[Tetsuo]

Hello. My names is Tetsuo, and I reside in Tokyo, Japan. I have been using the Baclofen pump for the past year. It is hard to get information about the pump here in Japan, and am hoping for some advice.

I am c4 complete and cannot use both my arms and legs. The Baclofen pump initially helped with the pain, but I have been experiencing pain again for about half a year. The last time I increased my dose (from 237mcg to 245mcg) the pain disappeared for about a week but soon returned.

To describe the pain, it "feels" in my head, like I am having spasms in my legs even though they are not actually having any spasms. (Phantom spasms?)
I also feel a lot of pain due to stiffness in my right arm.

If anyone has any similar experiences or advice, I would really appreciate a response -- either here or via direct message.

Thanks for your help!

[Hikkakaru]

Hi Tetsuo,

Baclofen isn't usually effective in treating neuro(phantom)pain. Perhaps you could talk to your doctor about something for that reason as well like Lyrica or Gabapentin(Neurotin)?

P.S. how is using a wheelchair in Japan? I've wanted to visit.