9 replies to this topic

[maisy1996]

for like 3 weeks now i have just been so upset for no real reasson, i just seem to be crying about things to do with my injury that i normally just get on with. i just dont want to do anything at all, i dont even want to make the effort to get out of bed and deal with everything that comes, and i swear im getting weaker as time goes by and not stronger :s. i have just been finding getting out the house and going to school way to much to deal with ( im not like trying to feel sorry for my self or anything ha ). my spasms have been getting worse and worse,i wake up at least 3 times during the night becuase of them. im already on 80 mg Baclofen and it dosnt seem to be doing anything no more. i think this may be a reason for my lack of motivation. i dont know if my un motivated mode is just me being childish or what. anything that would maybe get me back on track or any ideas for what to do about keep waking up during the night becuase of spasms?

[Soryfam]

It sounds to me like you need to have a good talk with your doctor. Having spasms wake you up so much makes everything else seem worse. No sleep=bad moods. It also sounds like you have a bit of depressions, which is totally understandable. Some meds might be in order, and going to a good therapist can really help. I used to go through days of the crying at the drop of a pin also. I still do, but not nearly as often. When I do I feel very fragile/breakable, and like I'm falling down a dark, deep pit with no end. Getting help for this will make everything else in your life seem better. I know it doesn't seem like it now, but it will get better.

Good wishes to you.

Sandy

[maisy1996]

Soryfam, on Feb 19 2010, 10:52 PM, said:

It sounds to me like you need to have a good talk with your doctor. Having spasms wake you up so much makes everything else seem worse. No sleep=bad moods. It also sounds like you have a bit of depressions, which is totally understandable. Some meds might be in order, and going to a good therapist can really help. I used to go through days of the crying at the drop of a pin also. I still do, but not nearly as often. When I do I feel very fragile/breakable, and like I'm falling down a dark, deep pit with no end. Getting help for this will make everything else in your life seem better. I know it doesn't seem like it now, but it will get better.

Good wishes to you.

Sandy

about the whole "depression" thing, i didnt think people my age (14) could get depression. little do i know haha : )

[guido]

Hi Maisy - sent you a PM.

Guido

[Tetracyclone]

maisey,

go to a Doctor and get a better medicine mix, if possible. When my spasticity is bad, really bad, I cannot do much. The body is "anxious" and makes the mind feel the same way. When things are bad for me I use Clonazepam (Klonopin, Rivotril) as a sleep aid. it has a synergistic effect with baclofen and gabapentin which works well for me to let me sleep for longer periods. It is an addictive drug, first given to me in the hospital at 1mg. I took several months last year to wean myself off of it. Now I just use 1/4 of a tab ( 1/4 mg) from time to time, being careful not to use it every night.

I wake up 3 or 4 times a night with spasms. Usually I get up and urinate and I can go back to sleep. Sometimes changing position is enough. I figure that if I am resting that is as good as sleeping. When my body goes too crazy getting up and moving around breaks things up and I go back to bed.

These conditions are damnably depressing sometimes, so try to get help out of a downward spiral. Have you tried all of the other drugs that help with spasms? If not, check the thread here:

http://www.apparelyz...mp;#entry145062

hope it helps.

Does exercise help relieve your spasms?

[maisy1996]

Tetracyclone, on Feb 19 2010, 11:10 PM, said:

maisey,

go to a Doctor and get a better medicine mix, if possible. When my spasticity is bad, really bad, I cannot do much. The body is "anxious" and makes the mind feel the same way. When things are bad for me I use Clonazepam (Klonopin, Rivotril) as a sleep aid. it has a synergistic effect with baclofen and gabapentin which works well for me to let me sleep for longer periods. It is an addictive drug, first given to me in the hospital at 1mg. I took several months last year to wean myself off of it. Now I just use 1/4 of a tab ( 1/4 mg) from time to time, being careful not to use it every night.

I wake up 3 or 4 times a night with spasms. Usually I get up and urinate and I can go back to sleep. Sometimes changing position is enough. I figure that if I am resting that is as good as sleeping. When my body goes too crazy getting up and moving around breaks things up and I go back to bed.

These conditions are damnably depressing sometimes, so try to get help out of a downward spiral. Have you tried all of the other drugs that help with spasms? If not, check the thread here:

http://www.apparelyz...mp;#entry145062

hope it helps.

Does exercise help relieve your spasms?

sometimes exercise does help and then other times its doesnt help one little bit. i will check the other thread out thanks : )

[Avocado Baby]

Hi Maisy,

I'm sorry you're feeling this way. It's horrible. I think you've had some great advice already. Definitely go to your GP. I hope you feel better soon

[maisy1996]

Avocado Baby, on Feb 20 2010, 12:08 AM, said:

Hi Maisy,

I'm sorry you're feeling this way. It's horrible. I think you've had some great advice already. Definitely go to your GP. I hope you feel better soon

yeah sure will. thank youu : )

[LuckyinKentucky]

I also have heard that inactivity can be related to increased muscle spasms.

[CrazyLucky]

LuckyinKentucky, on Feb 19 2010, 08:40 PM, said:

I also have heard that inactivity can be related to increased muscle spasms.

Definitely truth in that...at least in my case. My docs have always preached the importance of maintaining muscle tone, and if I don't maintain physical exercise, everything goes South in a hurry. Great advice already, though I will add that when I was on meds (Lyrica and Cymbalta), while the physical symptoms were better and even the psychological issues (depression/anxiety related to my "situation") got better. However, over time it became really confusing as to what was real and what was meds...my head just felt messed up and not right. I've always had some issues with depression, but this was much different. I went off my meds, and the physical symptoms got worse, but my head feels better. The possibility of meds causing mood changes over time is definitely something you should discuss with your medical team as a different medication may give you the physical benefits without causing any mental health issues. Make sure to discuss medicine changes with your docs...you may read posts about people (including myself) taking themselves off their meds. Given your age, definitely do not make these decisions without consent of a medical professional. I say this not because of your age maturity-wise...you seem to have a good head on your shoulders...but more your physiologic age...med changes and the like can effect young ones a lot greater than us slightly more seasoned folk, and shouldn't be taken lightly...that goes for all you younings!! What medications work and how they work seem to be very individualized.

I am not sure what your level of function is, but you may want to consider stretching and range of motion exercises (yoga-type things). Even if you do not have the function, having a family member do passive range of motion exercises (moving and stretching your limbs/muscles for you) may be of benefit. I have found that working on my flexibility, while diminished on one side, has been very helpful in reducing spasms and stiffness that, as mentioned, often lead to bad moods:)

Take care of yourself and good luck.