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Today Is My 1 Year Anniversary


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#1 rue2you

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Posted 13 March 2010 - 03:33 AM

Quick edit: I wrote this for my friends and family.

I love dark chocolate. I love the sweet taste with that subtle touch of bitter. It makes a most pleasant treat. That is sort of how I feel about this date. There have been so many things that have been sweet and precious to me this past year since becoming paralyzed, but it still has the slightly bitter side that can't be denied.

This week I have been reflecting on a lot of things in my mind and you will have to forgive me if I sound like I am rambling in this note. Jimmy asked me today "Does it seem like it has been one year?" My answer - "It depends on the day you ask me that!" Sometimes, it seems like this year has passed so quickly and so many changes! Other times though, like when I am frustrated because I can't quite reach that crumb I am trying to sweep up, it seems like it has been 100 years!

I have been thinking about where I was last year at this time. I was 5 months pregnant. I had already been seeing doctors and we were trying to figure out what in the world was going on with me. I became paralyzed overnight and we were so scared not knowing what it meant for me, for our baby, for our family's future, would the paralysis keep going up, would I die, how do you have a baby, how do you take care of a baby, how do you take care of my other children and be the wife and mother I need to be. There were so many unanswered questions and fears.

The questions and fears were on our minds, but then you had daily life to try to live. I had to relearn everything it seemed. Things like getting dressed, going to the restroom, getting in your chair, getting into a vehicle, maneuvering your home, your kitchen, and your chores. So many of these things that you learned in toddlerhood!! You feel so dependent - like you have become a baby all over again with everyone helping you on everything. I thought my driving days were over. I did not know people could drive and be paralyzed!! There was so much I didn't know! These were all bitter things and things like this still pop up and you have your "growling" moments but they are not as often as they used to be!

When I look back now, I see how much I have learned!! I remember when I first would go out, maybe to Wal-Mart or something, and it would be time for me to get out of the chair and into the van or vice versa. I would look all around and make sure nobody was watching. If someone was walking through the parking lot, I would just sit and wait. Jimmy would say "Get in" and I would say "Wait a minute". He would say "Why?" I would say, "BECAUSE!! There are people walking by - just wait a minute!!!!" Of course, he would wait patiently and never gripe while I sat and waited for the parking lot to clear. I was so self-conscious about it! Now, I am like yelling across the parking lot, "Hey, everybody!! Look what this cool crip can do!! Bet you never knew that we could get in and out of cars all by ourselves did you?":Birthday_Balloons: I really don't yell that but it doesn't bother me at all and actually, I never even think about it. Well...there was a time a couple of weeks ago that the old man parked next to me in a handicap spot and I was putting my chair together to get out and go in the store. He got out of his truck, and wobbled very precariously over to me and said "Is there something I can do to help you?" I thought, "Yes, please go very carefully back to your vehicle and sit down before you fall and then we will have some real problems!!" I actually just smiled, thanked him and told him that I had it all under control. It was sweet to know that chivalry had not died! But, I did think about it that day that people do watch but I had forgotten that.

The daily part of life - getting ready every day, getting chores done, cooking and cleaning, taking care of the baby (who survived all of this just fine), taking care of the other children, still loving my hubby and trying every day to somehow compensate for all he does for me - this is all just our "normal" life now. We were at a park today with the children. The sidewalks did not go all the way to the play area and the whole area was covered in thick mulch (which is a major non-access substance for wheelers) and I was watching Jimmy push our children on the swing set. They were all squealing and giggling with joy while they yelled out "Watch Mommy!!" I had a twinge of sadness hit me, that I wanted to be out there playing with them. I wanted to push them again. But then I stopped, and thought, "Alicia, listen. That means life is normal. You children are happy. They are fine. You are fine. Life is good." And life is good.

I have met fabulous women who are in chairs and have been a wealth of information and encouragement to me. We have more answers about our future (well, as much as anyone else can know), the doctors don't think this will progress, they think I may recover some, therapy is going good, I have learned more about the human body and the spine and paralysis and trust me - it is complicated!! I feel much more educated and knowledge is powerful at times to controlling your fears.

So, on this date, a date that is a marker of something that has drastically changed my life, I hope that I will learn to savor this date - not dread it. To remember, that yes, life has changed but I have changed. I have grown, I have learned, and I have been enriched by those around me. My priorities have changed, new goals have been made, and I look forward to a bright and happy future. My heart has been reshaped for those with disabilities and new doors have opened for me because of mine.

God is good. He truly can take a catastrophe and use it in your life. I am looking forward to another year!!

Edited by rue2you, 13 March 2010 - 03:35 AM.

"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
www.aliciareagan.com

#2 Wheelsonfire

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Posted 13 March 2010 - 09:31 PM

Alicia,

Compelling insight.

Your post warrants a clutter free comment list, yet compulsion drives me to acknowledge its effect.

