3 replies to this topic

[Jilly]

No, No, No......Sorry Onion but I disagree.

Ok, you have disabled people reading your thoughts on here as well as other spouses\caregivers but I have found nothing but support. Also I think that its good for disabled people to know what its like on our side, as its good for us to know what its like for them. This is a hell of a situation that none of us would ever wish to be in, but its here and we need to get on with it the best we can. If you have issues that you want to talk about - but dont want the whole world to comment on why dont you try sending a personal message to someone, and talk that way. (drop me a line whenever you like!)

A lot of us are isolated and dont know anyone else who can relate to what we are going through and this site is an excellent way to find that understanding. (and have a few laughs!)

This spouses and carers forum is our space, and I know that some of the disabled people who use this site dont post in here because they respect that. However I personally dont mind if they wish to add their comments and opinions. It all helps see each others perspective on things, and I like hearing from everyone....anyway.... thats just my opinion.

[Katie]

Onion I think I've found my soulmate. I feel like you are talking for the both of us. We really do need to go out and have that coffee soon. I have a friend that went food shopping with me the other day and when we parked the car at the underground parking lot she forced me to throw my arms up, yell as loud as I could and jump up and down. I thought she was crazy but it really did help and I felt better when I got home, even for just a little while.
You know I have had some nice people here give me advice and help me with things I didn't understand. I really do feel thankful for them and you. well I better get some sleep cause hubby wakes up in the night and that means I do to, see what he needs and then Ican't get back to sleep. That means I would be grumpy so early to bed and God help us get the good nights sleep we need.
Hang in there, Katie.

[Gary Anderson]

Onion

I disagree too. I read the general site as well as the caregivers. If it were not for the help on this side of the board my former Partner & I would have floundered.

I dont mind people venting their thughts - I do too from time to time. However, I appreciate all the advice I get be it from caregivers or the general site.

Sometimes I crossover to the other parts of this board just to see what is happening there.

My parents are now my "support" since my partner left and although a fully independent para, I still need some support when things go belly up and, indeed, my parents do too. They read this site too and often find folks out there feeling as they do.

Kick - scream - do whatever but let it out - who cares who reads it. I dont. On other sites not connected with SCI injuries, I have had some good humdingers with folks.

As my old Scots Granny said "Dont let your erse touch the glaur" in other words "keep you bum up off the ground." Hang in there.