Hi Everyone
As I mentioned on the MIA thread sorry I haven't been around very much recently but I have been struggling with the lung disease I have been battling against for two years now. Sadly things have taken a turn for the worse recently and I now have multiple growths in both lungs. The largest of which in my left lung is now 11cm diameter, I have got a total of 8 growths now. These growths are linked into my systemic circulation and put me at risk of massive or life threatening bleeding in my lungs. I have suffered 2 major bleeds in the last 4 months, the most recent being 2 weeks ago, as you can see though I am still here. The disease itself is also progressing and sadly at the moment treatment is not stopping it.
I am so grateful for all the support you have all given me, but I have been finding it hard to deal with this disease on top of my SCI. I am still fighting on, in fact I am aiming to do my first 10km race in just over 2 weeks, my time will be slower than I was aiming for prior to my latest bleed but I am determined to do it.
I'll definitely be around more on here and keep you all updated.
Thanks again for all your support
Jules
0
Update For You All
Started by
jules
, Sep 28 2010 12:14 AM
9 replies to this topic
Top#2
1positivethinker
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Posted 28 September 2010 - 12:39 AM
So sorry to hear about your struggles.....I will be praying for you!
Hello, my name is Christie, and I love my friends!
When life gets you down, grab a cloud and examine the silver lining. --Me
When life gets you down, grab a cloud and examine the silver lining. --Me
#5
Avocado Baby
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Posted 28 September 2010 - 05:10 PM
Jules,
I'm so sorry to hear about the problems you're having. It sounds very difficult. Well done for your determination and wanting to continue to do the race. I'm wishing you all the best
I'm so sorry to hear about the problems you're having. It sounds very difficult. Well done for your determination and wanting to continue to do the race. I'm wishing you all the best
Paraplegic with Spina Bifida. Sensory and function level is T8. T11-L5 fusion 1993. Laminectomy and decompression T10 2006. Spinal fusion T8-T12 with instrumentation Feb 2007. Moderate kyphoscoliosis. Taking 75mg Lyrica 3xday for neuropathic pain.
#7
qbounce
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Posted 28 September 2010 - 05:37 PM
Jules, you have the attitude of a star!
You're awesome . . . . good luck with the run!
You're awesome . . . . good luck with the run!
When we remember we are all mad, the mysteries disappear and life stands explained. - Mark Twain
#8
StillFingers
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Posted 28 September 2010 - 05:44 PM
So much struggle yet you continue on living, big hugs Jules, you personify the notion of "Never Surrender", my best to you on your up coming 10K; it's your effort/doing that matters, not the time 
You are in my thoughts, be well...
You are in my thoughts, be well...
Only after we have lost everything, are we free to do anything.
Shooting With Still Fingers - http://shootingwiths...s.blogspot.com/
Shooting With Still Fingers - http://shootingwiths...s.blogspot.com/
#9
jules
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Posted 01 October 2010 - 09:52 AM
Thanks Everyone, I made it out for my first training "run" since I came out of hospital 2 weeks ago after my last bleed in my lungs, I managed 4km so was quite happy with that - definitely on for the 10K 
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