22 replies to this topic

[Mary-Anne]

Gooserider says his butt sweats a lot.
He also experiences farts which feel as if they are not only gas.
Lots of liquid vapor.
This is not great for the pressure sore we are working on dealing with.
It is summer here.
Are there any adult diapers which breathe better in hot weather
and keep the butt cooler and dryer?
We are using disposables but would consider something we wash instead.

Thanks.

[mellowgator]

mary-anne,

i'm guessing from your post that gooserider hasn't gotten his bm's regular yet and is still having accidents. i would think wearing an adult diaper would be counterproductive to healing his wound. the only people that i'm aware of who wear adult diapers 24/7 are alheizmer patients.
the best thing for gooserider would be not to wear the diapers in order to let the air heal his wound. it took me a few months to get regular with my program. can't you just place a blue pad under his bedding and pillowcase over his cushion in case of an accident. i don't think diapers are the way to go especially with a wound.

are there any other paras out there who wear diapers?

mellowgator

[Smileyblue]

I'm wearing diapers.. Mostly because of the chronic bladder infections that cause me accidents, but my bowel routine is not 100% established yet either..

I also found there are differences in the quality of diapers.. I'm currently using Molicare Super (the purple one).. So far they've been the best..

Good luck on finding something that works him.. ;-)

[qbounce]

Diapers might not be the best for UTI's either, as any feces trapped inside could easily get in the urethra.

Okay, so you say Gooserider has a little extra in his farts, right? My experience with suppositories is that they always have a lot of residual discharge afterwards. Magic Bullet comes out the quickest, and when the bowel program is finished, I recommend a little squeeze in the shower to get the rest of the clear residual junk out, so he won't have to worry about it the next day.

I've personally switched to ENEMEEZ, and my 2 1/2 hour BP has gone down to about 45 minutes, and there is no more residual goo to worry about, ever.

[mellowgator]

qbounce, on Jun 28 2010, 06:38 PM, said:

Diapers might not be the best for UTI's either, as any feces trapped inside could easily get in the urethra.

Okay, so you say Gooserider has a little extra in his farts, right? My experience with suppositories is that they always have a lot of residual discharge afterwards. Magic Bullet comes out the quickest, and when the bowel program is finished, I recommend a little squeeze in the shower to get the rest of the clear residual junk out, so he won't have to worry about it the next day.

I've personally switched to ENEMEEZ, and my 2 1/2 hour BP has gone down to about 45 minutes, and there is no more residual goo to worry about, ever.

i love, love, love enemeez. this product has changed my life! don't want to jinx myself but i haven't had an accident in years. no i'm not a paid spokesperson. i used to spend half a day doing my program with the silver supposortory and then the 2nd round would come and i'd be a mess. there is hope and a way not to wear diapers. i on occasion wear a depends pad when i'm skiing or if i'm someplace i can't easily get to the toilet to cath.

mellowgator

[Tinbasher]

I dont know any SCis that use adult diapers as their frontline protection. Some do when they are having the runs or a uti but I would say that persevereing with the bowel programme is a better way to go. It certainly cannot be good for his skin and maybe he should be staying off his butt in any case.

Also the wet farts might ironically be a sign of constipation where the liquid bypasses the solid faeces.

Edited by Tinbasher, 28 June 2010 - 09:15 PM.

[airart1]

oh enemeez are the best thing out there, i only have to do the depends for a little leakage from my urinary, i hardly ever, maybe 1 a year as far as any accidents from the back side! i use miralax for stool softening, i got it down to a science and just about normal, its a blessing.........i know several that wear diapers and they have infections or fight sores all the time, i believe its the heat as much as anything......

[edlee]

I was forced to wear them for quite a while, due to my inability to regulate my bowels. It wasn't until I was able to obtain a peristeen system that I got straightened out. I hate to think what I wilol do when I run out of supplies as they aren't available here, in the states.

Those who have developed an acceptable BP are, in my opinion, very fortunate. As for infection,,, somehow I can't see how crapping in ones pants has any advantage over crapping in ones diaper.

I had to use diapers for a few days last week due to an episode of exploding butthole. Seemed wise to me.

As for briefs that breathe better,,, I think that would be self defeating. The idea of letting it air out for a while after cleanups sounds like a good one,to me.
ed

[mellowgator]

edlee, on Jun 29 2010, 04:29 AM, said:

I was forced to wear them for quite a while, due to my inability to regulate my bowels. It wasn't until I was able to obtain a peristeen system that I got straightened out. I hate to think what I wilol do when I run out of supplies as they aren't available here, in the states.

