I'm brand new to this site and just thought I'd post in the hope of getting some responses!!
I have a beautiful 6 month old daughter who was born with a spinal cord injury (c6 - t1). The cause is unknown as it happened while she was still in the womb (probably a week before she was born when foetal movements changed) but was possibly due to a spinal stroke. She has made massive progress since birth when all of her limbs were very floppy and she couldn't move them. She now moves her arms, hands and fingers perfectly and is developing fine motor skills, grabbing etc. Her legs have gained a little more movement and she can tense them, and wriggle her toes and move her feet. Prognosis is very uncertain due to her age, but we are keeping our hopes up at the same time as coming to terms with her disability.
I just wondered if anyone had ever come across this before...have you met anyone who has ever had a similar thing happen to them or a member of their family? I have scoured the internet and been in touch with a couple of sci charities but no-one has ever had experience of this - it must have happened before??!!!! There's lots of info about SCI occuring following accidents and illnesses, but never to an unborn baby.
ANY info would be considered useful
Edited by proudmummy, 22 August 2009 - 08:34 PM.