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New Here - Arteriovenous Malformation With Spinal Dural Fistula


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#1 oljeffy

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Posted 13 January 2010 - 01:53 AM

Hey everyone. I'm new here and want to make sure I belong..I had an AV (Arteriovenous) Malformation with Spinal dural fistula. I am left with very limited function below the waist. Self cath four or five times daily and bowel movements are a whole new world for me. Have PT three times a week and am gaining strength but the nerves are a different challenge. Have a slew of doctors but one pretty cool one who told me it is best to think of myself as having a spinal cord injury. Anyway, have gotten some great info here and thought I would dive in. Thanks.

#2 E-DOG

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Posted 13 January 2010 - 03:03 AM

Well dang, I don't understand all the medical mumbo jumbo but hell, you sound pretty screwed up to me.
I say we let him in, who's in favor?

E-dog
when it absolutely, positively, has to be destroyed overnight, call the Marines.

I will nevah, EVAH take a pinch from a greasy muddahf*@kah like you!

How 'bout if I spell it out for ya. D-I-L-L-I-G-A-F

#3 jass1

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Posted 13 January 2010 - 06:17 AM

welcome yes you do belong here

#4 greybeard

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Posted 13 January 2010 - 07:46 AM

You're just like the rest of us gimps, so - welcome aboard.

Yes Dawg. I'm in favour too. :mfrlol:

Carpe Diem


#5 jules

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Posted 13 January 2010 - 08:33 AM

Welcome on board

#6 oljeffy

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Posted 15 January 2010 - 01:31 PM

Thanks all. I don't understand it all either, but yes I am screwed up. Haha. Great site.

#7 Tetracyclone

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Posted 15 January 2010 - 03:26 PM

Yup, you've found your clique. Welcome.
Look! It's a snail! It's a sloth! Able to creep short distances before lunch!

#8 MxDisasterGrl

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Posted 18 January 2010 - 06:14 PM

"I"
GEAUX SAINTS!!!!!!

#9 spot

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Posted 18 January 2010 - 11:09 PM

They let me in with a CCM in the spinal cord. Why not an AVM? Welcome.

#10 ronval

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Posted 27 July 2010 - 07:52 AM

good morning
my name is ron and for 3 years have suffered from neurological pain which is really bad from the waist down,i would like to know of any other drugs other than pregabalin and citalopram are in use thank u ron

#11 snodrog742

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Posted 28 July 2010 - 03:18 AM

Why do you all have to make my head hurt with abbreviations? Can't we just stick to OMG and LOL? Those are the only one's I know... :( Haha. Welcome




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This website is a way for those with spinal cord injuries to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.