21 replies to this topic

[chair-man]

I am cold all the time regardless of the room temperature. My room temperature is at 74 degrees all the time and I am "cooking" out my help but in order for me to feel "okay" it needs to be this warm or maybe even warmer. Also my arms feel like they are blocks of ice all the time. Does anyone else have this feeling?

[Soryfam]

Before SCI I was always hot. Now it just seems like my "thermostat" doesn't work. Sometimes my legs and feet do feel like blocks of ice. I can bundle up in layers and still be freezing. Then an hour later I am comfortable or even hot. It drives me crazy.

Sandy

[airart1]

circulation is most of it i'm afraid, even though the way i understand it is your temp gauge doesnt work right below your injury, as i was told why we don't sweat correctly below our injury.....my legs feel cold all the time too, except in the summer in the heat......

[Tetracyclone]

Yup, me too. My interpretation of these strange nerve signals is that i am cold all the time. Exercise and good food help. Slowly I got used to it.

[eyelookok2blindgurls]

Sometimes my legs feel like they are full of ice and other times like they are full of hot coals , it took me a while to come to grips with these strange sensations especially as I don't have any sensation as such from midchest down , no one has every really bothered to give me an explanation as to what causes it except one doctor grunted phantom sensation to me once I guess it's just one of those weird things we have to live with .

[LovingSister]

chair-man, on 03 December 2010 - 08:43 PM, said:

I am cold all the time regardless of the room temperature. My room temperature is at 74 degrees all the time and I am "cooking" out my help but in order for me to feel "okay" it needs to be this warm or maybe even warmer. Also my arms feel like they are blocks of ice all the time. Does anyone else have this feeling?

My brother is the same way. I had hoped this was due to his injury being new but I see you were injured a while ago. His room is so hot I can hardly stand to be in there for more than a few minutes. Even with it so hot in there he is still cold. I wish there was a magic pill to fix all of this

[Kmac32]

All of this is due to our autonomic nervous system not working correctly affecting circulation. Very common in spinal cord patients. I can have one hot part of o foot and the rest cold. Really stinks.

[Dana2010]

My son is also cold a great deal of the time, it's very hard to try and get him comfortable.

[barbara9999]

I am in the state of Washinngton and outside its about 40F and inside I keep the thermostat around 74F but my feet are always cold and sometimes my legs amd shoulders arms too, I wear wool socks all the time and sleep under an elec blanket. The warmth feels so good. The explanation about circulation sounds right plus of course the nerve problem.

[goose]

i live in south ga. where it's known for being hot. my ideal temp. is now 84. i'm always freezing. thank God for dual air in cars. my hubby puts his side on cold -my side stays on heater [year round].
i live in turtlenecks way past the winter. i have a far-infared heater that feels amazing .
i'm waiting on a great new product that keeps you hot in the winter and is portable. if anyone knows of one ,please,share. i like to keep my face and neck warm because that is really the only NORMAL place on me.

[lgl]

I rarely ever used the oil heat in my home prior to my injury, now I use a pellet stove and the oil heat most of year here in Oregon. This helps relieve back pain. But as I sleep and first thing in the morning, when the injured area is still warm, the pain is normally gone. Staying active certainly helps too.

[mellowgator]

an ab is able to regulate their body temperature to 98.6. but after sci this is no longer the case. in the info about sci that simon has provided it says the following:

"Most people with complete spinal cord injuries do not sweat below the level of the injury and many quadriplegics cannot even sweat above the injury (even though they may sweat due to autonomic dysreflexia). With loss of the ability to sweat or vasoconstrict within affected dermatomes the patient becomes poikilothermic and needs careful control of their environmental conditions. Therefore, if a high paraplegic or quadriplegic is in an outside temperature over 90 F, especially when the humidity is high, the body temperature will begin to rise (Poikilothermia). Likewise in a cold environment, the body may not be able to get the messages through to the brain that the body is cooling down, and if left untreated, the person will soon become hypothermic."

so esentially we are like lizards now and can't regulate our bodies temperature. i get reimbursed for 25% of my power bill because i must be in a controlled temperature since my body no longer has the ability to do this any longer.


mellowgator

[S&W Winger]

My space heater nearly burned down my house last month...

[goose]

my body temp. is now around 96 degrees. i understand about not being able to control it. my problem is i get what i call the clammies. it's just a slight bit of sweating caused from a various of things. summer-not much of a problem. winter- a serious problem. i FREEZE. usually, the problem is fixed in minutes however by that time i'm frozen. the only solution i've found is a heater or a warming blanket. they both require electical cords. another problem is my hubby is hot natured and i'm the opposite.
i've tried rice bags but they don't last long enough. i wear turtlenecks and pull them up over my face. hard to eat then not to mention crazy looking. it seems to take hours to get warm. i'm looking for a solution that works, is portable and reusable.
i love the way a shirt feels right out of the dryer. if it would last for hours.
has anyone found a solution or have this problem?


mellowgator- how do you get help with your power bill?

[airart1]

normally its state by state as far as assistance........

[mellowgator]

goose, on 02 May 2011 - 05:58 AM, said:

my body temp. is now around 96 degrees. i understand about not being able to control it. my problem is i get what i call the clammies. it's just a slight bit of sweating caused from a various of things. summer-not much of a problem. winter- a serious problem. i FREEZE. usually, the problem is fixed in minutes however by that time i'm frozen. the only solution i've found is a heater or a warming blanket. they both require electical cords. another problem is my hubby is hot natured and i'm the opposite.
i've tried rice bags but they don't last long enough. i wear turtlenecks and pull them up over my face. hard to eat then not to mention crazy looking. it seems to take hours to get warm. i'm looking for a solution that works, is portable and reusable.
i love the way a shirt feels right out of the dryer. if it would last for hours.
has anyone found a solution or have this problem?


mellowgator- how do you get help with your power bill?

it's a benefit of workman's compensation.


mellowgator

[airart1]

is that all states mellow, i have a good friend under workmans comp.......

[sh1wn]

Hot, cold, feeling hot and cold at the same time, ahaa the joys of gimpdom. I have found a electric blanket works great, I also have a fan that I use a lot. If i'm really hot I break out the spray bottle.

[mellowgator]

airart1, on 02 May 2011 - 08:21 PM, said:

is that all states mellow, i have a good friend under workmans comp.......

workman's comp has gone through a lot of changes since i went on it almost 25 years ago. is your friend an old injury? if so he would probably get this benefit as well.



mellowgator

[mugsy]

sh1wn, on 03 May 2011 - 04:56 AM, said:

Hot, cold, feeling hot and cold at the same time, ahaa the joys of gimpdom. I have found a electric blanket works great, I also have a fan that I use a lot. If i'm really hot I break out the spray bottle.

I know what you mean about the hot and cold at the same time. Its almost like your cold but it burns. Especially in my legs. My lower back always feels cold. Drives me nuts.

[tiya]

i use for cold Omega by Natural Wealth.my neurological doctor said to me and i feel much better.

[pinkcloud]

I get cold days....not even a red hot day will get me out me gloves.

When I get pain etc....I get goose bumps down left side - warm right side - even above injury, which is rather bizarre, i must mention that to me neurologist and keep you posted.

To me before AD type symptoms were me warnings...now its feezing cold, just like me undiagnosed with a giant rotten disc squashing me cord sci days.

Plus its started to happen above injury level.

This is why I prefer BSS, at least I only get half the trouble at any one time

Heated booties, heated gloves...I believe its because the blood rushes to the vital organs in time of trouble...the rest, well whats a frozen odd finger, toe or leg or two