6 replies to this topic

[jessalynn23]

I have a burning sensation over my whole body, kinda like frostbite times 10. This sounds really crazy but my finger nails feel like being pulled off. and my hands feel like jelly.

And every time I see someone hold my hand it's like I can feel it, but if I close my eyes I dont.
Does anyone else has any weird sensation?

[Ratticis]

My feet constantly feel like the're burning cold, if that makes any sence. Plus my left knee is always a little sore/stiff, at least ever since the physiotherapist broke it and they had to put the hardware in, which they later had to take out due to masive infection. And my left side hurts like crazy, but according to doctors I'm crazy and trying to get pain killers cus there's 'no way I could feel if it hurts because I'm paralysed'. Then I find out later that there were 3 cracked ribs that healed back at a wierd angle. Isn't healthcare wonderful?

[S&W Winger]

Hey Jessica...oh yes! Feels like there's a vise-grip on my toes about half the day, with a few nails being ripped out...one foot cold, the other hot and if my SO checks, one feels ice cold, and the other burning hot, but of course, the opposite of my sensation! I have both real and phantom pains, especially feet, as my toes had always been ultrasensitive...went to the podiatrist yesterday and needed multiple shots to numb both big toes (that I know must've REALLY hurt by the severity of spasms) he was either "repairing" or more certainly, ensuring later visits (these pod's are really suspect!!)...

I refuse to go back on long-acting/time-released opiates again (wish to retain some control!), so I take 10 mg. oxycodone every 4 hours (refusing the offer of higher doses), along with 150 mg. Lyrica AM and 300 mg. PM...these help the neuropathic pains A LITTLE...and contribute somewhat in helping the spasm-induced pains (I take 20 mg. Baclofen every 6 hours right now for spasms, with a few more here and there - though none of this really helps my severe spasms anyway, thus the pump- along with ONLY 2 mg. of Valium in between - refuse to take more, as also offered, since I like to be awake at least part of the day!)...all this will hopefully change as I switch with the Baclo/morph pump...but figure it's the Lyrica that has been and will remain, the Lifesaver as far as neuro pain...both real and phantom...

Also, I always keep whatever hurts/feels hot or cold/etc., well in my sights, as I find it helps my brain to realize that "no, there is not a vise-grip crushing my toes/feet and tearing away at me!"

Hope you can also distract yourself from this stuff and feel a bit better, as distraction also helps me!




And Ratticis, "burning cold" is a perfect description! Find another doctor...as many are more than happy to give us whatever meds (NOT "drugs!!") will help to make us as comfortable as possible!

Edited by S&W Winger, 14 January 2010 - 09:27 PM.

[McTavish]

Sometimes when I try to rub my back against the chair to get rid of an itch I can feel the titanium, which was inserted in the spinal fusion, rubbing against my skin. It gives me the hebe jebes. When I tell my other half he gets goose pimples just thinking of it.

[S&W Winger]

McTavish, on Jan 15 2010, 10:33 AM, said:

Sometimes when I try to rub my back against the chair to get rid of an itch I can feel the titanium, which was inserted in the spinal fusion, rubbing against my skin. It gives me the hebe jebes. When I tell my other half he gets goose pimples just thinking of it.

Sorry... McT, when I first "came to" it felt like I was laying down on a brick! Some smartazz nurses, etc., told me I was crazy, but others said it was not unusual to feel the hardware area. Don't forget that the nerves for the spine are higher up than the injury, thus the sensation at the injury level within the spine. And even now, I feel the metal running from T-6 through T-9...also, my sensation is lower in the back than the front...I have some skin feeling around the hardware, but in the front, the jagged line runs about 4-5 inches above my navel...



And Jessica...I can also "feel" more so if I see someone touch me, especially my feet...but less if I'm not looking...so if people are around, I'm always watching their actions!!

Edited by S&W Winger, 15 January 2010 - 11:08 PM.

[wheeliebear75]

I guess in some ways what we have is a sort of "phantom pain" except that those limbs are still there.....it's not just our brain remembering a lost limb.......there is probably still some residual nerve pathways that maybe although WE can't MAKE it work for us in the way of movement are still sending & receiving a faint signal. I know reading posts where others talk of odd sensations & problems dealing with pain makes me feel less like I'm "alone" & I hope it does the same for others.


S&W Winger:
"Feels like there's a vise-grip on my toes about half the day, with a few nails being ripped out...one foot cold" OMG S&W that sounds SO LIKE MINE! Often feels as though my toes are being crushed the majority of the time but there's nothing actually crushing my toes. But I get more sensations like ants crawling on my lower 1/2 & frequently biting.
Rattics:
Ratt......DUDE! Whether you can use your legs or not sounds like you need to kick your docs to the curb bro! When my pain isn't able to handled by the regular stuff I can go in & see my Dr., OR go to urgent care & 90% of them are cool & look at my medical history shoot me up with whatever & I go home sleep for like 12-18hrs of sweet sleeping bliss & have an apt. with MY Dr. the fallowing day or within a day or 2, & if my pain is constantly shooting up & "uncontrollable" they'll send me on to pain management, & if that's not doing the trick they've put me IN hospital for pain management on IV drip & slowly get my pain back to a tolerable level. Kaiser may suck ass when it comes to getting things like equipment (you want the good stuff you gotta pay for it yourself) but the cheapy stuff like shower chairs no problem......and I have a good doctor with a GREAT attitude. You see my primary admits to being a "jack of all trades master of none", so when questions do come up he just calls neurology or ortho & they fill him in one what it is he doesn't know. But most importantly my doc feels it's his job to make me the patient as comfortable as he can to give me the best quality of life that he can........THAT is the mark of a "GOOD Dr."!

[airart1]

every injury is different, any dr. with any sence should and would know that............i have it all the time, burning, popping in my legs and toes, hurt where i've had surgery and where they shaved bone, cold, hot , backache..............

Edited by airart1, 16 January 2010 - 01:16 AM.