Quadriplegic & Paraplegic Spinal Cord Injuries: Cure For Spinal Cord Injury - What's Your Reputable Newsource? - Quadriplegic & Paraplegic Spinal Cord Injuries

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#1 User is offline   sciiaf 

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Posted 08 February 2010 - 10:58 PM

no, i'm not hung up on a cure and I don't envision ever being able to walk again. But, there's always muttering about a cure, (stem cells, maybe in 10-15 years) and I've read more than a few posts here about people going to different countries for therapies.

My QUESTION is, do any of you know of a reliable, legitimate, science/medical based authority on finding a cure for SCI? Or new developments in healing those with SCI? I guess I am looking for something to hold on to. Lots of talk about stem cell research, where the Hell is this going? It sounds promising.

In relation, I'm getting fed up and brought down by one friend who keeps insisting, despite my education, that she "just knows that I'll walk again someday...I'm too 'kick ass' to not ever walk again". Over and over. Regardless of what doctors say, regardless of the FACTS of just what the Hell a SCI injury IS. Over and over. "You'll walk again." I've told her, she needs to educate herself on this injury. I didn't fall down skiing. I'm f*@ked (for lack of a better word) and that I know she's trying to encourage me, but flat out ignorance is not encouraging. I've gotten to the point where I just delete the emails. Sorry to let you down
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#2 User is offline   ericr 

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Posted 08 February 2010 - 11:17 PM

the miami project seems to be the most up to date on stem cell's and advancement with research.
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#3 User is offline   E-DOG 

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Posted 09 February 2010 - 11:12 PM

Sounds like you're more concerned with your inability to control your friend than finding out if there is in fact some kinda cure on the horizon.
Yes your friend is obdurate. She's also ignorant about SCI's. But it does show that she cares about you. Have a little more patience and sit her ass down
and have a lil' chit chat. Let her know you love her concern, then give her a little education on spinal cord injury. Explain that nerves don't regenerate like wounded skin or bone. Tell her how much this idiocy is dragging your emotions thru the mud.

When a cure does come about I'm sure you're gonna want to get in on it, no? Let her know it. Tell her you'd like to walk again just as bad as she wants it.
Look her right in the eyes and tell her "hey, you think I wanna be in this frigging chair?" "If there was a cure I'd be the first in line, bonehead!"
"Now calm the f*@k down and learn to accept my plight!" "Dang bone, I'm dealing with this better than you are, and they're my legs!"

E-dog
when it absolutely, positively, has to be destroyed overnight, call the Marines.

I will nevah, EVAH take a pinch from a greasy muddahf*@kah like you!

How 'bout if I spell it out for ya. D-I-L-L-I-G-A-F
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#4 User is offline   gordonr 

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Posted 10 February 2010 - 01:42 AM

View Postsciiaf, on Feb 8 2010, 10:58 PM, said:

My QUESTION is, do any of you know of a reliable, legitimate, science/medical based authority on finding a cure for SCI?


Sure.

Michael J. Fox, Whoopey Goldberg and Nancy Reagan.

I'm quite sure they all have High School Diplomas.


Come to think of it, I do remember getting attention from one or two New Age females who were just as hot as they were ignorant.

Very frustrating.

Because despite what the Dog said (and he is entirely right about this), some very intense and earnest ladies simply WILL not accept the notion that a good massage and a couple of needles in your ass won't cure cancer, let alone SCI.

However, you COULD just play along for the sex, right?

In my case, I was on vacation in a house in California where there were three such illuminated ladies, and they took turns giving me extremely detailed massages for several days, until they got bored with the project.

At that point I tried to keep the ball rolling by telling the cutest one that I found the whole idea so interesting that I would like to learn to do massages by practicing on her.

Unfortunately her response was one of those pained looks that seem to say, "Hey Buddy, I might be dumb, but I 'm not THAT dumb."

After that, the interest in my cure kind of petered out. After all, a week IS a long time to wait for a miracle, I guess.

But we did have some cool false alarms, because every time I had a spasm they thought we were on the edge of a breakthrough.

Anyway, try Dog's advice. You might be able to get through to her. But if she is in that hardcore birdbrain group who believe that Western Medicine is nothing but a conspiracy to hide Truth, then there is no solution.

Best,

Gordon
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#5 User is offline   BillS 

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Posted 10 February 2010 - 02:55 AM

My best source for a reputable cure is my own eyesight. I'll believe it when I see it.

Until I see people I know who had SCI being cured and walking around I'll be pretty skeptical about it. Until the average SCI guy has started getting cured I will have doubts. And until the normal insurance companies/Medicare/normal hospitals start considering it a normal procedure then I'll be staying away from that "cure".
Just a regular guy making his way through life.
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#6 User is offline   topperf 

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Posted 10 February 2010 - 11:38 AM

- I go here: http://sci.rutgers.e...isplay.php?f=32 mind you, stay in the cur section and come here for great company, well, that's what I do.
Smile! See me:)
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#7 User is offline   Tetracyclone 

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Posted 10 February 2010 - 02:58 PM

Topperf-
Thanks for the link to the cure thread on Curecare. That thread easily holds the best and most concise info I've seen concerning research and funding. It makes me realize I have failed to search that site adequately.

This post has been edited by Tetracyclone: 10 February 2010 - 03:01 PM

Look! It's a snail! It's a sloth! Able to creep short distances before lunch!
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