Quadriplegic & Paraplegic Spinal Cord Injuries: Baclofen Pump = Sexual Problems? - Quadriplegic & Paraplegic Spinal Cord Injuries

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#1 User is offline   davebahm 

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Posted 16 August 2009 - 04:45 PM

Hello All,
I posted this question three years ago after I had my pump installed, but received no feedback (so I'll try again). For you who have a pump and have normal sexual relations with a spouse or significant other, has your sexual performance been adversely affected since getting the pump? In addition to general overall weakness, urinary and bowel irregularities, I often have a difficult time reaching climax while making love with my wife (and all of these functions were normal for the most part before getting this stupid pump). I don't have the problem that requires Viagra, just trouble "completing." It's very frustrating, because I'm crazy about my wife and she still excites me after 11 years of marriage, so when this happens it's frustrating for both of us. Any thoughts?
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#2 User is offline   saradise 

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Posted 27 December 2009 - 04:58 AM

My husband has the baclofen pump and there has been no change from before to after. He is in the same boat as you as far as not being able to complete. I don't think the baclofen pump affects sexuality in any way...for us, it has calmed the spasms some making it easier for sex.
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#3 User is offline   2ndChance 

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Posted 23 August 2011 - 05:26 PM

View Postdavebahm, on 16 August 2009 - 04:45 PM, said:

Hello All,
I posted this question three years ago after I had my pump installed, but received no feedback (so I'll try again). For you who have a pump and have normal sexual relations with a spouse or significant other, has your sexual performance been adversely affected since getting the pump? In addition to general overall weakness, urinary and bowel irregularities, I often have a difficult time reaching climax while making love with my wife (and all of these functions were normal for the most part before getting this stupid pump). I don't have the problem that requires Viagra, just trouble "completing." It's very frustrating, because I'm crazy about my wife and she still excites me after 11 years of marriage, so when this happens it's frustrating for both of us. Any thoughts?


I'm a female. I completely lost my ability to complete after having the pump installed. It has been almost one year and I am now in the process of reducing my IT dosage to see if my side effects cease if I turn off the pump. Have you tried reducing your IT dosage?
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#4 User is offline   davebahm 

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Posted 30 November 2011 - 07:34 PM

View Post2ndChance, on 23 August 2011 - 05:26 PM, said:

View Postdavebahm, on 16 August 2009 - 04:45 PM, said:

Hello All,
I posted this question three years ago after I had my pump installed, but received no feedback (so I'll try again). For you who have a pump and have normal sexual relations with a spouse or significant other, has your sexual performance been adversely affected since getting the pump? In addition to general overall weakness, urinary and bowel irregularities, I often have a difficult time reaching climax while making love with my wife (and all of these functions were normal for the most part before getting this stupid pump). I don't have the problem that requires Viagra, just trouble "completing." It's very frustrating, because I'm crazy about my wife and she still excites me after 11 years of marriage, so when this happens it's frustrating for both of us. Any thoughts?


I'm a female. I completely lost my ability to complete after having the pump installed. It has been almost one year and I am now in the process of reducing my IT dosage to see if my side effects cease if I turn off the pump. Have you tried reducing your IT dosage?


Hi 2nd Chance! I logged in today, probably the first time since I posted the above question. I forgot that it was posted! I guess achieving orgasm has improved a little, but still unhappy with the pump and how it has affected me in general. Haven't tweaked with the flow rate very much. Considering having it removed in the next several months.
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#5 User is offline   tsh3406 

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Posted 30 November 2011 - 08:39 PM

I have found that for me, personally, Baclofen significantly hampered sexual function. I switched to a different drug. While on Baclofen, erections were not reliable, and lasted 20 minutes tops, with no "round 2". Even with ED drugs. Now, they can easily last 1.5 hours, and 2 or more ejaculations are not unusual....

I DO have an incomplete injury.... that makes a big difference too....
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#6 User is offline   russ1 

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Posted 30 November 2011 - 08:41 PM

The pump defnately affected my ability to get an erection... but given the upsides it's a price I'm prepared to pay...... not sure my girlfriend agrees but she does understand. These days even viagra isn't always effective.
Russ - T2complete
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#7 User is offline   Wheels08 

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Posted 30 November 2011 - 09:18 PM

I am not on any spasm drugs, besides bladder spasm 5mg once a day, and I can not sustain a 20 min erection. HOW DO YOU DO THAT?????? It would definitely be a help. I take 5mg of cialis once a day. Any other suggestions that have worked?
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#8 User is offline   tsh3406 

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Posted 30 November 2011 - 09:32 PM

If that was directed at me, I'd love to horseshit ya, but Viagra or Cialis, maximum dose, lol....

T
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#9 User is offline   tsh3406 

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Posted 01 December 2011 - 01:33 AM

I encourage all of you to research a drug called 4 Aminopyridine. For a lot of spinal cord injuries (mostly incompletes), it completely eliminates the need for baclofen and oxybutinin (sp?) and it's method of action can even improve some nerve impulses (including sexual function, bowel and bladder control). I've been on it for about two years now, and will never go back to baclofen.

Tim

http://www.sci-thera...arm-Chronic.htm
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#10 User is offline   russ1 

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Posted 01 December 2011 - 09:41 PM

post deleted .. reread the postI was replying to and my reply made no sense at all

This post has been edited by russ1: 01 December 2011 - 09:42 PM

Russ - T2complete
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#11 User is offline   davebahm 

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Posted 13 December 2011 - 06:12 PM

Tim,
I kind of speed read the article... interesting. Do you take this drug orally? If so, does it make you feel loopy for a while like oral Baclofen? Any other side effects?

The sex thing isn't my biggest problem with this pump, it's not being able to "fire" or move certain muscles like I used to before the surgery (to sit up, lift legs and feet, raise arms over my head, etc.). I'm beginning physical therapy this week, mainly for stretching muscles, with the plan to have the pump removed as soon as reasonably possible. It's been six years and I hate what the Baclofen has done to me.

Dave
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#12 User is offline   tsh3406 

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Posted 13 December 2011 - 08:07 PM

View Postdavebahm, on 13 December 2011 - 06:12 PM, said:

Tim,
I kind of speed read the article... interesting. Do you take this drug orally? If so, does it make you feel loopy for a while like oral Baclofen? Any other side effects?

The sex thing isn't my biggest problem with this pump, it's not being able to "fire" or move certain muscles like I used to before the surgery (to sit up, lift legs and feet, raise arms over my head, etc.). I'm beginning physical therapy this week, mainly for stretching muscles, with the plan to have the pump removed as soon as reasonably possible. It's been six years and I hate what the Baclofen has done to me.

Dave


Yeah, it's a little 10mg pill, and average dose is 2 or 3 per day. Normally, it does not have the effects you mentioned, but I recall accidentally taking a double dose and it did make me a little jittery and cloudy feeling. I was under close supervision by the prescribing physician for the first year, but to date have not had any complications because of it. Bennefiits I have noticed over Baclofen are increased tolerance of extreme heat, increased breathing capacity, decreased swelling and slight improvement in sensation. That's in addition to the changes in sexual functioning. I also seem to sweat a little more. No significant change in motor or bowel/bladder functioning.


Your reactions to it will be different depending on your injury, it does more for MS but less for complete injuries....
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