[sweeper]

Does anyone know about this place or had treatment there?

[jass1]

i asked a DR in Germany he is family fiend he called them and they said they do not have treatment for sci at this time

[topperf]

They do 'treat' SCI, but no guarantees... (If I was forced to be experimented on - this is the place I'd choose though)

[LCoruzzi]

My Mum has applied and hopes to go soon. She is incomplete SCI and had to wait until her pressure wounds were healed since going ahead with the procedure with a current infection would increase the risks. There are no guarantees and they do not offer you a guarantee, but the hope that she can at least gain something, anything is enough to spur her on.

[sweeper]

Hi Please keep us updated. My son is very keen to give it a try. At present he has contacted them and is collecting reports from his doctors and therapists to send for assessment. He also feels that any small improvement would be worth trying for.
It would be great to have contact with someone who has actually been there.
V

[FlyPelicanFly]

sweeper, on Feb 8 2010, 09:14 PM, said:

Does anyone know about this place or had treatment there?

Hi sweeper, I would not recommend wasting your hard earned cash on this treatment. Most people who have admitted to have had the treatment have had no functional return whatsover. The few that have had some return have had some modest sensory return. The company are exploiting a loophole in German law to apply this "treatment" without any credible scientific data regarding efficacy.

My personal opinion, save your money and support credible clinical trials like SCINetUSA (www.justadollarplease.org). Yes SCI life sucks and most would re-mortgage their houses tenfold to be beat this awful condition but a real cure for all of us will only arrive through good clinical practices. Dont make the X-Cells, Beike Biotechs and Geeta Shroffs of this world get rich by exploiting our desperation.

Keep up to date with REAL clinical trials and advocate for more funding to speed them up.

Fly Pelican Fly

[vik]

I did this treatment at the xcell center back in 2007. They took my bone marrow and made some stem cell solution and injected it in my spine. Spent a shit load of money and a week over there. And nothing happened. However, I did speak to some people who did see some improvements. So yea I guess it doesnt work for everybody. Really cool place though.

[0xSquidy]

FlyPelicanFly, on Apr 27 2010, 04:15 PM, said:

sweeper, on Feb 8 2010, 09:14 PM, said:

Does anyone know about this place or had treatment there?

Hi sweeper, I would not recommend wasting your hard earned cash on this treatment. Most people who have admitted to have had the treatment have had no functional return whatsover. The few that have had some return have had some modest sensory return. The company are exploiting a loophole in German law to apply this "treatment" without any credible scientific data regarding efficacy.

My personal opinion, save your money and support credible clinical trials like SCINetUSA (www.justadollarplease.org). Yes SCI life sucks and most would re-mortgage their houses tenfold to be beat this awful condition but a real cure for all of us will only arrive through good clinical practices. Dont make the X-Cells, Beike Biotechs and Geeta Shroffs of this world get rich by exploiting our desperation.

Keep up to date with REAL clinical trials and advocate for more funding to speed them up.

Fly Pelican Fly

+1

[FlyPelicanFly]

http://www.rte.ie/news/2010/0513/primetime...753071,null,230

[sweeper]

Thank you. Makes interesting viewing, its much as I thought. But then again Im just the mom, so Iv past it on to my son to watch.

[1151map]

Hello<

Our son had stem cell treatment at the X-Cell Center in Cologne Germany on October 29, 2009. The procedure was quick and we have seen our son improve by leaps and bounds. He suffered a C5 SCI in July 2008. He had very little progress prior to stem cell. We started seening a difference in trunk control, arm strength, hand eye cordintion. He currently is attending acupuncture, physical therapy and aquatic therapy. He attends both physical therapy and aquatic therapy on the same day. We have found out that the aquatic treatment help the stem cells travel in a straighter path which helps with repair and damages to the spinal cord.
Please very his story on the listed websites for validity:

www.xcell-center.com
www.riderdown.org

I am a true believer in the X-Cell Center and research the have to offer people with spina cord injuries.

stay strong and believe,

[Pejhman]

Hi,

From the perspective of someone involved in science, I'm not a fan of this centre. Not only do they lack references of scientific peer-reviewed literature, but the few things they do mention seem to either not exist or be very difficult to find. If they were as advanced as they claim this would not be the case. Furthermore, they have systems in place to charge you more i.e. If they don't get enough stem cells from the first collection attempt they will charge you another 2000 Euros or so to attempt again.

