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8 Year Foot Sore Won't Go Away




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17 replies to this topic

#1 ptstingray

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Posted 24 February 2006 - 08:02 PM

Hi and thanks for reading my post...whatever comments would be very helpful.

I am complete T12 with foot sores for the last 8 years. I have been told to live with them by some nurses and doctors. I have had dermatologists, burn nurses and sci doctors suggest applications from Bag-Balm to second skin to Collagen from a pig's ear. My feet don't rub against my shoes, but I do have atrophy in my legs. I have had ultra sound done and circulation is fine. Had x-rays and bone scan and they are fine too. It's like my body has forgotten to heal this part of me.

Attached is a pic of my toe looking pretty bad. I also get pitted edema.

Hope you can help!

Attached Thumbnails

  • DSC00892.JPG


#2 Joed

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Posted 25 February 2006 - 02:41 AM

Oh my, that doesn't make sense, does it? I don't know if this helps, but the first thing that springs to my mind is seeing an infectious disease specialist.(?) After eight years of this, you'd think they'd be able to find a definite cause...what are your doctors saying about this? Do they think it's pressure related at all?

Do these spots show up alternately/randomly? Or is it usually in the same places each time?
* * * * * * * * *

Female. Incomplete para following a cord stroke in '03. Spina-bifida, severe scoliosis. 18 surgeries total...five spine-related: Three fusions w/hardware, two tethered cord releases.

#3 mttb14

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Posted 25 February 2006 - 07:48 AM

Have you tried lavender oil or tea tree oil, these can be applied neat on cuts and sores and are anticeptic, anti bacterial and help heal skin. Also the liquid straight out of an aloe vera plant is brilliant, you just snap of the tip of a leave and rub it on.

When my husband had his operation on C5 and C6 the are cut was always going to be on show to all and sundrie and as he is bald so he shaves all his hair off he was paranoid at the thought of having a very noticable scar. A friend of mine who has trained in aromatherapy told me to rub neat lavender straight onto the scar tissue area a few times a day as soon as the dressing was removed and it worked. He has a very slight scar which is about 4 or 5 inches long but it is so neat and well healed it really is not very noticable.

These two oils cannot do you any harm, lavender also helps heal sun burn and burns very quickly.

Hope this helps.
Wife of an incomplete SCI - level C5/6 - accident lifting boards above his head in work caused popping sensation in his neck and this was the result. He uses a wheelchair part of the time.

Never say never, and definately do not quit, its usually worth the trying in the end.

#4 *rollerbaby84*

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Posted 05 March 2006 - 09:50 PM

I had a problem with my foot as well that went on well over a year. I was even seeing a podiatrist once a week. I bumped in to someone one day that told me about Granulex. Its a spray on and is used in the nursing home setting alot. Believe or not after over a year of problems, my foot was healed in a little under 3 weeks and the problem hasn't returned. Maybe this will work for you too? Good Luck. (44 yr. old., T12 L1 female parapplegic since MVA 2/18/84)

#5 Simon

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Posted 07 March 2006 - 04:20 PM

Dont put neat tea tree on it, its an open sore and will burn! My wifes a qualified Aromatologist you have to use essential oils carefully. You can use TTree on superficial cuts or your skin but not an open sore like that.

Okay. I have something similar in my left 2nd toe. Its healing slowly. Use Manuka Honey UMF 18+ its utterly brilliant. Just put some on a plaster or gauge and change it 12 hourly, it'll debride (though theres no dead skin there), and heal it and protect from infection too even mrsa. But it a Holland and Barrett its kept behind the counters so you have to ask for it. About £10 a tube and you wont need that much looking at the size of the sore.
Mine was caused (almost certainly) by my support socks, I have little red areas appearing on top of other toes too. Do you use them?
Hope this hepls
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#6 ptstingray

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Posted 12 March 2006 - 05:47 PM

Thanks everyone for your replies.

I have recieved some emails from nurses who both told me to get the honey from New Zealand. I have done this and am applying twice a day. It seems to be the same for now, but looks like it is trying to get better...Very hard to judge!

It would be great to see a website which shows the stages of healing for a sore! If anyone knows one, that'd be great.

I am also going to see another dermatologist in a couple weeks. I don't think it is pressure related because I buy my shoes 2 sizes too big. Although the sore is in a vulnerable area.

Thanks again for the feedback, and I hope to have better news next time,
P

#7 Simon

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Posted 13 March 2006 - 05:38 PM

Can send you my wifes dissertation on healing sores with essential oils if you want, it has stages of healing there plus picks of 2 case studies, let me know, its in pdf format.
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#8 ptstingray

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Posted 13 March 2006 - 07:30 PM

Hi Simon,

That would be great to send me the information in .pdf. Anything would be helpful.

