[Joed]

Hi rollerbaby84...

Rural Indiana here. I have relatives in Kansas City, and St. Louis is only about three hours from here....we go there for an occasional weekend trip.

It can be isolating...even more so when you live in the country, although I wouldn't live anywhere else. In my adult life, I've never personally known anyone with my disability either. I've tried contacting some childhood hospital-mates, but with no luck.

The next time I'm heading your way, I'd love to stop in and have a cuppa with you.

[Lucydog]

I live in rural northumberland so I dont have any contact much with anyone else. But I do know others like us exist because I see them in Tesco..... the best meeting place in Hexham!!!

So I joined a disability charity and am now a trustee. I still dont meet that many disabled people but a few, Im working on it.

I was thinking that we should have a yearly get together. The US could have the 'apparelyzed' conference in a city of your choice, and we in the UK could do the same. It would be really good to meet like minded friends and have some beer and generally have a party. We can still party you know!!!
Cheers
Luce

[rooster1005]

We are in rural northern Florida. Robert has a couple of friends in chair but there are not many young couples in our situation. I can relate as can Robert. Wish you the best of luck finding someone near you to chat with. I know that friends are what truely get you through at times.

[bubbleandsqueak]

I live in northern Ohio, and I know two people that are paraplegic and one live just about 15mins from me and the other one about an hour. And I know two quads but only one that I really want to know. (The other one's mind is set to I can't do anything and you NEED to do it all for me) I just don't like it when I see him doing things and then when some one comes in the room he swears up and down that he can't and he's really mean to just about every one and I just not a nice person to be around.

But yes it really dose help knowing other disabled people.

[bubbleandsqueak]

I'm alwas open to meating new people. if any one would like my email is squeak2007@sbcglobal.net and i do have a yahoo name superman15975348 or if you like a AIM or AOL name squeakshere

[itsjustme]

Oh my gosh! There you all are! I've been telling my best friend in Texas (she found this site for me) that there has to be a site out there somewhere for people like me because we aren't people any more we are "plegics" and everything is from that perspective and until you are tied in a chair you can't truly understand. I don't care if you are a counselor, a doctor, a therapist or a best friend.

I live in Indiana and I don't have any contact with people like me either.

My 2 year paraplegia anniversary will be 03/17/06 and when I was still in Rehab one special nurse/friend who was giving me my paraplegic training said that the day might come when I might be a little depressed because I too kept a smile through the entire ordeal. After all God blessed me. I still had my arms and my mind and all I had to do was get out of the hospital and go home and everything would be fine. And, everything really is and God continues to bless me soooooo why am I feeling that "d" word?

I'm so glad that I've found you all!!! You may not have any answers but we're not alone!!!

[itsjustme]

Hi rollerbaby84,

I wanted to send an email message to you because you invited emails but you haven't enabled your little email thingy down there at the bottom. Now I'm new too so I can't even tell you where I saw it but it was something about email enabled. If you see it, click on it so we can email you. I've already heard from Joed here in Indiana.

itsjustme

[Jodie Lynn]

Hey all how are things going with you all me I am doing better today than yesterday. My one year anniversary of being in this chair and the way I am is next month on the eleventh and I am not very happy bout it but hey all we can do is try right I am also in the same boat as you guys I do not know to many people like me either I am in Missouri in a small town and it is very diffucult every one stares and acts like you are so different from them but really we still are the same as everyone else we just have to live a little diffferently, so if you all would care to contact me my email addy is sexyladylovey@yahoo.com feel free to contact me ....





Jodie

[lilbit]

rollerbaby84, on Mar 5 2006, 11:28 PM, said:

Just over 22 years now in this chair and I still don't know anyone else like me. With so many of us in the United States why is it so hare to find us? I should be able to go some site, put in my state, county, town, etc and from there I should be able to find people with the same or similar type disability to talk to. I'm not talking about a dating service. I am talking about knowing there are people out there like you that are willing to just talk about the disability itself. I don't always need professional help, sometimes I just need, or so I feel, someone who also lives life in a chair to talk to. These forums are great but I would like to be able to form a group that no only visits online but actually gets together once every few months or so. I have no relationships with anyone else with any sort of disability. As much as I fought this in my early years of being disabled, I find myself in these latter years yearning for a comrade. Surely I am not the only person who lives in rural Missouri. Or am I?

