared ,im in anxiety ,confusion ,just a total idiot.I need to start growing faith ,hope and confidence.I have tried the bible but no much help.HELP pls help.

Hey Geek1,Just wanted to say that Iknow what you are going through.I dont know how much you keep up with others on this site,but there are those who have shared this same time of despare ...I for one woke up this morning having a very tough time until I read your post.Listen I just wanted to sayplease keep your chin up and dont give up you have my and others support I am very sure of that.There are great testimonies of those on here that have made it through,a very special thanks to all. Terry
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#5 User is offline   Yasko 

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Posted 15 July 2009 - 05:23 PM

Geek dude, please don't give up on yourself without fight! Each of us have strength hidden inside of our brain! You got to find it for yourself by organizing your life so it has purpose! What do you like to do? Playing games, singing, reading books, watching movies, building computers, wheelchair basketball, girls :dancegirl: ? You got to find something to keep your brain occupied! Just please don't do nothing! :dancegirl:

This post has been edited by Yasko: 15 July 2009 - 05:24 PM

"Think for yourselves and let others enjoy the privilege to do so, too." - Voltaire
"If people are good only because they fear punishment, and hope for a reward, then we are a sorry lot indeed." - Albert Einstein
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#6 User is offline   rue2you 

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Posted 15 July 2009 - 05:43 PM

Attitude is the only thing that we are able to change. I decided that I could sit around and feel sorry for myself, or I could just decided to make the best out of this new life. I have a hubby and 5 wonderful children, my selfishness for myself would not help me or them or my paralysis so I have decided not to go there. When I do start feeling the blues and ready to give in to my own self-pity party, I always look around for someone else worse off than me and trust me - there are plenty of others even on here who are. This helps me to quit looking at what I can't do and be thankful for what I can.

Another thing, is that the Bible will not work nor will religion unless you have a personal relationship with Jesus Christ. My relationship is not what I can do for God, but what He did for me when He gave His son to die for me on the cross. After all Jesus went through for me, I am glad to live my life for Him. I know that what is going on in my life with being paralyzed is not about "what I am being punished for" but in what He is working in my life that I may help others to live for Him. This gives you a renewed purpose to find good out of this and to help others instead of being focused on my own life.

Take one day at a time, we can't live our tomorrows - we can only live our today's, live it to the fullest and thank God for the life and opportunity that you will have to help others.
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#7 User is offline   E-DOG 

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Posted 15 July 2009 - 09:24 PM

Yo geekski!

Don't know how long you been busted up. Sounds like maybe not that long.
You should consider yerself lucky though. Your injury is the same as mine, T4!

Called the king of all SCinjuries T4 is a high para. Not quite a quad but close enough to make sit ups and group sex really difficult, but not impossible.
The real fun begins in the morning when you just open your eyes and remember the incredible difficulties ahead just getting out of bed, taking a crap and a shower, then somehow getting yourself dressed and ready for a day of wheeling around like some robotic idiot looking for something, anything, to occupy your time with so you don't dwell on the fact that a few hours later your gonna have to undo what ya did in the morning just to get back into bed to rest up to do the same thing tomorrow.

Tell me that ain't the coolest thing going.
Hey, you can drink cheap generic gin with tepid tap water throughout the day to try and forget yer cares and worries, but you'll probably end up puking all over creation, wallowing in the stench of despair, warm chunks of last nights 99 cent store TV dinner all stuck to your face making things even worse than they appear to be already.

OR!

Let's try this.
Buck up. Hold yer head high, chin up, stiff upper lip, hip, hip an' all that.
Do like the Brits do. Purchase a better quality Gin, take smaller sips and realize the only thing wrong with you is yer body doesn't function the way it used to. Unless you had a traumatic head injury along with the spinal cord, your brain should work about as well as it used to.

99.9 percent of what and who you are is within the brain housing group, situated on top of the neck, above the shoulders and well away from the legendary lesion of hell and destruction.

