Hey everybody. I was just curious as to how many people on here are like me and were born with a birth defect/disease and were not injured in an accident or something of that nature.
I am an 18 yr. old para with spinal cord atrophy (very similar to spina bifida, but not). My lesion is from T4-T10.
Hope to get to know all of you,
Carmen
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Since birth...
Started by
Carmen Elizabeth
, Apr 17 2006 06:26 PM
2 replies to this topic
Top#2
michelle06
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Posted 17 April 2006 - 08:35 PM
Hey, I'm Michelle... I don't have SCI myself but my boyfriend Josh does. He has also had a birth defect/disease.
Edited by michelle06, 17 April 2006 - 08:36 PM.
~*Michelle*~ .... "I think a hero is an ordinary individual who finds strength to presevere and endure in spite of overwhelming obstacles."...Christopher Reeve
#3
Avocado Baby
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- Country:Newbury, Berkshire. UK
- Spinal Injury Level / Relationship:T8(ish) Spina Bifida
Posted 26 May 2006 - 03:19 PM
Hi there!
I've had Spina Bifida since birth. I'm not sure at what level as I'm pretty new into looking into all this. About T-5 I reckon looking at the stuff on the site.
I've always found that having been disabled since birth, we're left to get on with it more than people who have maybe had an accident later in life. I'm not getting at anyone as I know that adapting to paralysis after having had function is extremely difficult, but I do think that consultants should be better at providing us with information.
It may just be the way I've been brought up though as my parents have always been of the opinion that ignorance is bliss. I've changed my mind though as I've been discovering more about my disability, finding reasons for it and ways in which I can help myself.
This is a fab site!!
I've had Spina Bifida since birth. I'm not sure at what level as I'm pretty new into looking into all this. About T-5 I reckon looking at the stuff on the site.
I've always found that having been disabled since birth, we're left to get on with it more than people who have maybe had an accident later in life. I'm not getting at anyone as I know that adapting to paralysis after having had function is extremely difficult, but I do think that consultants should be better at providing us with information.
It may just be the way I've been brought up though as my parents have always been of the opinion that ignorance is bliss. I've changed my mind though as I've been discovering more about my disability, finding reasons for it and ways in which I can help myself.
This is a fab site!!
Paraplegic with Spina Bifida. Sensory and function level is T8. T11-L5 fusion 1993. Laminectomy and decompression T10 2006. Spinal fusion T8-T12 with instrumentation Feb 2007. Moderate kyphoscoliosis. Taking 75mg Lyrica 3xday for neuropathic pain.
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