It's like they're abusing the buzz word of "stem cells". It may very well be true, but from the perspective of how I'm trained to assess such claims I wouldn't endorse it.

Sorry,

Pej.

[LCoruzzi]

My mother had an aortic dissection in March 09 and suffered complete paralysis T6. She and my Dad are traveling to the XCell Center in Cologne on Friday to undergo autologous stem cell treatment. There are no guarantees, I worry about their travel and any sores she might develop. I worry that they'll get there and a) tell her they can't treat her because she developed sores during the trip or worse find out it's a scam.

I don't think it's a scam. They haven't taken my parents' money easily. In fact, they requested all medical paperwork, including an all-clear from her rehab doctor and it took her two times to apply before being accepted.

I'm skeptical about results since finding any online from patients is hard to come by. I will most certainly post here when they return on October 9/10.

Lisa

[Tetracyclone]

This post is not about Xcell, but their delivery method is the same as the one used in China's Beikie Technology treatment hospitals, so Wise Young's comments apply partially to Xcell.

This is a post from CureCare's forum entered today which i think many of our members will be interested in.

"Quote:
Originally Posted by td_trust
hi dr.wise,

i ask one of the private hospitals in china about using
HLA-matched umbilical cord blood cells . this was their reply

''The stem cells we use have little immunogenicity, so we needn't
consider about HLA-matching problem. We do not combine growth factors
with cells. We know that some groups in China and overseas are
undertaking research in this area including Lithium. It is very
promising for the future. However at present nobody has studied
sufficiently the differentiation of stem cells when growth factors are
added. We do not have enough understanding and experience in it. We
believe the best and safest way is to transplant stem cells in their
natural state. We know they are stable. Also, we have not met any
problem with HLA-matching. We claim this based on our research and
clinical experience with 2125 patients.''

would you say this is true?

Thank u

Dr. Young answers:

I assume that you asked the hospitals that are treating patients with cells provide by Beike Biotechnology. In my opinion, there is no evidence that the treatment that they provide or their route of administration results in recovery of patients. To my best understanding, based on their public talks on the subject, they are infusing non-HLA matched CD34+ cells intravenously or intrathecally into patients. Two decades of experience with intravenous infusion of umbilical cord blood has shown clearly that intravenously administered and non-HLA-matched umbilical cord blood cells are usually immune-rejected within several days. Beike Biotechnology has not provided any evidence to contradict this. In that respect, their statement that their cells are non-immunogenic is false.

They give the cells intrathecally to many of their patients. I believe that cells administered through this route will not get into the spinal cord injury site or the spinal cord surrounding injury site. The reason is because cerebrospinal fluid flows distally (downward). The cells are likely to end up in the cauda equina. Thus, I am skeptical that this approach would restore function to any of the their patients.

Finally, I am perturbed by their unsupported claims of efficacy and safety. They have claimed (including on this site) that the treatment is effective in 80% of patients and safe in 100% of the patients. I have never seen any data to support this statement. They have never published a peer-reviewed article on this subject. They are charging large sums of money for a therapy that has not been shown to be safe or effective and making unsupported claims for the the safety and efficacy of the treatment. In my opinion, this is unethical and I do not recommend this therapy or group.

Wise.

This post has been edited by Tetracyclone: 30 September 2010 - 02:04 PM

[anam]

i ve recently undergone stem cells treatment at xcell-center last week. i will let u ppl know if anything positive happens