You can still think. Read. Write. Pet the occasional dog, diddle yer ol' lady and do damage to a pizza pie. Drink beer, do crafts. I scrap book like a mo-fo AND collect earwax from celebrities around the world!

Your head is a bad neighborhood. Stay out of it. Pretend it's a crack dealer infested ghetto, cops runnin' around, helicopters overhead. No place you need to be right now.

Screw what you can't do. Do what you can do. Be of service to those around you. Yours is but a flesh wound, I'm sure you've had worse. But there are those who are well and truly dinged up to beat all hell. They need your experience strength and hope. Without it, there's a good chance they won't survive much longer. Forget YOU for a while. Pour yourself into THEM for a bit. You'll forget about you, it'll help them, and that will help you.

This is my brain, any questions?
E-dog
By the way, jeezuz WILL help you, but he charges a lot and doesn't guarantee shit.

This post has been edited by E-DOG: 15 July 2009 - 09:30 PM

when it absolutely, positively, has to be destroyed overnight, call the Marines.

I will nevah, EVAH take a pinch from a greasy muddahf*@kah like you!

How 'bout if I spell it out for ya. D-I-L-L-I-G-A-F
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#8 User is offline   edlee 

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Posted 15 July 2009 - 09:40 PM

I hesitated to post on this thread,,but decided that rubbing people the wrong way never stopped me before,, so why should it now.

You sound like someone turning over that one year mark,, at least that was when I went thru the level of uncertainty, doubt, that you seem to be in now. Some of us go thru it earlier,,, some later,, but it's part of the healing process.

If you have gone thru a reasonably good rehab program without any recovery in the first year or so,, you aren't likey,, statistically,, to change that. Don't get me wrong,, you can and should strive to get stronger,, more independent,, but you aren't likely to walk again. The therapies,, stem cells and others,, won't be ready for general use by one other than acute cases ( first fourteen days, or so) for many years,,, maybe never. Accepting the cards you are dealt is the only way to get in the game.

You are at your starting point,, you need to think about where you would like to go,, then figure out how to get there. Goals are important,, long term or short term. Plan to do one thing tomorrow,, doesn't matter what it is,,, make the bed,, get the mail,, take out the trash,, rob a bank... Figure out how to do it,, then get busy.

The more you do, the more you know you can do. Keeping busy not only takes you to where you want to be,, but makes the time getting there a lot easier to bear.

As for faith,,, it's a wonderful thing to be able to trust that there is someone out there who will make things right in the end..... Truly a wonderful thing.... I envy you that feeling.
ed
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#9 User is offline   rue2you 

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Posted 15 July 2009 - 10:08 PM

Dear Geek 1,
I don't want you to think that I was being callous in any way to your feelings. We all have had feelings and will continue to and sorting through them is part of the process.
It is a wonder to me that people can cuss, talk about crude things and talk about uselessly wasting your life with liquor and nobody ever says anything. But when someone openly tells you what has helped them - my faith in Jesus Christ - then Jesus gets slammed.
Slamming me is fine but let's leave God out of the slamfest.
I truly hope that you find peace.
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#10 User is offline   Illinois Boy 

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Post icon  Posted 15 July 2009 - 10:10 PM

After reading the DOG's post..... I'm ready to blow my f*@king brains out, as soon as I finish painting my toe nails.....

We'll walk again, not in my life time.... I'm waiting for Jesus to hand deliver my Publishers Clearing House prize money....

Jim
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#11 User is offline   Meadowlarkmark 

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Posted 15 July 2009 - 11:26 PM

Dig in enjoy life--there ain't no magic bullet so stop waiting and start living. Its a pretty good life all in all...
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#12 User is offline   StillFingers 

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Posted 16 July 2009 - 02:23 AM

Geek1,

You are in a dark, nasty, ugly moment in your life, yet you have the strength to reach out for, ask for help. Not knowing much about you it's not easy to give you a road map to hope, joy, success. However, I can assure you, you are not alone in your struggle, unhappiness or your feelings of despair. Most, if not all of us on this site, have been, are or will experience the same gut wrenching confusion you now feel.