I look forward to it

P

#9 Jilly

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Posted 13 March 2006 - 08:11 PM

Hi there....Im from New Zealand....Wonderful place...we have some marvelous bees!! I even have a couple of Tea Tree (Manuka) bushes in the garden! :(

Want me to send you some honey? :wheelchair:

Sorry......just being silly!....but seriously this is good stuff that helps all sorts of ailments. :(

#10 Simon

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Posted 14 March 2006 - 05:42 PM

Did u get the dissertation?

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#11 Simon

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Posted 28 March 2006 - 10:38 AM

Hi
We're trying something slightly different on my sore like yours, its working better and faster so far, if it continues I'll post what we've done.
Simon

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#12 loolie

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Posted 29 March 2006 - 07:40 AM

You do not have to live with that been there done that......... That burns me up....... I had drop foot and when i used my braces it made me walk funny went to those good ol docs to have a surgery and the cast ate a hole in the front and back of my foot had gang green bout lost my foot had the hole for a year which led to a butt sore bc i couldnt get up and walk had a butt sore which went to the bone for three years docs said live with it we cant do anything I about died....... You dont listem to that... Whover said go to a infectious disease doc was right that is were i finally ended up going after wound specialist and dingy surgeons around here then He sent me out of all people to a Plastic surgon who cleaned the wound up from the bone up sowed it up said if you had came to me three years ago you would not have gone through this....... So you get yourself to that infectious disease doc get the infection out they may give you a pic line as I had then go to a plastic surgon bc they can fix it regular docs will tell you plastic surgons cant but they can.......... They will surprize you..... Dont live by docs words they go by books and records show them You have the right to live........

#13 lll3288

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Posted 18 July 2006 - 08:28 PM

What did you end up finding out about your foot sore? I had a sore like that and it led to bone infection, and amputation of the toe. I now have another sore and would like to avoid another surgery? Did you find out what caused it? What treatment did you seek?

#14 Groked

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Posted 12 August 2006 - 03:13 AM

Hello all! I am new, have tried to read most of the posts, but may be doing a re pete act here and there.

This (wounds) is the topic I am most interested in (along side the health insurance, disability and medicare issues)!

I am apologizing in advance for the LONG dissertation that is coming.

My dearest has had various wounds during the 18 years since his accident, which left him a t-3 pp. Various pressure wounds have led to bone disease and the eventual amputation of one whole leg and the partial amputation of the other, as well as the removal of bone in his pelvis and lower back. What tissue is left is scarred and/or thin/crepey. There are great wounds on in the groin and backside. He has seen wound care doctors and surgeons and has been told basically "either lay on your stomach and get rid of the sores or get up into your chair and live with the ones that develop".

I met this wonderful guy a year ago, plan to marry him (well, what will have to pass for marriage, given the amazing restrictions placed upon him to maintain his disability/insurance) and have really few issues dealing with the spc, the colostomy, the lack of legs or of feeling from the chest down. I can live with the sores too, but if there is something I can do to help heal him, to stop the oozing, dying tissue from enlarging even, it would be so great. I prefer to do his wound care if I can; to become educated in both conventional and non-conventional techniques because while I know my knowlege is less than the docs, my desire, determination and love is much greater.

I am going to look up the manuka honey and granex spray right away, but like the toe, these things linger on and on and on. A skin graph excercise worked - with the 6 weeks of tummy time it required and the staggering hospital bill, but as soon as he got back up into the chair - wound time again - the same ones - one that has been 13 years! So, If this newbie may be so bold as to propose that we work together to relate what doesn't work and to find the best combination of solutions (because seldom is it just one thing), we could all benefit!

I can tell you, from my front, that I have tried a few things. Firstly, the wound care doc said "it is most important to prevent further infection of tissues, therefore apply a triple antibiotic ointment to the wound, at a thickness of 1/4" daily and cover". Well, while it may pevent spreading from some infection, it doesn't seem to promote healing (kind of like hydrogen peroxide, maybe?), nor does it prevent further degradation from pressure (ie, sitting). The Silver Sulfadiazine I used on him (also prescribed by the doc), seemed to heal, but then we'd have set-backs from pressure or the amazing oozing that the wound experiences.....makes the tissue so wet and weakens it. I had a friend strongly recommend this wound care stuff called Derma Wound..... I bought one jar, it was not covered by medicare as far as I can tell and was pricey (for me)... it had an element of debrading to it, and the wound appeared as if it was more raw - which could be good......., but the jar of thick, brown-sugarlike stuff only lasted a week on his size wounds and I was nervous about the new raw appearance. I've tried to get him on supplements, based on what I take (fish oil, daily vitamin, glyconutrients and green powder), but anyone not supplement crazy goes south on those pretty quickly. There have been other "miracle" cures I've seen along my travels, but of course am wary - do no harm, eh?