Hey Im newto washington,from Alaska,and in Alaska we had the best spinalcord injury groups, But here in the lower 48, Nothing here in concrete wa. maybe in seattle...but anyways, if you want to just chat im here.
lilbit

[kanga2433]

I am in North East Fife and again don't ever meet anyone. Perhaps a golfing holiday up here folks? Not that the local hotels could put many people up. vert few have much suitable accommodation.

[Bookjunky]

The internet is a great way to meet people to talk to and find thins to do. Look for on line groups of people who are interested in the same things you are and join them. I have a lot of fun with reading groups and they can sure keep me busy!

[Herbs]

I'm in indiana right off the border of Chicago where I grew up. If anyone would like to get to know me that would be cool. I enjoy talking to people and getting to know them is cool as well. So if anyone would like to leave me a message please do so and i'll definately get back to you. shyster2377@yahoo.com

This post has been edited by Herbs: 27 April 2006 - 04:27 PM

[chimneygirl]

Look at

www.backuptrust.org.uk

[russ1]

chimneygirl, on Jun 1 2006, 09:52 PM, said:

Look at

www.backuptrust.org.uk

You involved with backup? I'm off water skiing with them next month - can't wait

[Steve]

30 years post-injury for me (T2/3 para) and you would think by now I would have overcome just about everything. But guess what? I STILL have those days when I just want to go back to bed. Maybe I slept funny and my back is killing me, or maybe I'm having spasms real bad, or maybe a UTI or maybe I got a case of the stomach flu thats going around (and as most of you know, having intestinal problems is no fun in a chair) anyway, the point is don't feel like the Lone Ranger. I live in a small town in Alabama, so I'm somewhat of a tourist attraction when I go out! ha! I would like to chat with anyone who is interested.

[chimneygirl]

russ1, on Jun 1 2006, 10:04 PM, said:

chimneygirl, on Jun 1 2006, 09:52 PM, said:

Look at

www.backuptrust.org.uk

You involved with backup? I'm off water skiing with them next month - can't wait

Hi Russ, Yes a little.

I am off to Heron Lake 16 June to do the Mentor course run by them, then off to see steve Napier, notice your skiing in the pic, you prob know him?

[car]

sometimes local rehabs have support groups for people with similar problems. I do not know how far away the spinal injury rehab is from you but since today rehab puts you out so quickly they have started to get people together for groups and sometimes peer mentoring (older inuries grouped with newer ones). maybe you can check that out. goodluck.

[Russell Boseck]

rollerbaby84, on Mar 5 2006, 06:28 PM, said:

Just over 22 years now in this chair and I still don't know anyone else like me. With so many of us in the United States why is it so hare to find us? I should be able to go some site, put in my state, county, town, etc and from there I should be able to find people with the same or similar type disability to talk to. I'm not talking about a dating service. I am talking about knowing there are people out there like you that are willing to just talk about the disability itself. I don't always need professional help, sometimes I just need, or so I feel, someone who also lives life in a chair to talk to. These forums are great but I would like to be able to form a group that no only visits online but actually gets together once every few months or so. I have no relationships with anyone else with any sort of disability. As much as I fought this in my early years of being disabled, I find myself in these latter years yearning for a comrade. Surely I am not the only person who lives in rural Missouri. Or am I?

hi there i am from iowa and in a wheelchair to lets talk ok.

[Russell Boseck]

Jodie Lynn, on Apr 12 2006, 10:06 AM, said:

Hey all how are things going with you all me I am doing better today than yesterday. My one year anniversary of being in this chair and the way I am is next month on the eleventh and I am not very happy bout it but hey all we can do is try right I am also in the same boat as you guys I do not know to many people like me either I am in Missouri in a small town and it is very diffucult every one stares and acts like you are so different from them but really we still are the same as everyone else we just have to live a little diffferently, so if you all would care to contact me my email addy is sexyladylovey@yahoo.com feel free to contact me ....





Jodie

Hi there i am from sw iowa i have been in a wheelchair for about 20m yrs. I help run the family farm here i would love to talk so write to me at r_boseck@yahoo.com hope full