After 31 years living in an SCI body, the poem at the end of this reply tore it's way thru my soul for all to see. It's a part of me hidden away most of the time as I've gone about rebuilding my life, taking control of each moment as best I can. I haven't ignored these feeling, but have not fully confronted them...I'm not sure I will ever completely reconcile my fears.

However, after finishing the poem I discovered something wonderful. Despite the happiness, joy, positive attitude/actions I dedicate myself to each day, there still is confusion, uncertainty, negativity and ugliness within me. This is a good thing, I'm not a robot, I'm human, I have feelings...

The SCI dance sucks, but more often then not, this non-walking life is pretty damn good. My feelings NOW, 31 years post SCI, my not give you much comfort, but do know you are not alone, and life can get better. I wont repeat all the wonderful advise so many have given/shared in their replies; they are all good and right on point. But I will share one of many actions I practice in daily life and why I do so...

LIVE NOW...the past is gone, the future is not here yet...all we have is this moment...ugly, just surviving or absolutely beautiful.

Is there a "CURE" for our "CONDITION", I don't know, I hope so. But, if there is a cure, you and those that need to walk to be happy, can get in line first, wait for your turn. While you wait about, I'm going to be enjoying life, what, where, when and with whom I can. And, I'll be right by your side, cheering you on as you walk away from this life of struggle...

Be well Geek1, I know things look hopeless/impossible, I hope you find a way out of the darkness that consumes your life at this moment. Feel free to send me a message if you need a hand, some advice or just someone to feel, listen to your pain.

Jerry B)

Darkness my friend?

Years rush steady by
open, blind eyes
Shared with a few
often without clue

In this darkness
there's laughter I hear
Happiness, joy and love
Anger, sadness and rage
life lived in a cage

Seeking stillness
my legs do not know
Is this darkness
friend or foe

No matter where or when or why
or how much joy I feel inside
In this darkness
still I cry

Bitching and moaning
about constant pain
Within your cloak
it breathes
steady refrain

Where am I going
still tangled in knots
Without you my friend
I'm often quite lost

Dreams so violently
for a young one shattered
Do my ramblings
really even matter

Friends I've met
along this path
Clear the darkness
with kind words and laughs

Caring and loving
out of your darkness
I've found another
like no other

I do not know
what your arms might hold
Alone in this darkness
I must be bold

This post has been edited by StillFingers: 16 July 2009 - 02:41 AM

Only after we have lost everything, are we free to do anything.
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#13 User is offline   Kev-O 

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Posted 16 July 2009 - 03:04 AM

The way i look at a cure is if you dont get your hopes up they cant be crushed. Dont worry about it just live your life. If your sad because you feel like your missing out on life because you cant walk just think about how much life your missing out on sitting there feeling sorry for yourself. Just get out an make the best of a shitty situation.
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#14 User is offline   Abbey22 

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Posted 16 July 2009 - 04:11 AM

The first year after my accident I was so focused on figuring out how to adjust to my new life and learning how to do things in a different way, there wasn't really a chance to fully comprehend the fact that I was now in a wheelchair. It seemed like it was just a temporary setback or something.

But now...a couple years later, I've pretty much figured this whole being in a wheelchair thing and it kind of sinks in more that I'm in a wheelchair and I might be for the rest of my life. Which is not always an easy thing to digest. I think everyone has moments where they feel like the whole world is against them and there's no point in attempting to face life. And that's okay-as long as they're moments. You can't stay there. You just have to tell yourself that life is meant to be lived-and even though there might be a long list of things you can't do, the list of things you can do is longer. I think having a wheelchair is sometimes more a mental disability than a physical one. A person's mindset is everything-you gotta keep a positive outlook and find good things even when it seems like there aren't any.
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#15 User is offline   Bob C 

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Posted 16 July 2009 - 04:08 PM