I do understand something about the granulation issue - and when a wound refuses to granulate, it's practically impossible to heal. His wounds seem to start, but not continue.... They look a bit like the toe picture, hot pink and swollen in some areas, not in others. I feel, intuitively only, that he's lacking something within him or at the site of the wound, that is needed to promote the healing process and/or there is something there that doesn't belong, that is hampering the process. Therefore I believe that having his blood taken by a naturpath who can tell me if there's some essential item he's deficient of, in his body, is very important (maybe he'll be likely to take the supplements when backed by blood analysis by a professional). In addition, I can see that the infectious desease doc would help with the other issue of something being there that shouldn't.

I also long for a way to get the oozing under control - by the end of the day his chair is sopping wet - the roho he sits on is dripping. In the morn, our bed is that way and the sheets are pink with the fluid. I can't even begin to quantify the amount of liquid his body loses this way. Aside from worrying about his hydration, the smell and staining, I have to think that it's just not helpful for the wounds to be so wet. Having children of my own, my first thought was an infant diaper, which can whisk a ton of liquid away from the skin (no no to diaper rash!), and keeps the skin dry! It just seems to make sense to me that the wound should stay dry.... of course, the liquid going through the area is likely to wash off anything put on it during dressing changing time. However, I haven't quite found the way to bring diapers up without great dispair on his part.

Obviously I've had a LOT of thoughts....... in addition are a few more.... salt water baths; are they helpful or hurtful? What about the ocean? What happens if he gets in the pool and his wounds are saturated by chlorine? What if his cathedar or bag leaks and he is saturated with bodily fluids? What kind of organisms must be in a wound for the wound to heal and can they be added? Can I be in the same bath with the wounds; will he get worse infections or will I obtain possible infection? Has anyone investigated the need to increase blood flow to areas stagnant by immobilization? How about electric stimulation? What other kind of doctors are people using and has it been effective or not? (The infectious disease doc was new to me, thank you). Does anyone else out there believe as I do, that these wounds, even if not felt, are creating stress to the body and need to be more aggressively dealt with than the docs seem to do?

LOL, I give.......for those who LOVE to answer peoples questions, I will be asking a(nother) TON of questions about medicare, disability, secondary insurance and the whole "dependent" thing in another area of this discussion site. As well, if anyone has knowledge about erectile issues/reproductive issues, I've questions there too.

Thank you thank you thank you in advance!!!

:cheers: me

ps-just checked the post length and I could have multiplied this by 3 - lol, just wait until next time!!!!

Edited by Groked, 12 August 2006 - 03:18 AM.


#15 Philip

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Posted 13 August 2006 - 04:17 PM

You really need to see someone and the infections Disease Specialiest is where I would start. I don't know were you live but when i went to arazona the air was so dry I developed some sores on my ankles. I have not had to sleep with Foot Pillow but there I had to. I also moved to an area of the country that is for a lack of a better word backwards. it's a Meat and starch kind of land. So my variaty of Vegetables was very limited. Now I am lacking the vitamins that are needed for health skin in my regular diet. If you are not already taking vitamin C and Zinc go find a source that you can take daily. I can't drink to much orange juice because it causes me to itch. So I take supplements. If you are in the U. S. That the daily recommended requirement is the minimum that is needed to not be Malnurished.

#16 Rockin

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Posted 22 August 2006 - 06:30 PM

Seeing a infectious disease specialist along with a plastic surgeon is the best thing you can do. I have had two extremely bad holes on my backside, down to the bone, from pressure. I had a pic line put in for the mrsa and staff infec. and the plastic surgeon did a muscle and skin flap. After the surgery I was in a special bed that has sand in it, I was in that for six weeks, not allowed to sit up for any reason. The next step was rehab for what they call a sitting routine, the first day I was allowed to sit up for 15 min. in the morning and 15 min. in the evening. Everyday 15 mint. were added until I was allowed to sit all day. I also had a hole in the side of my leg from a cast. The hole had been there for a year and the wound care specialist kept telling me it was going to heal on its own. It ended up tunneling down my whole calf so I had the plastic surgeon take care of it. The same operation was done and six weeks later it was healed.

#17 Simon

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Posted 22 August 2006 - 08:19 PM

My similar sore on the toe is now healed.
Simon

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#18 Groked

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Posted 22 August 2006 - 11:54 PM

Simon,
What is it that you did to heal that toe???


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