Those who have developed an acceptable BP are, in my opinion, very fortunate. As for infection,,, somehow I can't see how crapping in ones pants has any advantage over crapping in ones diaper.

I had to use diapers for a few days last week due to an episode of exploding butthole. Seemed wise to me.

As for briefs that breathe better,,, I think that would be self defeating. The idea of letting it air out for a while after cleanups sounds like a good one,to me.
ed

hi ed,

the advantage of crapping in your pants versus a diaper is that a diaper is covered in plastic and no air can get to your bottom. where if you are in your clothes you have air flow. once the bm happens hopefully it gets cleaned quickly so not to add to skin issues.

when i have diareah i take imodium and i'm good to go,. i don't know what a peristeen system is but i'll google it.

mellowgator

Edited by mellowgator, 29 June 2010 - 05:27 AM.

[Tetracyclone]

Just to balance the scales a bit I have tried enemeez and it does not work as well for me. It requires side lying to work well, and then it is difficult to reach the toilet quickly enough. Sometimes I fail to empty the tube successfully. If feces are higher than the sigmoid colon it doesn't help me at all, but I cannot always tell when I am fully "ready". Finally, enemeez leaves my rectum even more flaccid and puffy feeling than the magic bullet. The enemeez saleslady was lovely, but I'm back on the bullet, which i use in combination with a lot of intestinal massage.

But holy cr*p! Whatever we can get to work for us.

[KylezBaby]

I'm currenlty using Dulcolax with my honey...and O M G I hate them..they take FOREVER and the residue is something I'm very familiar with. I want to try this magic bullet or enemeez...but my question is how much are these and where can I get them??

[mellowgator]

Tetracyclone, on Jun 29 2010, 01:04 PM, said:

Just to balance the scales a bit I have tried enemeez and it does not work as well for me. It requires side lying to work well, and then it is difficult to reach the toilet quickly enough. Sometimes I fail to empty the tube successfully. If feces are higher than the sigmoid colon it doesn't help me at all, but I cannot always tell when I am fully "ready". Finally, enemeez leaves my rectum even more flaccid and puffy feeling than the magic bullet. The enemeez saleslady was lovely, but I'm back on the bullet, which i use in combination with a lot of intestinal massage.

But holy cr*p! Whatever we can get to work for us.

hi tetra,

why do you say it requires side lying.?i transfer to my shower chair and then dilly over the toilet get down all the bowel i can and then insert the ampule. i then quickly roll into the shower wash my hair then go back over the toilet and redilly and the results come down. you are right sometimes it works really fast and i'm racing back to the toilet. but i've used them so long that i usually make it back to the toilet to finish.

you are the first one i've known who doesn't have good results. but we are all different.

mellowgator

[qbounce]

KylezBaby, on Jun 29 2010, 08:26 AM, said:

I'm currenlty using Dulcolax with my honey...and O M G I hate them..they take FOREVER and the residue is something I'm very familiar with. I want to try this magic bullet or enemeez...but my question is how much are these and where can I get them??

Magic Bullets, get them online, practically anywhere. I believe they're even cheaper than Dulcolax, in the neighborhood of $50.00 for a box of one hundred.

ENEMEEZ are much more expensive. $340.00 for a years supply of 180. I do my program every other day. But the time I've shaved off of sitting on the commode chair makes it worth my money to use the ENEMEEZ.

And, as I said the Magic Bullets have the residual gunk also.

[airart1]

medicare won't pay for the enemeez or magic bullets Q, i figured the bullets would at least be covered.....

[Mary-Anne]

This is what peristeen is
http://www.coloplast.../peristeen.aspx
I would think a hand held shower could do something similar.
Gooserider has not tried it and does not seem to want to try it.
I have family in the UK so we could likely get supplies if needed.

I figure there is a market opportunity for someone to make underwear similar to
the Dri Release listed here
http://decentexposur...m/fabrics.shtml
but for incontinent people.
I am not sure how this should work,
but it could be a good thing.

[airart1]

its a warm water enema! am i not right...........

[tyvin]

There are many people besides Alzheimer's patients that wear adult briefs.

What you could possibly look at is a good barrier cream as well. The cloth diapers aren't as hot (the disposables that feel like cloth on the outside instead of plastic).

