11 replies to this topic

[craiglou]

My sweetheart is slowly recovering from a deep ischial sore with the use of a vac. he is not in pain-he's 4/5 complete-BUT he is suffering from constantly changing temps. he is alternately soaking wet or too cold and heaped with blankets and a hot water bottle. It seems especially frustrating when he does get into his chair for a few hours each day and he immediately breaks out in a sweat. Altho' it is in the 80's and higher some days he is totally bundled up. I guess this is some sort of disreflexia but i would like to know if anyone has any similar experience and any suggestions for stabilizing his temp?


Thanks,Lucy in NH

[MrBump]

sounds like an infection of some sort........
get the wound checked out properly.

i had a cast on my arm and i had a sore underneath it when they took it off.
i was getting the same temp irreg's.

[craiglou]

MrBump, on 09 August 2010 - 05:12 AM, said:

sounds like an infection of some sort........
get the wound checked out properly.

i had a cast on my arm and i had a sore underneath it when they took it off.
i was getting the same temp irreg's.

Hey Mr. Bump- Thanks for your reply, nice to know there's life out there in the universe...esp. my cyberspace as I am so inept with this thing!

As far as infection goes, I have every reason to think that has been eliminated: the surgeon and home health nurse have covered that eventuality some time back. It is healing well now, it's just the the thermostat issues continue to be such a discomfort. I guess it is autonomic disreflexia but I was hoping someone out there had some kind of remedy or means of ameliorating some of this somehow.

Lucy in NH

[stillgotswag]

it is dysreflexia caused by pressure 2 the wound while sitting. happens to me. try diff sitting positions.

[craiglou]

stillgotswag, on 10 August 2010 - 06:15 PM, said:

it is dysreflexia caused by pressure 2 the wound while sitting. happens to me. try diff sitting positions.

Thanks "male" in Texas. I appreciate your response as it corroborates our assessment, anyway. Trouble is, he's not sitting, he's in bed most of the time. And when he does get up he has been getting cold and been pretty uncomfortable. I guess it will just take time. The wound is healing but it is still 5 cm. deep!

Lucy in NH

craiglou, on 11 August 2010 - 09:57 PM, said:

stillgotswag, on 10 August 2010 - 06:15 PM, said:

it is dysreflexia caused by pressure 2 the wound while sitting. happens to me. try diff sitting positions.

Thanks "male" in Texas. I appreciate your response as it corroborates our assessment, anyway. Trouble is, he's not sitting, he's in bed most of the time. And when he does get up he has been getting cold and been pretty uncomfortable. I guess it will just take time. The wound is healing but it is still 5 cm. deep!

Lucy in NH

My apologies, I see that you still have swag (and that is great!) and I did not address you properly! LKW

[Tetracyclone]

The temp changes may be due to general weakness. If that is the case he just hast to endure it while he slowly builds stamina.

[kiwiquad]

If the wound is still 5cm deep, he should NOT sit on it for one second!

[airart1]

yeah, but that sure sounds like infection, especially with a sore, he needs to check it and his nurses sure should so he dont get septis, his wound wont heal with infection anyway.....he has a wound care dr. doesnt he?

[stillgotswag]

definately shouldnt sit on it. let it heal some.

[4wheelz]

craiglou, on 09 August 2010 - 02:35 AM, said:

he's 4/5 complete


Thanks,Lucy in NH

C? T? L?

is this temp variation new? since the wound?

[craiglou]

C 4-5 complete. The radical temp. variations are new since his wound developed. They are pretty typical of his UTI symptoms as well, which is what we at first thought was happening, even though the wound was pretty bad by that time.

ANy thoughts? Lucy

[craiglou]

airart1, on 12 August 2010 - 05:33 AM, said:

yeah, but that sure sounds like infection, especially with a sore, he needs to check it and his nurses sure should so he dont get septis, his wound wont heal with infection anyway.....he has a wound care dr. doesnt he?

Yes indeed, he has a wound Doc. and nurses who come regularly, and now esp., to change the vac dressing. There has been some disagreement between the two about the possibility of infection. The doc says there is naturally bacteria in the wound which does not mean an infection and the nurse, who we find a bit of an alarmist, or perhaps, overly diligent, had it cultured at one point. I think there was some sort of bacteria present but his doc(s) didn't seemed alarmed about it. Hence, I do not think septis is an issue. I suspect it's just the disreflexia and I am just wondering if there is any antidote to it, natural remedy or otherwise, which can stabilize his temps. Thanks for your response-Lucy

kiwiquad, on 11 August 2010 - 10:26 PM, said:

If the wound is still 5cm deep, he should NOT sit on it for one second!

It was 8! and large3 enough to accomodate a golf ball, or two!!!!! So it's lookiing a lot better and he does not sit on it a great deal altho' he does get up ever few days for a few hours. He just needs a change of pace and it seems to be healing nonetheless. After all, his body takes a beating in bed too, just different places, and we don't want additional wounds! I do appreciate your emphasis tho' and your response-Lucy