Jump to content


- - - - -

Little Twitches


  • Please log in to reply
11 replies to this topic

#1 steviek

steviek

    Newbie

  • Members
  • Pip
  • 32 posts
  • Gender:Male
  • Country:Lincoln UK
  • Spinal Injury Level / Relationship:T6

Posted 30 December 2010 - 11:25 AM

My spasm in bed is driving me insane, it is your worst nightmare. It is not so much of a case of legs shaking like mad-which also happens but little twitches that are non stop and this is ruining my sleep, the bed is rocking and not for the right reasons lol. If I take something to knock me out like diazapam, this results in me having an okay night but my wife up all night, it is getting so bad that we are considering seperate bedrooms. Baclofen and all the other tablets do not work.

#2 Smileyblue

Smileyblue

    Advanced Member

  • Members
  • PipPipPip
  • 3,509 posts
  • Gender:Female
  • Country:Richards Bay, South Africa
  • Spinal Injury Level / Relationship:T8 complete

Posted 30 December 2010 - 01:52 PM

Separate bedrooms is NEVER a good idea between spouses.. I have terrible spasms, but have found that being really tired, stretching, and finding certain pressure points on my ankles and knees, seem to keep them still enough for me to go to sleep.. Apparently we don't spasm in our sleep (so DangerousDave says ;-) ), so then your wife could/would have a good sleep if only you could get to sleep quicker.. Exhaust every possible solution before resorting to separate bedrooms as VERY few marriages can survive that.. ;-) I wish you all the best..
What's important is not what happens to us, but how we react to what happens to us..

God gave us two ends, one to think with, n one to sit on.. Success depends on which one u use.. Heads u win, tails u lose..

#3 ajl338

ajl338

    Member

  • Members
  • PipPip
  • 201 posts
  • Gender:Female
  • Country:Guildford (UK)
  • Spinal Injury Level / Relationship:t11

Posted 30 December 2010 - 10:00 PM

I thought i was the only person that twitches / spasms in bed. I have good and bad days but generally spasms in the daytime i can ignore and get on with other things but the ones in bed are driving me crazy. I went to the GP who just gives sleeping tablets which isnt a good idea as i tend to go around all day in a daze.

The spasms are so bad at night that on a couple of occasions i have managed to kick myself out of my double bed. but the smaller ones wake me up so i get a rubbish nights sleep and that kicks off my chronic fatigue and the whole cycle gets worse

I do find what i do during the day makes a differnce to spasms but I havent worked out what is good and what is bad. I slept well after swimming last week but that could have been i was exhausted and i dont remember waking myself up

no answers - Sorry

ann

#4 MTB John

MTB John

    Member

  • Members
  • PipPip
  • 586 posts
  • Gender:Male
  • Country:Chiang Mai, Thailand
  • Spinal Injury Level / Relationship:C6, Incomplete
  • Injury Date:19-02-2010

Posted 30 December 2010 - 11:26 PM

That's interesting, if I'm really tired my bed time spasms are far worse. Its that one that kicks in every five minutes or so that really bothers me. I'll be just drifting off to sleep each time. I usually sit up on the side of the bed for five minutes or so. It doesn't always work but..

J
Out of the gloom a voice said unto me, "Smile and be happy, things could be worse." So I smiled and was happy and behold things did get worse.

#5 The Black Sheep

The Black Sheep

    Member

  • Members
  • PipPip
  • 655 posts
  • Gender:Female
  • Country:Upstate NY
  • Spinal Injury Level / Relationship:T5, incomplete

Posted 31 December 2010 - 03:50 AM

View PostSmileyblue, on 30 December 2010 - 01:52 PM, said:

Separate bedrooms is NEVER a good idea between spouses.. I have terrible spasms, but have found that being really tired, stretching, and finding certain pressure points on my ankles and knees, seem to keep them still enough for me to go to sleep.. Apparently we don't spasm in our sleep (so DangerousDave says ;-) ), so then your wife could/would have a good sleep if only you could get to sleep quicker.. Exhaust every possible solution before resorting to separate bedrooms as VERY few marriages can survive that.. ;-) I wish you all the best..
I'm getting way off topic here, but my husband and me have always had separate beds. For the first year we were in the same room, but I think our relationship has actually gotten better since we separated for sleep time. Then again he snores really loud and I throw pillows.

As for twitching - I kick and twitch a lot when I'm not in REM sleep, and I found smoking a cigarette before bed usually mellows the bottom half. It's not the healthiest method, but if you're open to try something less healthy, I think it works better than when I was taking 120 mg of Baclofen.

Also, what type of mattress do you sleep on? I know a lot of the times spasms can be triggered by pressure points, and if you're on a mattress that your lower half doesn't agree with, it may be agitating it. There's a thread around here somewhere about mattress tops and memory foams, and most of the people mentioned that memory form is much softer in certain spots, which has improved pressure sores and prevented them from returning. I'd imagine something like that would also probably be a lot less irritating for spasms.

Edited by The Black Sheep, 31 December 2010 - 03:54 AM.

3 doctors diagnosed me with hysterical paralysis (weee!), 1 diagnosed an incomplete T7, another T2 and the last (and most accurate) T5. Trampolines are BAD. Sleep is unpredictable. And never kiss strangers. Life has moved on.