Hey, Geek,

We all have our "downtimes." A cervical injury at 16 in 1954 left me without hope and praying for the grim reaper to come get me asap. But then things started to happen, mostly accidentally. I got a little rehab, and in the process,I got exposed to leather tooling. When I got back to the rather isolated family farm, and to fight boredom I started making tooled leather handbags, belts, and wallets, and actudally earned a little money selling them. At other times, I went outside and just wheeled places on the farm to see if I could get there. Over the next 5 years some other accidental happenings that got me in college. Nearly 12 years after my injury,I was working fulltime, doing ehings I never imagined. I am now 71 and retired and hold the title, "Distinguished Professor Emeritus" from a medical university. also, I have my 44th wedding anniversary coming up. Post injury life has taken a lot of twists and turns, both good and bad. But most were not predicted.

Keep yourself useful (I still wheel up the street and pick up trash a couple times a week), be proud, and keep moving. From my perspective, God best helps those who help themselves. There is a lot of living to do even if a cure does not come tomorrow.
Bob C
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#16 User is offline   geek1 

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Posted 17 July 2009 - 10:30 PM

Brython2 ,wheeliebear75,tspence,yasko,rue2you, e-dog ,edlee, meadowlarkmark, stillfingers ,kev-o,abbey22,bob c,Ilinois boy and other unmentioned contributers to this site ,,,,You guys are great ,THANK YOU.Everything you wrote helped me lots ,gave me time to think forward and positively.Its true I am a recent paralysis statistic and maybe a lot is reluctance to accept and believe my new condition.
Please add more if you have to help me and others .GOD bless you all
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#17 User is offline   rue2you 

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Posted 18 July 2009 - 12:05 AM

You might have already found this website, but if not, checl it out. It is really good.
http://www.wheelchairlife.net
"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
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#18 User is offline   Geezer34 

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Posted 18 July 2009 - 12:07 AM

View PostE-DOG, on Jul 15 2009, 10:24 PM, said:

Yo geekski!

Don't know how long you been busted up. Sounds like maybe not that long.
You should consider yerself lucky though. Your injury is the same as mine, T4!

Called the king of all SCinjuries T4 is a high para. Not quite a quad but close enough to make sit ups and group sex really difficult, but not impossible.
The real fun begins in the morning when you just open your eyes and remember the incredible difficulties ahead just getting out of bed, taking a crap and a shower, then somehow getting yourself dressed and ready for a day of wheeling around like some robotic idiot looking for something, anything, to occupy your time with so you don't dwell on the fact that a few hours later your gonna have to undo what ya did in the morning just to get back into bed to rest up to do the same thing tomorrow.

Tell me that ain't the coolest thing going.
Hey, you can drink cheap generic gin with tepid tap water throughout the day to try and forget yer cares and worries, but you'll probably end up puking all over creation, wallowing in the stench of despair, warm chunks of last nights 99 cent store TV dinner all stuck to your face making things even worse than they appear to be already.

OR!

Let's try this.
Buck up. Hold yer head high, chin up, stiff upper lip, hip, hip an' all that.
Do like the Brits do. Purchase a better quality Gin, take smaller sips and realize the only thing wrong with you is yer body doesn't function the way it used to. Unless you had a traumatic head injury along with the spinal cord, your brain should work about as well as it used to.

99.9 percent of what and who you are is within the brain housing group, situated on top of the neck, above the shoulders and well away from the legendary lesion of hell and destruction.

You can still think. Read. Write. Pet the occasional dog, diddle yer ol' lady and do damage to a pizza pie. Drink beer, do crafts. I scrap book like a mo-fo AND collect earwax from celebrities around the world!

Your head is a bad neighborhood. Stay out of it. Pretend it's a crack dealer infested ghetto, cops runnin' around, helicopters overhead. No place you need to be right now.

Screw what you can't do. Do what you can do. Be of service to those around you. Yours is but a flesh wound, I'm sure you've had worse. But there are those who are well and truly dinged up to beat all hell. They need your experience strength and hope. Without it, there's a good chance they won't survive much longer. Forget YOU for a while. Pour yourself into THEM for a bit. You'll forget about you, it'll help them, and that will help you.

