24 replies to this topic

[Aussawa A]

Hi there,


I have been paralyed last year. I have found some information about StemCell in there country but most of information that I have got, most of patients got a good result, So I just wonder, anyone been to China or Thailand to have Stemcell. How's it going?

Thanks

Adison

[Tetracyclone]

If you write to Beike Biotech (chinastemcells.com) they will sent you some e-mail addresses of patients to talk to.

They also send a research synopsis that is tough to comprehend. Also check the results graphs on X-cell site in Germany. They do good research but it is not all that encouraging.

Most results, even in china, come from hard work in PT.

[ericr]

I have afriend that just came back from there. think he had 7 injections total threw lumbar puncture and iv over a 1 month period of time. he went through bieke in quoan doa (think thats howits spelt. he said it was very nice and clean dr.s great and no complications outside a little puncture when injecting the injection gave some head aches but went away. as far as progress his lforce numbers are up and he has more finger movement. he justarted back in rehab this week so we all are excited to see is progress. he is 5 yrs post i believe c5c6.

[ericr]

one more thing you are only 1 yr post. you should really wait to do a risky procedure like stem cells. i almost made the same premature decision to go when someone reminded methat the swelling can take up to 2 yrs to go down. right now u should focus on strengthing your body and working hard at therapy everyday. in 3 years the reevaluatte the stem cell issue. Maybe by then it will be legal here but to risk going to china for surgery its a last resort. there could be complications cells not taking or tumors, infections all not covered and if you go you are at risk of loosing insurance/medicaid. I know you want to walk now so do. we are in the same boat but myake the righ decision, dont jump into stem cells when you have other options.

[MDK]

My husband had stem cells infusions through Beike Company in Shenzen & we were told that the more recent the SCI the better the results,he improved quite a lot. The stem cell tretment is available in Chiang Mai as well if you like I can send you a ph number of the Dr that does it and is cheaper here.

Mioara

Edited by MDK, 17 January 2010 - 07:51 AM.

[Aussawa A]

Hi there, Thank for every suggestion and information.

[qbounce]

MDK, on Jan 17 2010, 12:50 AM, said:

My husband had stem cells infusions through Beike Company in Shenzen & we were told that the more recent the SCI the better the results,he improved quite a lot. The stem cell tretment is available in Chiang Mai as well if you like I can send you a ph number of the Dr that does it and is cheaper here.

Mioara

Yes, OF COURSE the doctors tell you that a newer injury will better show positive results. This is just as true WITHOUT spending money on stem cells half way around the world!

When the swelling of your SCI goes down, more nerves regain their signals and rejuvinte muscle strenth. Because you went to Thailand while your injury was STILL healing on its own, how could you begin to say whether stem cells helped or whether your body's natural healing process did the trick? The answer is, you can't!

When I left the hospital after my SCI, I had virtually no grip on either hand, and I couldn't Lift myself up on my own from the bed with the use of my triceps. Fast forward one year post injury, and my right arm grip improved about 30% and my tricep use has grown at least 50%. So, I am now virtually independant of my own care due to natural healing, and regular Occupational Therapy around the house.

We always say,"every injury is different," and although that much is true. But it IS a GIVEN that the SCI needs at least a full 2 years recovery to properly heal itself so you can know what your optimum strength is.

I honestly believe that many doctors here in the USA and even in the UK, could make a FORTUNE on stem cells, if we didn't have these things called "government regulation agencies" who monitor false doctor claims and charletons. Now, if you wish to blow your earnings on something like this, at least wait to do it after the 2 year mark so you will know exacty what was (or wasn't) accomplished by it.

Edited by qbounce, 17 January 2010 - 07:46 PM.

[allis53ca]

if you have the money for this procedure, spend it on modifying your home, adaptive equipment, a modded vehicle, and pt/ot.....one year post you have alot of healing left.....there is no clinical proof anywhere that theres any results for complete injuries...and all these other crips talked into this before 3 years post are suckers being robbed by hacks and their "results" are no more than others still healing w/o the treatments....if these procedures worked, we'd all be walking because no one benefits us not ! ....

[In The Wind]

allis53ca, on Jan 17 2010, 05:59 PM, said:

if you have the money for this procedure, spend it on modifying your home, adaptive equipment, a modded vehicle, and pt/ot.....one year post you have alot of healing left.....there is no clinical proof anywhere that theres any results for complete injuries...and all these other crips talked into this before 3 years post are suckers being robbed by hacks and their "results" are no more than others still healing w/o the treatments....if these procedures worked, we'd all be walking because no one benefits us not ! ....

