Quadriplegic & Paraplegic Spinal Cord Injuries: Update For You - Quadriplegic & Paraplegic Spinal Cord Injuries

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#1 User is offline   jules 

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Posted 10 November 2009 - 06:22 PM

Hi Everyone

Thought it was about time I gave you all an update as to what has been going on with me and my lung disease recently. Just when I thought we had got things on to a relatively even keel a couple of months ago my blood results showed that the allergy side of the disease had flared up again, which lead to me developing an eosinophillic pneumonia (but at lease we had advanced warning with the blood results). So I had to go back on to the very high dose steroids again with all the associated risks of the growths in my lungs growing again. Sadly this did happen, I went to see my consultant last week and my most recent x-ray showed three new growths in my right lung, all of which add to the risk of me having a life threatening bleed from one of them.

I am having a CT scan next week to measure the new growths so that we can keep a more accurate measure of their rate of growth, and also how close they are to blood vessels etc.

Sorry all I seem to do recently is moan whenever I come on here, but it is starting to get me down at the moment, especially because there is no other treatment other than what we are doing at the moment, with the continual monitoring and adjustment of my medications.

Thanks for listening guys, and sorry again.

Jules
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#2 User is online   catmint 

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Posted 10 November 2009 - 06:37 PM

Hi

Thanks for the update. I had been thinking that all was well with you...'no news is good news' scenario.

Seems like you have been having a rough time. As far as I'm concerned you can come on here and have a moan any time you like...just sorry there's nothing I can do to help.

Thinking of you and sending a big hug :lol:

L
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#3 User is offline   Avocado Baby 

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Posted 10 November 2009 - 07:02 PM

Jules,


I'm not surprised it's getting you down. I'm so sorry to hear about this. I'm thinking of you and can PM me anytime for a chat,

:hug: xx
Paraplegic with Spina Bifida. Sensory and function level is T8. T11-L5 fusion 1993. Laminectomy and decompression T10 2006. Spinal fusion T8-T12 with instrumentation Feb 2007. Moderate kyphoscoliosis. Taking 75mg Lyrica 3xday for neuropathic pain.
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#4 User is offline   edlee 

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Posted 10 November 2009 - 08:25 PM

Jules,, feel free to say whatever you need, to get it out. Sometimes just getting it on paper,, or on screen in this case, can help to lift your spirits. Heck,, that's what we're here for.
ed
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#5 User is offline   Yasko 

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Posted 10 November 2009 - 08:31 PM

Thanks for the update! Wish you the best in your life! Stay strong.
"Think for yourselves and let others enjoy the privilege to do so, too." - Voltaire
"If people are good only because they fear punishment, and hope for a reward, then we are a sorry lot indeed." - Albert Einstein
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#6 User is offline   rue2you 

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Posted 10 November 2009 - 10:39 PM

Sending lots of good thoughts and prayers your way!
"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
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#7 User is online   greybeard 

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Posted 10 November 2009 - 10:52 PM

Wish you better.
I am not young enough to know everything. - Oscar Wilde
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#8 User is offline   ClaraTaylor 

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Posted 10 November 2009 - 11:16 PM

Hope it eases for you soon!!
We live in a world so scared of upsetting others feelings that the idiots are allowed to rule. Goodbye intelligence.
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#9 User is offline   qbounce 

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Posted 11 November 2009 - 12:12 AM

Jesus girl,

Stop apologising already!!!

One trait you British really need to get past.--haha :dancegirl:

And on another note, I don't prey much, but I'll send one your way.

Now get a toad in the hole, and have at it. :lol:
When we remember we are all mad, the mysteries disappear and life stands explained. - Mark Twain
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#10 User is offline   wheeliebear75 

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Posted 11 November 2009 - 09:51 AM

Hope you start feeling better soon! :)
*Enjoy every sunset, but be grateful for every dawn.*
*Wheelchairs are made of a special ocular magnetic alloy......they're "eyeball magnets".*
*I USE a wheelchair, that does NOT make ME a wheelchair!*
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#11 User is online   greybeard 

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Posted 11 November 2009 - 12:35 PM

View Postqbounce, on Nov 11 2009, 12:12 AM, said:

Stop apologising already!!!

One trait you British really need to get past.--haha :)


Sorry. :crash:
I am not young enough to know everything. - Oscar Wilde
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#12 User is offline   Tetracyclone 

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Posted 11 November 2009 - 04:03 PM

:)
Look! It's a snail! It's a sloth! Able to creep short distances before lunch!
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#13 User is offline   edlee 

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Posted 11 November 2009 - 07:38 PM

Hey Q,,, what's that "toad in the hole" buisness??? And "have at" what?

Sometimes I feel so left out......
ed
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#14 User is offline   qbounce 

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Posted 11 November 2009 - 10:10 PM

View Postedlee, on Nov 11 2009, 12:38 PM, said:

Hey Q,,, what's that "toad in the hole" buisness??? And "have at" what?

Sometimes I feel so left out......
ed


Ed,
Try reading what those people eat in the, "What's for dinner?" thread. It boggles the mind. :mfrlol:
When we remember we are all mad, the mysteries disappear and life stands explained. - Mark Twain
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#15 User is offline   jules 

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Posted 03 December 2009 - 10:44 AM

Just thought I'd let you know I've now got my CT results, sadly they revealed yet another problem. Apparently I have had quite a large pulmonary embolism (blood clot in my lung) I was very lucky it did not kill me at the time apparently. I did not even realise I had had one, my consultant thinks it happened a while back, we narrowed it down to a day in April when I just thought I was having a bad day!!!

The upshot is I am now on Warfarin (blood thinner) so that is also putting me at an even higher risk of a lifethreatening bleed. I know I posted this before but I really am at the end of my tether now!! I am going off on Holiday to the Caribbean this afternoon so hopefully that will make me feel better in myself if nothing else.

Thanks for all of your suport everyone I really do appreciate it.

Jules
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#16 User is offline   araitn 

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Posted 03 December 2009 - 12:57 PM

Jules, sorry to hear about the new problems, as if you didn't have enough already. I hope the new treatment works for you and you can get to feeling better.

Have a great time on your holiday!
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