[breeze]

hello~

My mom is a recent L1 incomplete.
Starting this week, she tries to pee on a toilet before cathing to see if she can pee on her own.
She complains that whenever she sits on the toilet, she feels like her butt is "stuck" in the hole of the toilet seat,
and after she's done, her butt gets really stiff for a while.
Bowel is the same thing, except she only has to do it once or twice a day, so less of a problem.

anybody else have the same issue? or any suggestion? =)


Both today and yesterday, she has been able to pee 100cc~350cc on her own each time,
so even tho she can't feel the urge to pee yet, at least she wont need to cath as often!

on the other hand, she's having a mild UTI today, and i'm wondering if the residual urine has anything to do with it.
but she's still cathing a couple times a day...so i dont know...


Thanks a lot!

[davjed]

She may need a mild prophylactic antibiotic to keep from getting recurrent UTI. She may be harboring a resident colony of bacteria in her bladder. Ask her urologist about this. I take macrobid daily and have infections only once or twice a year. Also drink plenty of water and juices that produce an acidic urine.

[qbounce]

Mild or not, how good an idea is it to take a permanent antibiotic? Doesn't the body build up a tollerance to this over time, inevitably making it more difficult to fight infections? Or am I making to much out of this?

[guido]

breeze, on Sep 17 2009, 09:04 AM, said:

She complains that whenever she sits on the toilet, she feels like her butt is "stuck" in the hole of the toilet seat,
and after she's done, her butt gets really stiff for a while.
Bowel is the same thing, except she only has to do it once or twice a day, so less of a problem.

anybody else have the same issue? or any suggestion? =)

Hi - before I left my SIU in Sheffield, the OTs suggested I use an inflatable loo seat - makes everything easier as you avoid the "butt stuck in hole" feeling and avoids pressure issues when you're sat there straining for ages!

I use mine all the time and it travels with me really easily (as it's inflatable, so deflates too!)

Am always surprised that more people don't know about them. Found the guy who makes them, and he agreed to let me sell them. I am just a bit cheaper than him as I can make the postage cheaper. Obviously if you are UK based and paralysed then you don't pay the VAT. Link to them here.

I'm selling them is because I think they're invaluable, and more people should know they exist.

Hand made in the UK too!

g]

[wheeliebear75]

guido, on Oct 27 2009, 10:24 PM, said:

breeze, on Sep 17 2009, 09:04 AM, said:

She complains that whenever she sits on the toilet, she feels like her butt is "stuck" in the hole of the toilet seat,
and after she's done, her butt gets really stiff for a while.
Bowel is the same thing, except she only has to do it once or twice a day, so less of a problem.

anybody else have the same issue? or any suggestion? =)

Hi - before I left my SIU in Sheffield, the OTs suggested I use an inflatable loo seat - makes everything easier as you avoid the "butt stuck in hole" feeling and avoids pressure issues when you're sat there straining for ages!

I use mine all the time and it travels with me really easily (as it's inflatable, so deflates too!)

Am always surprised that more people don't know about them. Found the guy who makes them, and he agreed to let me sell them. I am just a bit cheaper than him as I can make the postage cheaper. Obviously if you are UK based and paralysed then you don't pay the VAT. Link to them here.

I'm selling them is because I think they're invaluable, and more people should know they exist.

Hand made in the UK too!

g]

HEY! That IS pretty cool!

[guido]

wheeliebear75, on Oct 27 2009, 09:30 PM, said:

HEY! That IS pretty cool!

I need to find out what the rules are for posting to US. I presume there's no VAT to pay and if anyone there is interested, I'd only charge what the postage costs. Came to this whole retail thing, as I was fed up with others taking advantage. If you're interested, let me know.

And if anyone does decide to try one, I'd be really grateful if you'd report back here to say whether you think they're rubbish or the best thing since sliced bread.

[LuckyinKentucky]

That seat looks awesome Guido. Do yo have any idea what they cost. I would be interested in getting one for traveling.



Breeze....I don't use a catheter and for in home use i go with an activeaid 101. A normal padded toilet seat from wal mart is fine for peeing also but difficult to use for a program. Your mom may never be able to feel when she has to go... for me it's most often a matter of timing and maintaining awareness of you fluid intake. And when it comes to actually doing the deed breathing can be important and abdominal strengthening comes with it. It is a matter of creating a continuous downward moving flex...

remember though every injury is different

This post has been edited by LuckyinKentucky: 29 October 2009 - 03:45 PM

[guido]

LuckyinKentucky, on Oct 28 2009, 04:26 PM, said:

That seat looks awesome Guido. Do yo have any idea what they cost. I would be interested in getting one for traveling.