+1

[E-DOG]

I went to China a while back.
Got me some very nice plates and dishes and at a great discount.
Also picked up some stemware cheap. Very cool wine glasses, champagne flutes and such.

I don't know what all the fuss is about. I still can't walk.
But if you ever come to dinner, I know you'll comment about how nice China is.
Wonderful to eat on.

[MDK]

[/quote]

Yes, OF COURSE the doctors tell you that a newer injury will better show positive results. This is just as true WITHOUT spending money on stem cells half way around the world!

When the swelling of your SCI goes down, more nerves regain their signals and rejuvinte muscle strenth. Because you went to Thailand while your injury was STILL healing on its own, how could you begin to say whether stem cells helped or whether your body's natural healing process did the trick? The answer is, you can't!

When I left the hospital after my SCI, I had virtually no grip on either hand, and I couldn't Lift myself up on my own from the bed with the use of my triceps. Fast forward one year post injury, and my right arm grip improved about 30% and my tricep use has grown at least 50%. So, I am now virtually independant of my own care due to natural healing, and regular Occupational Therapy around the house.

We always say,"every injury is different," and although that much is true. But it IS a GIVEN that the SCI needs at least a full 2 years recovery to properly heal itself so you can know what your optimum strength is.

I honestly believe that many doctors here in the USA and even in the UK, could make a FORTUNE on stem cells, if we didn't have these things called "government regulation agencies" who monitor false doctor claims and charletons. Now, if you wish to blow your earnings on something like this, at least wait to do it after the 2 year mark so you will know exacty what was (or wasn't) accomplished by it.
[/quote]

Qbounce,

My husband was 4 1/2 years post SCI when we went to China (Shenzen is in China) and he had umbilical stem cells injected.
Thailand did not have a stem cells transplant for SCI then.
Not by any means I say that anyone should have the treatment, nor do I get any gains from any company ,doctor ,etc.

I have simply stated that I can pass on the contact detail of the Dr that does it in Chiang Mai now.

For us the treatment was worth as my husband has regaind some functions but everybody has to make an informed decision on their own.
Mioara

Edited by MDK, 18 January 2010 - 06:23 AM.

[Aussawa A]

Thank again for Mioara and everybody. I would love to share my story and why I asked for information about stem cell.

I am T3-T4 complete. I have been in UK when I was injury. It was happened in the morning when I woke up I felt that some pain at my back. I though, It because of my soft bed. Then went out and the pain was getting worst. I called the ambulance and when I have been arrived at hospital, it started pins and needles in my feet and up to my chest then all my sensation and power were gone. I have had an x-ray at my chest, CT scan at my brain, and end with MRI. I have been told that I have a tumor in my Spinal cord and I had to move to the 2nd hospital and waited for 24 hrs for operation.

After operation, I have got good news and shock news. The good once was, I have got AVM in my spinal cord and all have been removed and fortunately for me no AVM in my brain. The shock once was, I have been told from doctor that”use what you have got left” It sound so easy for him but not from me. Then I have been moved another 2 hospitals for rehab. The last one was “Stoke Mandeville Hospital” which is one of the best hospitals for rehab in UK I have been. I have been in hospital almost half year. Before I have left the hospital I have been told by the doctor again that” 95.5% chance that I will be remain in this condition" which mean I can not walk again.


Till now nothing much change from the first day.

From my story I do not want to believe what doctor said to me. I have tried to find another treatments and I still hope one day I will walk again.

Edited by Aussawa A, 19 January 2010 - 03:44 AM.

[Denny]

Last year Jake went to Beijing for Stem cell treatment. To know more please visit http://www.justjake.me.uk/

[Tinbasher]

Aussawa A, on Jan 18 2010, 08:05 AM, said:

I still hope one day I will work again.

Sorry to hear your story. Please do not be offended but I was wondering if you really meant WORK or did you mean WALK?

There is no reason why you cannot work as aT4 Para.

Tin

[Aussawa A]

Tinbasher, on Jan 19 2010, 04:46 AM, said:

Aussawa A, on Jan 18 2010, 08:05 AM, said:

I still hope one day I will work again.

Sorry to hear your story. Please do not be offended but I was wondering if you really meant WORK or did you mean WALK?

There is no reason why you cannot work as aT4 Para.

Tin

Hi tin, I meant walk

[edlee]

Right now, the stem cell treatments that are available seem to be like a lottery,,, one positive and a thousand negatives. The problem is that the lottery tickets are so expensive.

