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#1 LovingSister

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Posted 15 August 2010 - 09:29 AM

Every day my bother, a C5 Quad of 2 months experiences extreme cold with a severe headache. I cannot figure out the cause and neither could the doctors at rehab. His blood pressure doesn't go up. We have to keep layering blankets on him and he still is shivering yet his head and face sweat so bad that he is drenched in sweat. Has anyone experienced anything like this? It happens every night after dinner

#2 stillgotswag

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Posted 15 August 2010 - 12:22 PM

sounds like autonomic dysreflexia with the sweating and headache. But his bp is fine. Hmm. when I get really cold I use a hair dryer. Sounds silly, but its effective. Kinda like smoking in bed ya gotta be careful. Of course that doesn't solve the underlying problem.

Edited by stillgotswag, 15 August 2010 - 12:33 PM.

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#3 S&W Winger

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Posted 15 August 2010 - 12:46 PM

Does sound like AD...I get various symptoms at times, not all at once...I keep a space heater nearby for those times I am freezing...it has a remote control...but please try to find the cause of irritation...for me it is usually bladder related, but can be bowel, or an infection or even an ingrown toenail...good luck and hope it gets better!

Edited by S&W Winger, 15 August 2010 - 01:02 PM.


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#4 Tetracyclone

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Posted 15 August 2010 - 01:00 PM

Hmmm. Every night after dinner, but not after lunch? Try a smaller meal?
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#5 xxm

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Posted 15 August 2010 - 04:04 PM

I've had many sweating periods without a particular explanation. Sweating is more likely to happen in the first year post injury which is his case. I'm feeling cold when don't have enough movement - staying in a the same position for a long time. So I do some gym before sleep. Change of position while in bed can relieve sweating. Build up of gas inside the intestine is another possible reason.

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#6 qbounce

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Posted 15 August 2010 - 04:54 PM

I used to get the shivers in bed just after turning in for the night.

A space heater, I like that one. Blow dryer on the head, that's a great idea too.

How about putting a blanket in the dryer before dinner, then drape it over him when he's finished eating. I just thought of that because at the hospital while going in for a procedure, they had their blankets kept in a warmer. The outcome was very soothing to me.
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#7 pinkcloud

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Posted 15 August 2010 - 05:15 PM

View PostLovingSister, on 15 August 2010 - 09:29 AM, said:

Every day my bother, a C5 Quad of 2 months experiences extreme cold with a severe headache. I cannot figure out the cause and neither could the doctors at rehab. His blood pressure doesn't go up. We have to keep layering blankets on him and he still is shivering yet his head and face sweat so bad that he is drenched in sweat. Has anyone experienced anything like this? It happens every night after dinner

Yeap I have this too,the doctors said mine is AD - my head literally feels as though there is an 'earthquake' going on inside my head. I use a fan (its well worth investing in a good one). I used to have it worse just after my operation when I had eaten. My doctors said that to make sure that whatever is causing the pain to try and stop it. Maybe his tummy is having trouble digesting food or he has wind that is painful for something? (only suggestions I am no professional).

Its now usually my bladder or bowels that affect me, although wearing a toe ring on my foot that was too tight caused the same problem. Its very scary when it happens but after a while you learn to handle it in your own way. Its really not nice and I feel for your brother :hug:

#8 LovingSister

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Posted 17 August 2010 - 08:39 AM

Today he ate his evening meal @ lunch time and then a light supper. I gave him a Valium right before he started to eat supper and he started to get chills like usual but it never amounted to much and he was fine. I kind of thought it may be panic attacks and I now I feel more convinced of it. He was shot and then tortured for 2 hours before the police were called, night time may be a trigger, fear, etc. I hope we can keep fending it off because it really is very intense and scary




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