Intolerable Burning Pain!

Intolerable Burning Pain! Nerve Pain Rate Topic:

#1 luckygirl78

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Joined: 16-January 10
Spinal Injury Level / Relationship: t-9 incomplete/wife

Post icon Posted 16 January 2010 - 02:44 AM

My husband is a t-9 incomplete parapeligic. A few months after his injury he started having a burning sensation behind his thighs.Today 6 months from when the burning started its has been at its worst!! Intolerable!!! Like hes being dipped in acid! Set on fire!! Is there any hope for relief???

He has a pain managment appt on tues for an injection i hope it works. Hes aleady tried the elctro spinal stimulator...Which didnt work!!

Please give me advice...Some hope...Some suggestions!

#2 jass1

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Spinal Injury Level / Relationship:T10 T11 T12

Posted 16 January 2010 - 07:06 AM

sorry to hear that i have the same i take lyrica 450 mg a day

#3 ClaraTaylor

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Spinal Injury Level / Relationship:Walking! T12/L2/L4/L5

Posted 16 January 2010 - 11:27 AM

Has he tried lyrica or Gabapentin?

We live in a world so scared of upsetting others feelings that the idiots are allowed to rule. Goodbye intelligence.

#4 MxDisasterGrl

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Country:Louisiana
Spinal Injury Level / Relationship:Shattered T12/incomplete

Posted 18 January 2010 - 04:33 AM

I was on lyrica at first, but then went to baclofen. Felt like it worked better. Less addicting as well. And makes you less groggy, depending on the dose. I feel those pains everynight of my life before bed and when i wake up. It's the worst feeling ever, sometimes makes me wish i couldn't feel at all. It hurts, no doubt about it. But i feel it more because i stopped taking the baclofen. No reason other than just didn't wanna take anymore medicine.

GEAUX SAINTS!!!!!!

#5 luckygirl78

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Spinal Injury Level / Relationship: t-9 incomplete/wife

Posted 19 January 2010 - 03:30 PM

ClaraTaylor, on Jan 16 2010, 11:27 AM, said:

Has he tried lyrica or Gabapentin?

yes.hes taking baclofen,gabapentin and lyrica...
tried epidural...steroids and not sterodial...still has pain.
hes going to AZ pain ceter today in Phx...hopefully they can do sumthin...
thank u for support guys!!

#6 TWOSTROKE

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Spinal Injury Level / Relationship:t9

Posted 19 January 2010 - 09:16 PM

I AM A T9 PARA MYSELF WHO HAS UNFORTUNATELY EXPERIENCED EXACTLY WHAT YOUR HUSBAND IS EXPLAINING THIS HAS BEEN A PROBLEM FOR ME FOR ALMOST 16YRS I DOUBT IF THERE IS A COMPLETE CURE BUT I FIND BY TAKING DHC CONTINUS 60MG SPASMONAL 60MG AND TEGRETOL 400MG TWICE DAILY IT BRINGS THE PAIN TO A BEARABLE LEVEL ALSO TRY CHANGING POSITIONS BY LYING DOWN FOR 15MINS OR SITTING WITH HIS FEET RAISED ON A FOOTSTOOL I HAVE TRIED SPINAL INJECTIONS ACUPUNCTURE AND ALL SORTS OF WEIRD AND WONDERFUL DRUGS FROM THE PAIN SPECIALIST AT MY LOCAL HOSPITAL IT TOOK SOMETIME TO ESTABLISH WHAT WORKED BEST THIS DOSE I FIND IS A COMPROMISE IT NUMBS THE PAIN WITHOUT TURNING ME INTO A ZOMBIE I HOPE THIS WILL BE OF SOME HELP TO HIM

#7 Tortfeasors

Group: Guests

Posted 20 January 2010 - 03:05 AM

why not a total nerve block of those nerve roots?
I asked for this on my S1 nerve root, but because I still get some function from the nerve in addition to the pain, the doc wouldn't do it. but, for someone whose spinal lesion is higher up and prevents function below, why not block the nerve root at the source of the burning pain?

#8 teafourtwo

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Posted 20 January 2010 - 04:07 PM

luckygirl78, on Jan 16 2010, 02:44 AM, said:

spine injection morphine tablets, nothing seems to work. It's in my big toes goes up behind the legs into the buttocks, around my leasion t2, can't bear to wear anything whilst indoors. When I go out, its a case of grin and bear it. Over the last 10 yrs it's become a little more tolerable but you still have to cope with it. I go to Pinderfields once a year and thats 50 miles from Malton so I am very much isolated. Now that I have a computer maybe I too can get some advice. One last point if its a phenol injection don't do it. Sorry can't be more positive, just Know you are not alone.
best wishes Dave

#9 SPARKY6

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Spinal Injury Level / Relationship:T6

Posted 20 January 2010 - 10:20 PM

HI ALEX HERE IN UK,

T6 WITH SIMILAR PAIN FOR 17 MONTHS GET MAJOR RELIEF WITH DRUG CALLED GABAPENTIN FROM MY DOCTOR

HOPE THIS HELPS MY LIFE GOOD WITH THIS PAIN CONTROL,

BEST WISHES SPARKY6