8 replies to this topic

[JimG]

I have fasiculations primarily in my arms, which combined with progressive paralysis last year led several doctors to misdiagnose me with ALS.

They're worse after a hard workout/PT session.

Has anyone else experienced this?

[pinkcloud]

Hi, I am t7/8. My spinal cord injury was caused by disc compression that was pushing 3/4 onto my spinal cord. I lived with extreme pain and neurological symptoms for two years before my gp sent me for an mri scan which showed the disc bulge. I was getting the fascilations in my eyes, face and all over my body. Since the discectomy these have eased a lot and only come on when I have done too much. They are horrible and I do feel for you. Whenever I get them now I just rest - I use them as a warning sign I have overdone things a bit

[rue2you]

Same for me Jim. I get them in my arms, hands and face. I used to get them in my legs too but now I can't feel them I guess or they have stopped there. They are worse when I am tired also.

[Tetracyclone]

Wikipedia says magnesium might help a bit.

[Soryfam]

JimG, on 16 February 2010 - 03:07 AM, said:

I have fasiculations primarily in my arms, which combined with progressive paralysis last year led several doctors to misdiagnose me with ALS.

They're worse after a hard workout/PT session.

Has anyone else experienced this?

I get spasms in my legs at the end of the day. Some days are worse than others. Not sure what is causing them, but if they keep getting worse I'll have it checked out.

Sandy

[mellowgator]

i also went to wikipedia and they listed these as possible causes:

Conditions
The origin of most cases is at present unknown and usually inconclusive, has therefore been given the title benign fasciculation syndrome.[1]
Neuromyotonia/Isaacs syndrome
Lower motor neuron lesion
Werdnig-Hoffman disease
Amyotrophic lateral sclerosis (Very Rare)
Kennedy disease
Organophosphate poisoning
Benzodiazepine withdrawal
Magnesium deficiency (which can be caused by stress)
Myalgic Encephalomyelitis
Dehydration
Fatigue
Lyme Disease
Myasthenia Gravis
Rabies

i hope none of you have rabies or lyme disease. maybe its the lower motor neuron lesion. but what does wiki know?


mellowgator

[chrisarnold6]

Just been to the same source as you Mellogator. I wasn't quite sure what a fasiculation was. I realise I've had these, (I called them twitches) for years when in good health. Post injury I occasionally get them. I usually found tiredness, or post heavy use of the muscle was responsible. Magnesium deficiency may be corrected by eating greens. I think for anybody who has only had this post injury needs to have it checked out medically. In most cases, the cause will not be sinister.

Chris

[JimG]

Thanks everyone.

I'd given up on this question, b/c I thought nobody else had them is why nobody had responded in months.

You make me feel better.

Yes.....I notice them more when I'm fatigued/tired, AND stressed also.

When I've done the anabolic steroid cycles, it's like my biceps are dancing.

My wife doesn't want me to hug on her as we're going to sleep, b/c it disturbs her too much.

[pinkcloud]

JimG, on 14 July 2010 - 02:45 AM, said:

Thanks everyone.

I'd given up on this question, b/c I thought nobody else had them is why nobody had responded in months.

You make me feel better.

Yes.....I notice them more when I'm fatigued/tired, AND stressed also.

When I've done the anabolic steroid cycles, it's like my biceps are dancing.

My wife doesn't want me to hug on her as we're going to sleep, b/c it disturbs her too much.

Hi JimG

I have just been told that a botox injection may help.

They are really beginning to get in the way of my rehabilitation - I hope to see a trusted consultant in pain management soon to see if he can help.

If it does I'll keep you posted, and then hopefully you can get lovely cuddles at night again from your wife without the dreaded fascilations getting in the way