And I think I'm being a bit optimistic about the odds. So,, the pay your money and you take your chance.
ed

[Tetracyclone]

edlee, on Jan 18 2010, 11:31 PM, said:

Right now, the stem cell treatments that are available seem to be like a lottery,,, one positive and a thousand negatives. The problem is that the lottery tickets are so expensive.

And I think I'm being a bit optimistic about the odds. So,, the pay your money and you take your chance.
ed

Can you offer links to the negatives, please?

[allis53ca]

negative : lack of proven results

[Tetracyclone]

Yesterday's New York Times has a relevant article in the "Room for Debate section".

I'm not figuring out how to post the link, so cut and paste until i educate myself.

http://roomfordebate...ence-supremacy/



Chew it up, friends.

Edited by Tetracyclone, 19 January 2010 - 08:11 PM.

[greybeard]

Tetracyclone, on Jan 19 2010, 03:54 PM, said:

Can you offer links to the negatives, please?

How many people are going to rush to admit they've been suckered out of thousands? It seems reasonably safe to assume they outnumber the published, alleged successes.

[Tinbasher]

Quote

Hi tin, I meant walk

I though so

Stoke Mandeville is a great place I was there myself please say hello to Doctor Alison Graham if she is still around.

Tin

[Tetracyclone]

Perhaps, but suppositions do not make good science nor investigation.

GB, I'm getting very tired of the presumptions on the part of some folks that Obviously, the treatments offered in other countries are misrepresented. Most probably are, but beware of arrogance that masquerades as educated opinion.

"Alleged successes"? With only a few days research I have names and phone numbers. These people are not starry-eyed. They say "I clearly got some gains, though they might not look grand to others." or similar words. Contrary to your supposition, people who were damaged by their treatments- I think their families might well wish to publicize their experiences. WE DON'T KNOW.

You, in particular, are a better thinker than this.

Edited by Tetracyclone, 19 January 2010 - 11:28 PM.

[greybeard]

Tetracyclone, on Jan 19 2010, 11:26 PM, said:

You, in particular, are a better thinker than this.

OK so I'm having a bad day. So shoot me!

[Tinbasher]

Tetracyclone, on Jan 19 2010, 11:26 PM, said:

GB, I'm getting very tired of the presumptions on the part of some folks that Obviously, the treatments offered in other countries are misrepresented. Most probably are, but beware of arrogance that masquerades as educated opinion.

I don't think Grey Beard was simply picking on "foriegn" cures out of xenophobia, simply making the point that rocket science doesnt advance in places that dont have rockets.

I have said it in another thread but a cure for SCI will be a Nobel Prize advance. The person who finds it isnt likley to be happy with making a few thousand dollars in a private clinic in some backwater.

Some of us have been around a long long time and have seen it all again and again and tragically seen lives ruined twice. Once from the injury and again through cures that didnt work or even worse made THEM feel it was their fault it didnt. Fancy orthoses, electro stimulation, steroids, laser puncture, sleeping with the foot of your bed elevated (really!). If any of them really worked we would ALL be ex members of this club.

Tin

[E-DOG]

Tetracyclone, on Jan 19 2010, 03:26 PM, said:

Perhaps, but suppositions do not make good science nor investigation.

GB, I'm getting very tired of the presumptions on the part of some folks that Obviously, the treatments offered in other countries are misrepresented. Most probably are, but beware of arrogance that masquerades as educated opinion.

"Alleged successes"? With only a few days research I have names and phone numbers. These people are not starry-eyed. They say "I clearly got some gains, though they might not look grand to others." or similar words. Contrary to your supposition, people who were damaged by their treatments- I think their families might well wish to publicize their experiences. WE DON'T KNOW.

You, in particular, are a better thinker than this.

Now dear! You know my love for you is (for the most part ) unsurpassed by any and all, but, if what yer saying is true, then. WHY IN THE HELL AIN'T I WALKING!

Sorry boo boo, but this whole stemcell thing kinda pisses me off. I can assure you, mon ami, that when there is a viable
cure for SCI, especially a COMPLETE injury, I will rip, tear and claw my way to the front of the line. And if ANYONE tries to stop me, well then, they'd better be bullet proof, I tell you, dad-diddly-ding-dang-gummit!
Till then, you can hope in one hand an' shit in the other. You tell me which one fills up faster and has more weight and substance.

E-dog / who REALLY, REALLY wants to walk again a whole lot. Or maybe even crap like an A/B. Or maybe have an occasional orgasm. Or perhaps piss without having a frigging piss sack strapped to his leg and a tube jammed down his pecker. Hey, but I'm not BITTER!