6 replies to this topic

[Melissa M]

Hi,

I have hard nerve pain after having 2 ADR operations and a fusion operation.
Could you please help me find a specilist doctor to treat my nerve pain (worldwide) ?

More details about my story:

http://webix.name/melisa/

Regards,
Melissa

[BalancedInteger]

I'm sorry to hear your story. I wish that I could offer you some suggestions about this, but I'm honestly at a loss. All I can say is that I'll be praying that you find some relief soon.

[Mary-Anne]

While I do not have any personal experience with them,
the Mayo Clinic is usually well thought of, I hear.
http://www.mayoclini...n-medicine-rst/
Maybe they can help you?

Mary-Anne

[lavenderthistle]

Really hate to be the harbinger of doom....but they should have warned you that fusion rarely (if ever) relieves the pain and quite often makes it worse. They do fusions mainly to preserve function or create stability not to relieve pain. I sent a link to a forum with lots of chronic neck pain info that's pretty fusion and ADR specific. Sorry you're stuck with the same nasty pain path but at least you aren't alone if that helps???

[pinkcloud]

Hi again melissa

Lavenderthistle has hit the nail on the head. I meself am a little concerned for you, as you write 'anywhere, any cost'..kind of impression to me. If you want answers you want to hear, then you will find many..except these answers stop coming once your pockets are drained.

If I may explain...if there is a cure for nerve pain, go and ask very very rich sci peeps, maybe look at christopher reeves for information,or a famous diabetic, famous carpal tennel syndrome sufferer - any other nerve pain disorder. If they have not found a cure, I doubt anyone will. If they do, it will be published.If simon this website creator or any members found help to the level to wish for, it would be documented.

Drs wont give you a diagnosis of 'you will never ever get better (unless they have solid evidence or truly believe its not possile, i proved them wrong and glad I did, not angry at them, gratful for their honesty)...thats the job of witch doctors who tell their patients doomful messages, if they believe it enough they die. Maybe not be the condition - maybe heat attack or other form) Doctors rarely can cure damage that already been done - they do however help the body to heal itself.

You may hate me for telling you this, thats ok, I would rather you hate me than you screw your life up - you got what you got - preserve this....before thats goes too. Because it can - especially if you add depression, anxiety to this too. It takes time...to heal physically and emotionally.

Your money if you have lots would be better invested in genuine scientists. And making your life now as comfortable as can be..your asking for a time machine or ability to cure world pain, or even finding a surgeon who make make everything ok..its not going to happen yet...it may in future. Theres hope.

If there a cure for nerve pain headaches, if a infected tooth can be removed that stops nerve pain, maybe it will happen for sci too one day, yet its not going to be today, tomorrow, next week, next year. live for the minute your in...the next second could be a whole lot worse.As you have been unlucky enough to have found.

Edited by pinkcloud, 25 June 2011 - 10:27 AM.

[esslouis]

Hi i can't help with finding a pain specalist but
I agree with everything pinkcloud said. If peeps had found a cure for nerve pain it would be great but it hasn't happened yet and not for sometime me thinks. I do have severe nerve pain and i take the drugs you describe esp the opiate+nalaxone. It works for me and yes it is used for patients who are dying but if it helps why not. It took me a long time to get used to it and for months i felt like a zombie but that does lift once the ole bod gets used to it. Hope you find a way to get the nerve pain down and in control love esslouis

[snider7779]

Brigham and Womens
Craig hospital
Shepard center
University of chicago