This is my brain, any questions?
E-dog
By the way, jeezuz WILL help you, but he charges a lot and doesn't guarantee shit.


f*@king toright E-dog brilliant!!

I used to think shit i wont be cool again, but for us handling this is being cool!!!

The truth and hope for ever walking again though i think were shagged.

Geezer!!
Geezer34
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#19 User is offline   Bnagore141 

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Posted 18 July 2009 - 12:32 AM

I have a ? for t3 - t5 sci. After your accident did you ever get any feeling back at all in time? If so, how long?
And does your butt start hurting after you have been sitting in the wheelchair for a while?
My husband just got injured in March 09. So this is all new and have so many ?
Would appreciate any input. Thank you
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#20 User is offline   geek1 

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Posted 19 July 2009 - 11:43 PM

Every person responds differently to treatment and after sci accident.I did not get any feeling after the surgery ,the hospital stay and even after leaving the hosp.Sometimes I get some limited ,distant feelings {im t4-5} below my waist but a lot is just spasm.The pain after sitting a longtime in a chair was/is very common with me.Itry to lift myself up to release pressure every so often like 45-1 hr but again sometimes I cant hold it any longer and just want to retire in bed.Occassionally I take pain medicine but as we all know ,drugs are not the best solution to every situation.I find sitting in a chair without moving a lot bringing more pain than if Im wheeling around.
Sorry for the unfortunate accident but time is a healer and teacher ,there are lots of things that both will learn to deal with.It takes a long time to adjust but it will happen ,just give him the maximum support he duly deserves.
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#21 User is offline   dexter 

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Posted 20 July 2009 - 11:18 PM

You're in a good position for a lot of possibilities down the road. There are tons of jobs and places you can take yourself still as an SCI. I have no hand, Arm, or any movement at all below my shoulders. I have to rely on caregivers to take care of me all day and night just to make it through life. But Recently, I just moved out for the first time and started work since my accident two years ago on July 11th. Boy it sucked for me at the beginning. And I still have my tough times too but there are many opportunities out there. It takes time to find what works for you but there is something that has your name on it right now.

I still deal with a lot of shit, but hey, everyone else in this situation does too. The Internet is amazing and gives you so many opportunities to learn, research and even keep your self entertained. Use it, it is a great resource for you. I am a huge Obama Supporter and I to say good for him. At least he has thought about people in our situation. No other president has. Stem cell research is in effect and it just might be amazing if they find out of a cure for us. Either way it gives you a little hope it's something to learn and follow about. In the meantime keep in contact with your close friends. You'll be amazed how many people are willing to support you. And you get a lot of compliments from people who aren't in your situation.

We both have a long ways to go in life. You'll find exactly where you need to be along the way.



Dex

Now, here's a couple of cool videos to entertain you In the meantime. Youtube is great!

http://www.youtube.c...h?v=-Psfn6iOfS8

http://www.youtube.c...h?v=d4MvE8WgAxQ


This post has been edited by dexter: 21 July 2009 - 12:36 AM

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#22 User is offline   fatdave 

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Posted 23 July 2009 - 07:40 PM

religion...I will abstain from comment.

I can say to the original poster, life is a bitch anyway...then you mix in a traumatic injury and it seems to make everything even worse. I stewed on what I couldn't do (and still have a problem with this when I am having a rough day).

I gave up in November, felt like I couldn't do it, my life had fallen apart and my body was fighting me to do the most simple things. Meet us in chat, contact me on messenger get out!

the more you get out, the easier it will be to adapt. Yes, I know the feeling of people staring at you and the anxiety that comes along with it. Power through it, there are also meds to help with that.

