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#1 Tetracyclone

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Posted 05 November 2009 - 07:00 PM

O.K. all you spasmers (don't spell this wrong or you will get banned for spamming!), I've known from early on that weather fronts can kick up a big change in tightness and spasms, but this is the first year I've been in residence in a northern climate to experience the change of seasons.

my spasticity has gone nuts and i finally gave in and increased my baclofen 50%, but I'm not convinced that the seasonal change is the only reason. I might also be sick.

What is your experience? :H2kOther (26):
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#2 The Black Sheep

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Posted 05 November 2009 - 07:12 PM

We're getting a little rain right now and my knees and the top of my thighs hurt. The spasms aren't any worse, but my legs feel tighter at the top than usual. Er, and winter is just around the corner. Cold also makes my thigh muscles feel tight. The spasms aren't worse or better, unless they are physically colder than normal. If I go outside in the winter for a while, my feet and lower legs get really cold and there's almost no spasm.

NO!!! I hate winter.
3 doctors diagnosed me with hysterical paralysis (weee!), 1 diagnosed an incomplete T7, another T2 and the last (and most accurate) T5. Trampolines are BAD. Sleep is unpredictable. And never kiss strangers. Life has moved on.

#3 LuckyinKentucky

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Posted 06 November 2009 - 03:58 PM

I dont have muscle spasms but do have spastic pain.. I've noticed that it gets worse during dramatic changes in barometric pressure either high to low or low to high.

#4 lar60

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Posted 29 December 2009 - 02:42 AM

View PostPwuff, on Nov 5 2009, 07:00 PM, said:

O.K. all you spasmers (don't spell this wrong or you will get banned for spamming!), I've known from early on that weather fronts can kick up a big change in tightness and spasms, but this is the first year I've been in residence in a northern climate to experience the change of seasons.

my spasticity has gone nuts and i finally gave in and increased my baclofen 50%, but I'm not convinced that the seasonal change is the only reason. I might also be sick.

What is your experience? :icecream:


Pwuff,

I am pretty new to this and have found that I don't ask enough questions. I too had a bicycle accident May 12 of this year. Though in my case the bicycle decided not to make a turn with me resulting in an incomplete C5/C6 injury. I had not thought about weather being a factor in the intensity of my spasms, but they have gotten worse with the recent snows. I have been on 10mg baclophen 6X daily and increased gabapentin to 300mg 4X daily. I am walking on single point canes, my right side being weaker than the left, still have numbness in the ring and pinkies of both hands and don't feel my legs.

When I first found the sight I was most impressed with your responses to the questions of others.
My Dr. still thinks I have a good chance of full recovery.

Lar60

#5 chickadee

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Posted 29 December 2009 - 03:10 AM

Maybe I'm not as super sensitive to barometric pressure differences (or I don't keep track of when they occur... or they just happen so much around here... whatever), but the COLD! Oh, the cold! I think I get more nerve pain as a combination of the cold weather plus my leg braces that seem to attract the cold. I've amped up the baclofen frequency, and increased the doses of neurontin (gabapentin) when I could tolerate doing so. Unfortunately, since the higher doses of neurontin make me woozy, stupid, and tired, I don't take it while at work. Which sucks by the end of the day.
I am a palm tree - I bend, but do not break, in the winds and storms.

#6 Tetracyclone

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Posted 29 December 2009 - 04:22 PM

View Postchickadee, on Dec 28 2009, 10:10 PM, said:

Maybe I'm not as super sensitive to barometric pressure differences (or I don't keep track of when they occur... or they just happen so much around here... whatever), but the COLD! Oh, the cold! I think I get more nerve pain as a combination of the cold weather plus my leg braces that seem to attract the cold. I've amped up the baclofen frequency, and increased the doses of neurontin (gabapentin) when I could tolerate doing so. Unfortunately, since the higher doses of neurontin make me woozy, stupid, and tired, I don't take it while at work. Which sucks by the end of the day.


Gawd, yes. How I hate the sleepiness!!!!!!!!!!!
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#7 spot

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Posted 22 January 2010 - 06:17 AM

I must admit I didn't believe that barametric pressure could make a difference in spasticity. I am now an almost-believer. I need more samples than one for proof, but this whole week the barametric pressure has been between 28.8 - 29 in. Hg and I have been sure my body was going to be squeezed to death. This is miserable! I hope I never have a second data point to add to the sample. I don't want to collect any more.

#8 Tetracyclone

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Posted 22 January 2010 - 02:24 PM

View Postspot, on Jan 22 2010, 01:17 AM, said:

I must admit I didn't believe that barametric pressure could make a difference in spasticity. I am now an almost-believer. I need more samples than one for proof, but this whole week the barametric pressure has been between 28.8 - 29 in. Hg and I have been sure my body was going to be squeezed to death. This is miserable! I hope I never have a second data point to add to the sample. I don't want to collect any more.

Spot,
I began a spread sheet record of symptoms and barometric pressure one week ago. I will post after a month if I get a meaningful graph. :head_brick_wall-1:
Look! It's a snail! It's a sloth! Able to creep short distances before lunch!

#9 DannyR

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Posted 22 January 2010 - 08:36 PM

i live in Missouri and we have had one of the coldest and wettest winters in a long time. What I have noticed is that my legs and feet feel cold all the time even when I have them covered with blankets and they feel stiff. I never thought to up my baclofen.




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