new - Quadriplegic & Paraplegic Spinal Cord Injuries

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#1 novice

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Post icon Posted 28 March 2006 - 02:26 PM

Hi everyone , my husband sustained a c5 injuy july05, resulting in incomplete tetraplegia. Since his discharge from hospital end of october, he has improved a lot with dertermination and the help of physio.He now has a fair grip in his right hand and the left is not far behind, his walking is a bit robotic , but he can potter around the house most times without his stick.Please if there is anyone out there who has a similar injury, could they advise me on wether or not they are experiencing much pain .My husband wakes up every morning stiff in his back,chest and arms despite taking muscle relaxants, increasing the dosage hasn,t helped.We need to know if this will improve in time. Hoping there is someone out there. Annie :cheers:

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#2 Gary Anderson

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Joined: 27-March 06
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Country:Glasgow, Scotland
Spinal Injury Level / Relationship:incomplete cauda equina

Posted 28 March 2006 - 03:39 PM

Hi Annie

My mate in USA is a C5 incomplete quad. He can also move around with walking sticks. Yes! He does experience pain. I am not sure if the pain is coming from where his injury is or from the effort of walking. I think it is just a fact of life that pain comes with the injury. However, I shall email my mate and ask him what he gets and see if he can come up with any suggestions for you.

REgards.

Gary

ALWAYS REMEMBER - The darkest hour is only 60 minutes long and what won't kill you will make you stronger.

cauda equina lesion resulting in lack of ability to walk. Spinal cord undamaged and intact. NOW ABLE TO HOBBLE AROUND ON 2 STICKS AFTER LOADS OF PHYSIO.

#3 gazrobsuk

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Country:Wiltshire, UK

Posted 28 March 2006 - 04:33 PM

Hi Annie,

Well I'm 5 yrs (nearly 6) post injury & I can walk with one stick etc but I suffer chronic pain. The more I do the worse it is but because I push myself each week to try & beat last weeks targets I suffer but of course I can do more. My pain mostly is around the neck/shoulders/arms & also I have chronic pins/needles below the waist.

I just figured it's due to my incompleteness & it goes with the territory & I wouldn't swap for someone with no pain but not much function. I've tried various painkillers so I guess keep experimenting. My full story is on my web :lol:

novice, on Mar 28 2006, 02:26 PM, said:

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Incomplete C3-4

Gaz

http://www.gazrobs.freeuk.com

#4 novice

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Posted 28 March 2006 - 05:14 PM

Hi Gary thanks for your reply,I had actually been on your web site before and read your story so it was good to here from you especially as your injury was a few years agoits an isite into what we may expect. Keep moving :cheers:

Annie

#5 onion

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Posted 07 April 2006 - 03:46 AM

I find the stiffness, pain, and inability to move are because he's been in bed toooooo long. And please believe me this is not your fault. The lack of sleep over a long period of time is devastating. Every hour I was woken because of the need to pee. It was sooo strong and he was sooo positive, this time things would match the desire. But there was also this breathing thing and the inability to cough. If snoring occured i was on total alert. The circles underneath my eyes are still black. I tuck him in two hours, maybe more, before him. And I spend my time here. And eventualy i'll go to bed and i'll not sleep, late in the morning, i'll start moving the dead arms. and get the pee bottle, and wipe the crusted eyes And all this time, he went to bed at 9, and looks forward to the new day, i don't want to get up ever but i do.