There are many people here that will offer kind words and support, but you have to do the work.
Never explain--your friends do not need it and your enemies will not believe you anyway.
Elbert Hubbard
US author (1856 - 1915)
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#23 User is offline   Jax 

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Posted 27 July 2009 - 05:49 AM

View Postgeek1, on Jul 15 2009, 01:20 AM, said:

Do you good people out there feel the same as I do with my paralysis?
Sometimes ,I am depressed about my disability ,look rejected ,appear as a failure a non-achiever ,totally losing all my confidence.It eats away ,leaves me in unpredictable moods and just reduces me to a directionless non-confidence individual wondering if I can ever make it in life.
Does anyone know any future about the stem cells ? Do we have people that have walked as direct result of this s-c-research?What hopes do we have ? Sometimes ,I feel like I am bulldozing life just to live ,like I am forcing my way for something that probably God had written off.Im confused ,help me understand whats left of me ,help me to see whats the future of my condition is going to be,can i live like this for the next decade ,,,,,,,,help folks before I lose my mind.My heroes /heroines are those who have fought paralysis for decades,,,,Im scared ,im in anxiety ,confusion ,just a total idiot.I need to start growing faith ,hope and confidence.I have tried the bible but no much help.HELP pls help.


Geek, I'm gonna completely not read anything that has been said in reply thus far in order to hopefully give you an unbiased (I said HOPEFULLY remember) response.

First, we all get depressed at times, regardless of injury, race, religion, or hair color (or lack of hair...). It's part of our being. It's emotional response to stimuli in our environments. The first issue here is to understand that it happens to all of us at times.

The second is to know that if it goes on too long (month or more from what I've read), you need to seek help/advice (which you have done here). Now I know this is going to sound like a bunch of crap, but the next step is to get professional help. I know. I have done it. It was well before my injury, ironically. I saw a doctor here in TX. He's not your typical shrink though. He's actually pretty cool, which is rare in the field of psych. He helped me get straightened out. It took some time and some work, but it happened.

Another issue is motivation. You see, I had no motivation to do anything really. Now, I know that it's different post-injury, but you have to find something you like to do and figure out how to do it. I know that sounds oversimplified, but that's the basic idea. For example, if you watch Ricky James or Andy Cohn, you can see some crazy stuff done by guys in chairs. Brianna Walker even danced for Ludacris...She's a para.

You have to somewhere, somehow find something to motivate you. For me, it's proving people wrong. I love to prove to people that I can do stuff as a para that they say I can't do. I like to make people go "Holy crap!! How did he do that?!!" I have fun with it. You just have to try new stuff and maybe even retry some of the old stuff. It can take a while but it can be done. If you don't believe me, watch Murderball and pay CLOSE attention to Kieth and his story. Listen to the words he says when he gets home.

Also, I have something to say about faith. (I'm not talking about religion, as I can see where that conversation will lead without even reading other responses.) Faith is the confident belief or trust in the truth or trustworthiness of a person, idea, or thing. You have to trust in the idea that there is something better for you. I know that you don't believe it right now, but have you really looked? Really? You can never know what is possible until you try.

You have to be willing to fail a thousand times just to have one success. Life is just one big trial-and-error experiment. As long as there's even a possibility of finding something better, why not look for it? What have you got to lose by looking? Do you really think that things worth working for will just come for free? Maybe even use the depression as motivation. You say you don't like being depressed, so get out and try to make/find/do something worth being happy/proud about. Quite honestly, if you have a means of getting out of the house (wheelchairs do count), you have the means to look for something that you can do that makes you happy/proud. If you have the means to do something, and do nothing anyway, then you are only keeping yourself down. I know it sounds harsh, but it's the truth. I had to face it, too. One of my best friends dad came out to my house when I lived in the country and told me that once. Made a big difference for me, as I hope it will for you.

