Help
been told by social worker that i am only entitled to 10 hours per week direct payments.does anyone know anything about direct payments who can give me some advise.
at the moment i do all of my husbands care needs i havent been anywhere since his accident in august 2005,and thought i would ask for 20 hours of resbite for myself per week,but have been told as i have refused care in the past i can only have 10 hours ,i also have 4 children and they havent been anywhere with me since august either as i look after my husband 24 hours a day.all im askin for is a bit of help and im getting turned down ,
someone help me please my husband is now a tetraplegic and has been told his needs are only moderate.
thankyou.
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direct payments
been told only entitled to 10 hours
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#2 *onion*
Posted 10 March 2006 - 02:17 AM
Hi Louise,
I'm not familiar with direct payment. Perhaps this is something offered in your particular location? I'm guessing here, but is this a service that will allow you to leave your home, and a goverment program will send a qualified person to take care of your husband? Or is direct payment something different. Sorry I can't help. Hoping someone else can. Maybe some more information from you may help. Take care, I'm sure someone here can help you.
I'm not familiar with direct payment. Perhaps this is something offered in your particular location? I'm guessing here, but is this a service that will allow you to leave your home, and a goverment program will send a qualified person to take care of your husband? Or is direct payment something different. Sorry I can't help. Hoping someone else can. Maybe some more information from you may help. Take care, I'm sure someone here can help you.
#3
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Posted 27 March 2006 - 02:37 PM
Louise
Are you in the UK? If so this is applicable!
The direct payment service should be offered for both the disabled person and also the carer. Allowing both yourself and the other person respite, also should include the kids, maybe hubby needs support in his parenting role, maybe you need respite to attend parents evenings, etc.
They cannot - in fact it is illegal - for them to refuse a direct payment based on the fact that have refused services in the past. The fact of the matter is that you should go back to care management, ask them for a full review of your needs and then go and tell them that your needs have changed. Needs will always be changing - virtually weekly if not daily so in essence you have to think of your worst day - what you do, how you do it and how long it all takes. Then think of the times when you, one of the kids, your husband is ill for example - get them to write it all down in the assessment.
They should be doing needs assesments on the family as a whole and also individual needs - again just make them write it all down. If you are saying you need 20 hrs a week respite then that goes in, if you husband maybe says he wants only 10 hrs then that also gets written in. It is then up to care management what they can or can't meet. If at any stage they say they cannot offer that or don't have funding for x, y, z, then state categorically that you want that logged as an unmet need. This is really important because that then has to go for independent review - which care management avoid like the plague! You'll get it believe me!!
The other thing is, are there any independent advocacy services in your area? Funnily enough, that is what I used to do before coming to France - Also if you want any help - please don't hesitate to PM me, as I'll do whatever I can.
Can't resist getting a plug in for my new career though - accessible holidays in Brittany, France! Will take a direct payment for payment of support service, got several guests this year coming for respite, sounds as if you guys could do with our service!!
Are you in the UK? If so this is applicable!
The direct payment service should be offered for both the disabled person and also the carer. Allowing both yourself and the other person respite, also should include the kids, maybe hubby needs support in his parenting role, maybe you need respite to attend parents evenings, etc.
They cannot - in fact it is illegal - for them to refuse a direct payment based on the fact that have refused services in the past. The fact of the matter is that you should go back to care management, ask them for a full review of your needs and then go and tell them that your needs have changed. Needs will always be changing - virtually weekly if not daily so in essence you have to think of your worst day - what you do, how you do it and how long it all takes. Then think of the times when you, one of the kids, your husband is ill for example - get them to write it all down in the assessment.
They should be doing needs assesments on the family as a whole and also individual needs - again just make them write it all down. If you are saying you need 20 hrs a week respite then that goes in, if you husband maybe says he wants only 10 hrs then that also gets written in. It is then up to care management what they can or can't meet. If at any stage they say they cannot offer that or don't have funding for x, y, z, then state categorically that you want that logged as an unmet need. This is really important because that then has to go for independent review - which care management avoid like the plague! You'll get it believe me!!
The other thing is, are there any independent advocacy services in your area? Funnily enough, that is what I used to do before coming to France - Also if you want any help - please don't hesitate to PM me, as I'll do whatever I can.
Can't resist getting a plug in for my new career though - accessible holidays in Brittany, France! Will take a direct payment for payment of support service, got several guests this year coming for respite, sounds as if you guys could do with our service!!
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