Hi Lucky

Have been PM-ing other members and I need to find out 2 things for US people.
1. If I can take off the VAT as it's going outside UK
2. cost of shipping to the US

I sell them for the same price as the manufacturer and I'm the only other person who does sell them, (I chased him as I love it and use it ALL the time, everywhere) but I get the postage to cost less so I work out better. They cost £60 without VAT (£69 with VAT) and in UK postage is included.

Shipping can vary according to area, so if you are interested to buy one, send me an email to info@disabledgear.com with your name and address, and I'll get a couple of shipping quotes and email you back so you can make a decision.

Hope that helps. Any questions, let me know.

Guido

[guido]

guido, on Oct 28 2009, 08:55 PM, said:

LuckyinKentucky, on Oct 28 2009, 04:26 PM, said:

That seat looks awesome Guido. Do yo have any idea what they cost. I would be interested in getting one for traveling.

Hi Lucky

Have been PM-ing other members and I need to find out 2 things for US people.
1. If I can take off the VAT as it's going outside UK
2. cost of shipping to the US

I sell them for the same price as the manufacturer and I'm the only other person who does sell them, (I chased him as I love it and use it ALL the time, everywhere) but I get the postage to cost less so I work out better. They cost £60 without VAT (£69 with VAT) and in UK postage is included.

Shipping can vary according to area, so if you are interested to buy one, send me an email to info@disabledgear.com with your name and address, and I'll get a couple of shipping quotes and email you back so you can make a decision.

Hope that helps. Any questions, let me know.

Guido

Further to my last post about costs to people in the US.

Better news than I expected! Couriers like DHL, etc were charging in excess of £23 (around $38 just now) but with our Royal Mail it would cost a LOT less:

1. Airsure Service £13.54 (around $22.50 as at 30Oct09)
- tracked
- insured
- about 2 days (and this service avoids delays caused by our striking postal workers)

2. Airmail Service £9.04 (around $15.02 as at 30Oct09)
- around 5 days
(though at the moment we have some postal service strikes, so could take longer)

Also, there is no UK V.A.T. to pay - as the item is being exported - so item cost is £60 (around $99.71 as at 30Oct09)

Hope this answers the questions. Any other questions, probably better to get in touch direct, please, rather than take up more forum space.

[Kwag_Myers]

breeze, on Sep 17 2009, 05:04 AM, said:

hello~

My mom is a recent L1 incomplete.
Starting this week, she tries to pee on a toilet before cathing to see if she can pee on her own.
She complains that whenever she sits on the toilet, she feels like her butt is "stuck" in the hole of the toilet seat,
and after she's done, her butt gets really stiff for a while.
Bowel is the same thing, except she only has to do it once or twice a day, so less of a problem.

anybody else have the same issue? or any suggestion? =)


Both today and yesterday, she has been able to pee 100cc~350cc on her own each time,
so even tho she can't feel the urge to pee yet, at least she wont need to cath as often!

on the other hand, she's having a mild UTI today, and i'm wondering if the residual urine has anything to do with it.
but she's still cathing a couple times a day...so i dont know...


Thanks a lot!

There's a chance that Mom isn't completely emptying her bladder. When I first came home from rehab I had to cath after voiding. It may be a good idea for a while until you're sure she's completing the assignment on her own.

qbounce, on Sep 17 2009, 02:06 PM, said:

Mild or not, how good an idea is it to take a permanent antibiotic? Doesn't the body build up a tollerance to this over time, inevitably making it more difficult to fight infections? Or am I making to much out of this?

I've been on Macrobid for over a year with no issues or UTIs. I just had my six-month check-up with blood work and no problems.

This post has been edited by Kwag_Myers: 30 October 2009 - 11:59 PM

[Hikkakaru]

qbounce, on Sep 17 2009, 10:06 AM, said:

Mild or not, how good an idea is it to take a permanent antibiotic? Doesn't the body build up a tollerance to this over time, inevitably making it more difficult to fight infections? Or am I making to much out of this?

Many people are put on a prophylactic dosage of an antibiotic if they have constant recurrent UTIs. While it isn't as safe as using d-mannose or upping your water intake, it's often the only choice for some people. Your body will eventually become tolerant to all medications, but if given in small enough dosages the time frame for which it takes the antibiotic to become ineffective is very long. Also, the same prophylactic medication can be given in a higher 'shock' dosage during a major infection in order to overcome the tolerance. There are also usually many types of antibiotic for each strain of infection, so if your body stops responding to one, the doctor can prescribe a different prophylaxis, and by the time the body stops responding to THAT medication, the doctor can switch back to the original, and so on.

-Sam