15 replies to this topic

[Stickman]

My legs are so spastic i can hardly get dressed in bed without help anymore, wondering if anyone had botox injections in their legs and did it help? Thanks

[cando]

My husband had the botox injections, and sadly...we did not see any improvement.

[Smileyblue]

Botox is an option, depending on whether they can identify exactly which muscles are spasming.. The cost increases for each additional muscle group/injection they need to administer.. It also doesn't last forever, only 5 years if you're lucky..

I've decided to have the nerve cut.. Drastic measure, but I think its going to be worth it in the end.. Its about quality of living for me now.. My spasms have become so bad that I need 24hr care as I can't even sit up or turn on my own anymore..

Good luck..

[MTB John]

Smileyblue, on 28 December 2010 - 10:28 PM, said:

It also doesn't last forever, only 5 years if you're lucky..

I think you mean months..

I have had Rec. Fem. (the largest quad muscle) done a couple of times. I'm a walker but the tone was so bad in Rec. Fem. that I could not exercise my little thigh muscle. So during rehab they nuked it. It did help me build up some strength and a little more function. But by the sounds of things yours is a a more global problem as in, lots of muscles spasming together, so I do not think it will help you.

Hate to say it but you may have to up the drugs.

Good luck,
J

[ericr]

I actually got botox injections today for the 2nd time. I really liked it not so much for the spasms but to help with tone. In my case I sit in my chair for long periods of time and my legs seem to pull together. So our main area's we do the injections are in my adductors to stop my legs from binding together. this also helps the boys from bieng squished as well as hygene. I also get injections in my hamstrings to help with putting my legs in the car and my calves and ankles for drop foot. I do still get spasms but not as much reason bieng is unless you do your quads your still going to spasm but if you do your quads this will hurt you from ever standing. The one good thing with botox is that it does wear off after 3 months so if you dont like it then dont go back and after the first time you really can tweak it to how you react to it. I was scheduled to get a baclofen pump to be implanted and opted to continue with botox. botox is not harmful to your body, does not damage nerves or stop muscle development. The pump is a surgery and constant drugs and tired feeling. this is 1 hr of needles you hardly feel nd you done and good for 3-4 months. Try you have nothing to loose.

Dont know where you live but my Dr. is Dr. Rubin @ University of Miami he is a neurosurgeon and professor at UM has been doing botox since 1996 as well as clinical trials on bocolfen pumps and botox in sci as well as bieng affiliated with the Miami project. well worth the drive this guy is super down to earth and I love picking his brain everytime I am down there.

[Stickman]

ericr, on 29 December 2010 - 05:49 AM, said:

I actually got botox injections today for the 2nd time. I really liked it not so much for the spasms but to help with tone. In my case I sit in my chair for long periods of time and my legs seem to pull together. So our main area's we do the injections are in my adductors to stop my legs from binding together. this also helps the boys from bieng squished as well as hygene. I also get injections in my hamstrings to help with putting my legs in the car and my calves and ankles for drop foot. I do still get spasms but not as much reason bieng is unless you do your quads your still going to spasm but if you do your quads this will hurt you from ever standing. The one good thing with botox is that it does wear off after 3 months so if you dont like it then dont go back and after the first time you really can tweak it to how you react to it. I was scheduled to get a baclofen pump to be implanted and opted to continue with botox. botox is not harmful to your body, does not damage nerves or stop muscle development. The pump is a surgery and constant drugs and tired feeling. this is 1 hr of needles you hardly feel nd you done and good for 3-4 months. Try you have nothing to loose.

Dont know where you live but my Dr. is Dr. Rubin @ University of Miami he is a neurosurgeon and professor at UM has been doing botox since 1996 as well as clinical trials on bocolfen pumps and botox in sci as well as bieng affiliated with the Miami project. well worth the drive this guy is super down to earth and I love picking his brain everytime I am down there.

Eric, do you use kfo's to stand? I do and can walk with a walker but like you said, my adductors lock up and wont let me swing my legs, and my hamstrings lock out too. I live near UF which is were my neuro people are but will think about going down to Miami. Thanks for the info.

[MTB John]

ericr, on 29 December 2010 - 05:49 AM, said:

botox is not harmful to your body, does not damage nerves or stop muscle development.

My Physio came back from a seminar on Botox a couple of months ago where they likened long term use of botex on muscle to the Ukraine after Chernobyl. If you can walk you might want to do a little more research first..
J

[ericr]

I dont use KFO'S but cant stand or take steps on my own so I cant really relate.Im sure UF or Shands has a good dr. who does botox.
in regards to the Botox and muscle weakening I actually asked my dr. about that yesterday and he said the muscle weakness is minimal and if you workout daily your muscles will get strong cause your isolating the movement to the muscle without using tone to help. Plus when it comes to long term sitting in your chair there's nothing worse than bieng uncomfortable, my legs felt great today sitting in my chair over 12 hrs. straight.

[Gibbo]

I've decided to have the nerve cut.. Drastic measure, but I think its going to be worth it in the end.. Its about quality of living for me now.. My spasms have become so bad that I need 24hr care as I can't even sit up or turn on my own anymore..

Good luck..



Have you had your nerves cut yet or not? I have thought about this but did not know it was an option.

[Stickman]

Well I got the injections done in the adductor's on tuesday, hopefully we'll see an improvement next week.

[megatrig]

Let us know how this goes! I hope it works! As I looked at this for spasm I saw how incrediibly efecive the injecctions can be!!! More anon

[pinkcloud]

Stickman, on 29 January 2011 - 06:19 AM, said:

Well I got the injections done in the adductor's on tuesday, hopefully we'll see an improvement next week.

I am due for the botox, let us know the outcomes please

[Stickman]

It has been 10 days now and im starting to see weakness in the adductors, it was easier keeping my legs apart to take care of hygiene and my PT said it was a little easier to stretch them out, so going good so far. will update more next week!

[pinkcloud]

Stickman, on 05 February 2011 - 05:21 AM, said:

It has been 10 days now and im starting to see weakness in the adductors, it was easier keeping my legs apart to take care of hygiene and my PT said it was a little easier to stretch them out, so going good so far. will update more next week!

I had the botox Stung like hell, I cried and for 2 days I felt violently sick. It was so worth it. Now, my back feels as if it was a bicycle chain that had become stuck with rust, and the botox was the oil that lossened it It dosnt take any of the extreme pain away when sitting or standing or walking - but at least now the pain when lying down as been reduced by 80 per cent.

Well worth having just for this reason

[M Tustain]

I had Botox in my adductors and it lasted probably 4-5 weeks! They will only inject every 3 months so it's pointless for me!

[barbara9999]

i had botox for the first time end of novenber for the muscle from my elbow to palm and three fingers which is very stiff, vibrating, tight etc. after the first week i did not see much difference but then i noticed weakness in the fingers in trying to grasp but the strong spascticiy was disappearing and then for the next two months my hand and arm just felt more natural and wasn't so horribly irritating. i am scheduled to have the series of injections again soon. i can hardly wait as the arm palm fingers are damn irritating again. my dr requested approval from medicare and it was approved for 4 times a year. i belive the injections are about $500 for each treatment but free for me with medicare and supp insuance. i am very positive about treatment and it has made a big difference in the quality of life.