And if he has a decubitus then open air is the best thing besides prophylactic duoderm.

Even wearing adult briefs he should be changing it whenever it becomes wet to avoid problems with rash and open sores. I know sometimes men can put a poise pad in the brief if they are continuous leakers. Can't he do a cath?

Don't forget a good powder as well. And as far as real cloth underwear that is enhanced for the incontinent that involves a lot of washing and they don't hold up well that I've seen. Perhaps that and a poise pad. The pads come in all sizes and ability to hold liquid so wearing them together might work,

[Mary-Anne]

Thanks for the feedback.
We rub vitamin A/D cream on his butt twice a day.
Is that a barrier cream?
He does a straight cath.
He is treating a UTI with antibiotics,
and is either sweating or leaking a little.
We do not use baby powder and are not sure
whether it would help and what to do with it.
He uses Enemeez for his BP and likes it.

Edited by Mary-Anne, 01 July 2010 - 08:08 PM.

[qbounce]

Wound care doctors have told me that powder isn't a good idea, as it actually causes friction to the skin.

And, from others who've taken and like ENEMEEZ, they liked Peristeen because it's more natural, and just as fast if not faster than ENEMEEZ.

btw, Medicare doesn't cover ANY toiletry needs.

Edited by qbounce, 01 July 2010 - 11:21 PM.

[tyvin]

Baby powder is cornstarch with bells and whistles. Powder is a great tool for the butt to help with moisture (it's when people get over zealous with it then it can become a problem but with my experience it's a great tool (lightly)). Especially if he is complaining that it's moist then use the powder. The cream you use is not a barrier cream per se. Do a search on barrier creams and you will find tons; everything and anything. Depending on what is in them; the intent is to form a light barrier to protect the skin from moister and the other things that plague brief wearers (lotions enriched with vitamins don't do that). But could be the reason the butt does sweat more so using a real barrier cream that would afford greater protection wouldn't be any different.

Make sure he's getting his full of fluids.

You can calculate his fluid needs by multiplying each kg of weight by 30 (that's if no infection is present). If infection is present (uti) then multiply by 35; and for fluid restricted diets such a renal failure it's 25 but in those cases it's best to have the doctor set the amount. So convert his lbs to kgs and figure out how much fluid he should be taking in.

kgs x 30 = fluid intake per day for no infection present (by 35 for uti present)
To figure his weight to kg take his weight in lbs and divide it by 2.2
The fluids are important as well as a good protein source.

Edited by tyvin, 01 July 2010 - 11:52 PM.

[tyvin]

I wanted to add that everyone has different opinions and experiences such as one person saying powder causes friction.

A good powder; and I mean a good powder, is essentially a life saver for compromised skin situations. Especially in the folds (under the breasts, a large belly, where the thigh meets the private areas) these areas that are folded onto each other by force need to be checked all the time for redness.

At the first sign of redness powder can prevent further breakdown by keeping the moisture at bay. In the past when I have worked with compromised patients it was thought to put a bactericide cream (something to kill bacteria)on. It was always slow going and many times the areas would just get worse. It wasn't until this one newly hired nurse told me to get cornstarch; that it would dry it up. At that point I was willing to listen so I requisitioned for cornstarch and I was so impressed.

After that at the first sign of redness in the folds it was a standing order to initiate the cornstarch treatment. As for me living in a hot area I always dust under the breast(this goes for the men too).And quality does matter; as some powders will use cheap ingredients whose properties are molecularly large (that's called cheap and unrefined). In powders case; you get what you pay for. You don't want to buy powder that has leaf extracts and fragrance in it. The main ingredient is cornstarch.

Perhaps the doctor who thinks powder can attribute to decubitus ulcers got his powder at gravel.com or we can throw a Freudian twist on and say his mother use to abuse him with the stuff; it's just that it's a great tool and shouldn't be discounted due to some doctors opinion

Edited by tyvin, 03 July 2010 - 08:39 PM.

[Mary-Anne]

Thanks for all the information and support.
Gooserider is working on going without the diaper when at home.
Of the ones we have tried, his favorite is Prevail
http://www.prevail.com/x91.php#
in case anyone else is facing a similar problem
and wants to know.

Mary-Anne

[mellowgator]

mary-anne,

i'm so glad to hear that goose rider is not using diapers at home. you guys are doing great!



mellowgator