In an attempt to filter through the memories of the past 18 years of paraplegia, I find myself at a loss.

I seem to have mislaid, no, I'll even go as far as stating, eradicating the process of thought you have so joyfully utilised in your post.

Don't get me wrong, I too look at the positives, but where there are positives, negatives are fused off the back of them.

I've spent years ostracising myself, gym/computers/gym/computers/gym, social skills diminished.
Ignorant to onlookers, ignorant to weaknesses of other SCI'S who I have encountered and dismissed them as having a weak mentality.

In no way considering the road taken was by choice, it seemed the interaction with lumps of metal and steel box's filled with components took precedent over experiencing the joys that life has to offer.

My time has been spent trying to prove myself, to no one else but me, the hardest taskmaster there is.
I left school at the age of 14 to start a trade as a grease monkey, self educated in all aspects of my knowledge base since hitting the chair at the age of 20. Your post, like many others have given me food for thought.

I think it is time for my postings to cease and sit back and experience what it is like to truly live with a disability, how hardships are overcome with the help of others, to prepare myself for what lays ahead, more importantly, to absorb characteristics of individuals here which will allow my personality to evolve, to better myself.

Thank you.

May the coming years bring joy to you Alicia and your family.

Kind regards

John
Seemingly, "support" is very "serious" and you should never have a thought of your own..... My Blog

#3 greybeard

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Posted 13 March 2010 - 10:52 PM

Rue, as usual your ability to use language puts me to shame. That was a great read. Your family are blessed to have you around. More to the point, so are we.

Carpe Diem


#4 goldnucs

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Posted 13 March 2010 - 11:15 PM

After 31 yrs, 11 mos and 2 wks, all I can tell you is, yeah it sucks but it's not as bad as I thought it would be and that it beats the alternative, i.e: dead.

Rick Goldstein
GO! Mobility Solutions
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#5 dexter

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Posted 13 March 2010 - 11:19 PM

Every year I throw a "celebrating life party" on the anniversary day of my accident. I surround myself with all my friends and family. It helps out a lot plus it's a good excuse to get drunk and throw a party.

Here is a picture from last years.

Posted Image

Edited by dexter, 13 March 2010 - 11:27 PM.


#6 DannyR

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Posted 13 March 2010 - 11:30 PM

Sometimes a person just needs something to make him feel better on "those bad days" now I know where to look.

#7 edlee

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Posted 13 March 2010 - 11:31 PM

I seldom read the anniversary posts.. but I saw who posted and it,, so decided I'd try this one.

Thank you Rue,, I wasn't disappointed.

It's said that living well is the best revenge,,, and it seems you are taking revenge on whatever it was that put you in the chair. Well done.
ed

#8 norma

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Posted 14 March 2010 - 12:08 AM

Alicia- thanks for sharing your story, always does the soul good to hear positive stories.

Wheels on Fire- Maybe I had you all wrong.... you do have a heart.

Dexter- Great way to celebrate!!! Family and friends, thats what gets us through....

#9 Travelling Blackbird

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Posted 14 March 2010 - 12:42 AM

Alicia,
Thank you for sharing that story. You have a way with words, and you are a strong and inspirational person. Here's to life!

And this:
"Hey, everybody!! Look what this cool crip can do!! Bet you never knew that we could get in and out of cars all by ourselves did you?"
made me laugh so hard that I'm afraid I woke my neighbour.

All the best,
Derek.

#10 rue2you

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Posted 14 March 2010 - 01:07 AM

Wow everyone! Thank you so much for all your comments.

You know, I am drawn back to this forum over and over because of all of our diversities, yet what we all share in common. We have so much to learn from one another and I have been blessed to have known each of you.

Love you all!!
"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
www.aliciareagan.com

#11 mellowgator

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Posted 14 March 2010 - 04:02 AM

View Postdexter, on Mar 14 2010, 12:19 AM, said:

Every year I throw a "celebrating life party" on the anniversary day of my accident. I surround myself with all my friends and family. It helps out a lot plus it's a good excuse to get drunk and throw a party.

Here is a picture from last years.

Posted Image



dexter,

that is the greatest thing i've ever seen. you must be awesome to have so many friends. that's a party i'd like to go to!
hi fellow gimps! i'm a c 6/7 quad and have been injured since 1986. i was in a roll over hydroplane accident and it took hours for the paramedics to get me out of the car in the pouring rain. that definately wasn't my day. but alas life goes on!

#12 Texas Angel Ang

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Posted 14 March 2010 - 11:46 PM

Sorry missed out on congratulating you for making it through your first year... I was nowhere near how positive you are when my first anniversary ROLLED AROUND!

I love reading your posts... :) life is good and will continue to get better and you know where to go when you're having one of those days!
"Become your own roll model, your wheelchair is just another accessory in life" Me




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