6 replies to this topic

[The Black Sheep]

I'm sorry if this is in the wrong section. I wasn't sure quite where to post it, but I was wondering if anyone knew or heard of any supplements for nerve regeneration.

I met a man a few years back with Transverse Myelitis, same as I have, and he was able to walk around for the most part, except on bad days when he used a cane. He swore the cure to his recovery was this immune system liquid that tasted like candy canes. (that's all I remember about it) I was wondering... it's been a couple years since I bothered taking anything more than a multivitamin. Has anyone used or tried anything that has helped with anything related to their SCI? Bladder control, spasm control (aside from baclofen), energy? I was googling some supplements I may try in the future after I talk to a pharmacist, like Trimethylglycine and Octacosanol. I'd seen them mentioned in a couple articles about nerve regeneration, but anything that would simply make me feel better would be wonderful. I'll take nerve regeneration if I can get it, but ... probably not likely. =) Any recommendations?

Thank yous

[Ches]

http://www.apparelyz...h...5&hl=fungus

[ericr]

I just started talking (hgh) human growth hormones. there has not been much research with HGH and SCI however it is known to regenerate cells and tissue. It also improves bone density, reduces fat and increases strength. It is very expensive and insurance usually does not cover the treatment along with having to inject it into your stomach usually stops many people from using it. According to my dr's and therapists its well worth the expense and discomfort of the injection. I only been on the treatment for a week and usually takes about a monthfor it to actually start working. I will keep everyone posted with the treatment and results. This is something I would definetly check into with a specialist.

[itsjustme]

I was diagnosed as T2 complete, waist down. As it turns out I am incomplete and obviously have experienced quite a bit of nerve regeneration in the past 5 years since my sci. I can lift my left foot, my left leg and I am beginning to experience some movement in the toes of my completely "dead" right leg. BUT, I can't feel my legs. I don't know where they are. I lift it and then have to look to see where it is. I "feel" the sensation of someone's touch but if you laid a hot iron on my leg I wouldn't feel the heat. The closest way that I have to explain to an AB is like when your foot or leg is totally asleep and you try to bear weight. You can move it but you can't stand on it for a couple of seconds.

I try to explain to people that feeling and sensation are 2 totally different things, for lack of better words to try to describe. What I do feel is the numb tingling in my bottocks from sitting on it all day that uncomfortable asleep pins and needles feeling. My daughter is so excited when I "feel" or move but I try to explain to her that I don't want to regain if it isn't going to do me any good. To achieve more regeneration is simply to be more uncomfortable sitting in my chair and perhaps cathing.

All I'm saying is be careful what you wish for. And again, there must be a point when regeneration does lead to recovery. I guess that I need a doctor to explain that.

[KeepTheFaith]

Take Omega Rich Fish Oil, Superior Calcium Formula which contains Glucosamine and Magnesium and other minerals, Cranberry with Vitamin C capsules, 4-AP, and a chinese herb called "Tian Ma Du Zhong Wan" recommended by Neuro-Acupuncturist. (do acupuncture twice a week) Also, participate in an intense exercise program 3 hours/day, 4 times a week. Do lots of electrical stimulation (FES bike, TENS unit, BioNess)

[Ratticis]

Blue M&M's apparently
http://www.cnn.com/2....dye/index.html

You would be only the 4th person I know that had TM. E-dog would b number 3 (though he seems more like a number 2), then multiple gimplympic gold medalist Ross Norton, and I'm number 1! Cus I rock! Guitar hero told me so

[The Black Sheep]

KeepTheFaith, on Dec 30 2009, 05:08 AM, said:

Take Omega Rich Fish Oil, Superior Calcium Formula which contains Glucosamine and Magnesium and other minerals, Cranberry with Vitamin C capsules, 4-AP, and a chinese herb called "Tian Ma Du Zhong Wan" recommended by Neuro-Acupuncturist. (do acupuncture twice a week) Also, participate in an intense exercise program 3 hours/day, 4 times a week. Do lots of electrical stimulation (FES bike, TENS unit, BioNess)

That's quite a list! I got a magazine in the mail, which is what started this whole supplement thing, and they have really cheap stuff compared to Rite Aid or other drug stores. I went to a acupuncturist a couple years back and actually tried that chinese herb as a tea. UGH, it's not tasty, but it made me super immune to the flu that one year. Everyone around me had it, and had it bad, but I was feeling great... maybe I'll try searching for that one again too.

Blue M&M's.... I like supplements like that =)

Thanks for the recommendation guys. I'm motivated to go for a walk in my walker and chug some tea this morning.