7 replies to this topic

[Irish Wheels (Jessica)]

im a paraplegic 15 year old girl and i have been experiencing mysterious headache since february 2010. the pain is excruciating most of the time, and when really bad it can distract me and force me to stop whatever im doing. they aren't migranes because light and sound dont effect it. they just pop out of no where, and is a daily rollercoaster of pain. if anyone has any idea what it might be, please reply back or send me a message.

[mellowgator]

i have a 15 year old daughter and she also suffers horrible headaches. she is on treatment for migraine headaches. i believe your hormones may contribute to this. do you have them when you have your period? i get bad headaches at times also and neurontin works great. my daughter takes probanthenol daily and midrin when she does get a headache and is able to control them quite well.

your neurologist may be able to help you get to the bottom of this.

good luck,

mellowgator

[qbounce]

Hi Jessica,
First off, may I say that you have a beautiful eye!-lol

If it isn't migraine related, it could be autonomic dysreflexia AD), as T-7's are on the border for getting this. And if this is the case, your body is telling you that there's something aggravating it to the point of sending your brain signals as a warning. You may also experience sweating and a spike in blood pressure.

Are you documenting when these headaches occur, and what you're doing, and wearing at the time? It could be possible that something you're doing or wearing is causing this. How long do they last, and what do you do, if anything, to help it subside?

You can potentially get AD if your clothing is to tight and something is poking you, or your shoes are to snug. It could be something as simple as an ingrown toenail, or something that isn't as easily detected like a bladder or kidney stone. AD is most commonly attributed to an overfull bladder or bowel issues, so relieving these things first is recommended.

I'm not sure if your problem is AD, but I wouldn't rule it out just yet. As suggested by the all wise mellowgator, have your neurologist check you out.

[mellowgator]

qbounce,

good answer.


mellowgator

[dangerousdave]

Is QB a doctor in disquise
Once again your advice is sound and well thought out
Just in case the problem is migrain related - I to suffer with migrains
I dont get flashing lights etc - just intence pain usually on one side
We have since discovered they are caused by expanding blood vessals in the brain (yea i know, but they recon i have one)
I take imigran (50mg sumatriptan) when i think one is starting as it can be to late for meds once it has started

[pinkcloud]

[quote name='qbounce' timestamp='1285031124' post='183708']

qbounce you are so wise - i was dimissed by some nurses and doctors who didnt beleive i had ad having a t7/8 injury - thats because they didnt know what it is - when the ones who did saw me have it, it was explained. Yesturday being a good example when I had it in from of the neurorehab doctor. I have only just been prescribed some meds for it.

The headaches are awful and also feels like me eyes will burst out me head with pressure. Also I getting tingling at the top of me head, me cat wont leave me side when it happens. I dont get frightened no-more as I understand what going on. And I do all you say - its always when I need to go loo. Or something that irritates below level of injury.

As with all your posts - theres nothing else to add. You sure are wise and i too thought you was a doctor - except a rare one with a excellent bedside manner

[mcwriter]

Definitely do see a neurologist.

Migraines don't always come in an easy to identify package. There is a wide range of symptoms and some don't include the light and sound as you have mentioned, some don't even include pain, just to give you an idea that they can be hard to diagnose, if in fact they are migraines.

Qbounce is quite correct about keeping track when your headaches occur, what you were doing just before, what you ate or drank, how long they last, any particular details about them and as Mellow said, do take note of when your period occurs around these headaches. This info will help your neurologist make a determination. The doctor will tell you do do this anyway.

I have really oddball headaches, called Atypical Migraines. They can come in varying degrees and it took a long time to figure out the triggers are and how to tell if one is coming on. Mine usually are a result of several days with little sleep and stress, of if I get overheated especially, then my balance gets all wacko. Going into it I get an allover sort of jello-like, weak & wobbly feeling. After that, depending on the degree, I get stabbing pains in my head that either continue or just a sustained pain on mostly one side of my head, difficulty finding words, speaking and weakness up to full-fledged paralysis on my right side. Sometimes I have no head pain at all, but will still get these other stroke-like symptoms, which hang around for a few days after the actual migraine has subsided. Fun.

Medications can head it off and lessens symptoms, but even better is to figure out what triggers them and avoid those if possible and then the need for meds is lessened. I used to keep an Imitrex pen on hand to give myself a shot, but since have figured out what to do, like if I know I've had little sleep for a few days, I will make it a point to take a nap or two, but that's me and I can prevent one completely if I am paying attention to how my body feels and I have them a lot less frequently now. I don't like taking any meds unless I absolutely have to.

So keep a little headache diary and you might possibly figure out a pattern to your headaches. Some people's triggers can be certain foods or beverages, so be sure and note those too. Your neurologist will want to know these things.

Good luck to you.

Edited by mcwriter, 26 September 2010 - 02:26 PM.