#6 rue2you

rue2you

    Member

  • Members
  • PipPip
  • 1,328 posts
  • Gender:Female
  • Country:West Union, OH
  • Spinal Injury Level / Relationship:T10 Paraplegic Incomplete

Posted 31 December 2010 - 04:05 AM

I have almost no spasms during the day when I am sitting in my chair. If I prop my feet up on a stool or something then they will jump around a little and stiffen up. However, when I lay down, that is a different story! They take awhile to settle down and then they are still unless I roll over or move around in the night. Then they will do their little dance and go back to sleep!:)
"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
www.aliciareagan.com

#7 slyd

slyd

    Newbie

  • Members
  • Pip
  • 97 posts
  • Gender:Male
  • Country:Margate, South Africa
  • Spinal Injury Level / Relationship:T9 - T12 incomplete

Posted 31 December 2010 - 01:13 PM

Sleep-deprivation will drive you NUTS in the end :suicide:
I use 400mg Gabapentin and 2mg Clonazepam (or more) when the legs won't pause long enough to fall asleep.
I'm surprised the Baclofen isn't working for you . . ?

Quote

Apparently we don't spasm in our sleep (so DangerousDave says ;-) )
My wife has sat many a night and watched and timed my twitches/spasms, while I was snoring ! Maybe not everyone spasms in their sleep, but I shore do ! And always have . .
It's hard to be Good, when you're born to be Bad !

#8 steviek

steviek

    Newbie

  • Members
  • Pip
  • 32 posts
  • Gender:Male
  • Country:Lincoln UK
  • Spinal Injury Level / Relationship:T6

Posted 02 January 2011 - 02:00 PM

Baclofen is a waste of time, stretches help but these little twitches drive me mental.

#9 dangerousdave

dangerousdave

    Advanced Member

  • Closed Account
  • PipPipPip
  • 4,176 posts
  • Gender:Male
  • Country:uk
  • Spinal Injury Level / Relationship:l2/l3

Posted 02 January 2011 - 02:11 PM

Apparently we don't spasm in our sleep (so DangerousDave says ;-)

Think theres something ammis here

What i said was you cant move your limbs while asleep, how can you if you cant do it while awake
I'm lucky in that my body wakes me up when it wants to move, and i physically move my legs
Spasm is a diferant limb movement altogether
Another way of seeing a false para is to look at the toes while they sleep
Are they pointing at the cieling as a AB does or at the far wall like a paras does
It is sad that people want to pretend to be a para
Like all devos, root em out

#10 Smileyblue

Smileyblue

    Advanced Member

  • Members
  • PipPipPip
  • 3,509 posts
  • Gender:Female
  • Country:Richards Bay, South Africa
  • Spinal Injury Level / Relationship:T8 complete

Posted 02 January 2011 - 02:49 PM

Oops.. Misunderstood you I guess.. Sorry DD.. ;-)
What's important is not what happens to us, but how we react to what happens to us..

God gave us two ends, one to think with, n one to sit on.. Success depends on which one u use.. Heads u win, tails u lose..

#11 greybeard

greybeard

    Super Geek

  • Members
  • PipPipPipPipPip
  • 11,412 posts
  • Gender:Male
  • Country:Dorset, UK
  • Spinal Injury Level / Relationship:L1-L5 inc. - Stenosis

Posted 02 January 2011 - 03:19 PM

I don't know whether this will help, but my legs used to jump around like crazy at night, totally wrecking the bed. Bed clothes everywhere.

Then I was diagnosed with obstructive sleep apnoea syndrome (OSA). I was immediately put on a continuous positive air pressure (CPAP) machine and my nights have been peaceful ever since. Most mornings, my bed clothes are hardly disturbed.

It may be worth asking someone to check you out for apnoea.

Carpe Diem


#12 rue2you

rue2you

    Member

  • Members
  • PipPip
  • 1,328 posts
  • Gender:Female
  • Country:West Union, OH
  • Spinal Injury Level / Relationship:T10 Paraplegic Incomplete

Posted 05 January 2011 - 04:04 PM

View Postdangerousdave, on 02 January 2011 - 02:11 PM, said:

Apparently we don't spasm in our sleep (so DangerousDave says ;-)

Think theres something ammis here

What i said was you cant move your limbs while asleep, how can you if you cant do it while awake
I'm lucky in that my body wakes me up when it wants to move, and i physically move my legs
Spasm is a diferant limb movement altogether
Another way of seeing a false para is to look at the toes while they sleep
Are they pointing at the cieling as a AB does or at the far wall like a paras does
It is sad that people want to pretend to be a para
Like all devos, root em out

I wake up when I need to move also. I wake up VERY uncomfortable feeling, move around and readjust and go back to dreamland!:)

I guess if you are an incomplete you have one foot with toes up and one foot with toes toward the wall? Just kidding Dave!!:)
"We cannot choose the road we are asked to travel, but we can choose to enjoy the ride!"
www.aliciareagan.com




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users



This website is a way for those with spinal cord injuries to share experiences and advice. Any medical matters, treatments or alternative therapies discussed on this website should be thoroughly reviewed by a medical professional or therapist before being acted upon. Under no circumstances should you alter prescribed medication or a medical care plan without consulting your doctor or care plan supervisor first.