Best wishes,

JAX
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#24 User is offline   islandboii 

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Posted 01 August 2009 - 07:11 AM

View Postgeek1, on Jul 14 2009, 11:20 PM, said:

Do you good people out there feel the same as I do with my paralysis?
Sometimes ,I am depressed about my disability ,look rejected ,appear as a failure a non-achiever ,totally losing all my confidence.It eats away ,leaves me in unpredictable moods and just reduces me to a directionless non-confidence individual wondering if I can ever make it in life.
Does anyone know any future about the stem cells ? Do we have people that have walked as direct result of this s-c-research?What hopes do we have ? Sometimes ,I feel like I am bulldozing life just to live ,like I am forcing my way for something that probably God had written off.Im confused ,help me understand whats left of me ,help me to see whats the future of my condition is going to be,can i live like this for the next decade ,,,,,,,,help folks before I lose my mind.My heroes /heroines are those who have fought paralysis for decades,,,,Im scared ,im in anxiety ,confusion ,just a total idiot.I need to start growing faith ,hope and confidence.I have tried the bible but no much help.HELP pls help.

____________________________________________________________________

Hey Bro,

Look, I understand what you are feeling. I have been there many times. I have only been injured in about two and a half years.
Some mornings when I wake up, I feel very powerless and depressed. I am from a very strict culture, Samoan. Everyday when I am at home, I feel very discouraged that
I can't help with the chores around the house. Some days, I would just be very quiet, but one thing is very true; I am still living.
Look, if you are a christian, why not accept it. I too rejected it, but why can't we accept what has happened.
Put this in mind that everything happens for a reason, you may not realize but others around you do. its a matter of faith and pride.
Do you have faith that you will walk again? Do you have pride in yourself and those who are among you?
It's all on you, I am going to walk. I am a complete C5 and C6. But, I know for a fact that I will walk again. Why? Because I have so many family and friends
that believe I can walk again. But, to be honest, anything can change with a little faith. I have faith in you bro!!!!
But, that doesn't mean that you won't depressed. You will, those days will come, but I want you to keep your head up and be grateful. Because even as we speak there are still people out there who still havn't gotten their freedom. I am thankful that I can still live for another day. But, hey keep that in mind, there are worse
case scenarios occurring throughout the world. Think about the ongoing war, think about those children who aren't granted the privileged
of walking safely down the street.


But hey, no more what ifs or what you can't do. I'll tell you that everything is possible with a little faith. You must enjoy this life, if you are still depressed,
do something about it!!! No more depression, go out and hang out with friends. If you possibly don't have friends, then make friends.
All that takes is a little faith bro!!!!


God Bless and Stay up....


Never say No...............


P3ACE...





CHOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOOOOOOOOOO!@!!!!!!!!!!!!!!!!!!! :badmood:
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#25 User is offline   Apparelyzed 

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Posted 05 August 2009 - 08:40 AM

This topic has now been split.

Please post replies regarding Religion and SCI in the Religion and coping with SCI thread.

Thankyou.

Simon
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#26 User is offline   mcferguson 

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Posted 07 August 2009 - 04:48 PM

For Bnagor141, I have not had any sensation below my injury at all (8 mos post). I would think that your husband having sensation is a good thing, at least he can feel when to shift his weight.

This post has been edited by mcferguson: 07 August 2009 - 04:53 PM

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#27 User is offline   SnoFl 

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Posted 07 August 2009 - 05:55 PM

Hello Geek1,
Wish I could give you a hug. :licklips:

(C5 through T1 bone fusions, C5-6 metal plate; L5-S1 Spondylolethesis Grade 2-3 here) I remember such a dark time for me that each day was just a blur. Keep trying...don't give up. My journey with paralysis began in 1992 (my arms)... I haven't walked since 2002... And, yesterday, after a month of intense PT here in my home, I walked with my leg brace and my ole trust walker about 10 feet. It seemed surreal to me--like I was watching someone else do it. As for me, it is a miracle. Just a couple of months ago, I was having trouble standing. The strength I have right now may not last long; I hope it does--but for now, I cry out of complete joy for the moment. BTW, I have little to no feeling in my legs.

Please Rest... have some fun and laughter. Maybe you are tired right now from just trying so hard.
DON'T GIVE UP... and if you need an ear, I am here for you.

-Barb

When birds chirp...my soul sings.
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