10 replies to this topic

[cmackay]

I was reading on the website cellmedicine.com and im wondering if any of you guys have done any research on it and if it might be a good idea to do a trial?

Edited by cmackay, 25 April 2011 - 07:03 AM.

[pinkcloud]

cmackay, on 25 April 2011 - 07:02 AM, said:

I was reading on the website cellmedicine.com and im wondering if any of you guys have done any research on it and if it might be a good idea to do a trial?

i'll loook into it cmackay thnks. Me hope it will cure nerve pain/cladder and bowels/ad - mobility of course would be great but i'd need more than that reason to be in a trial. Would you do the trial do you think?

[cmackay]

i think i would do the trial if nobody has certibile objections. it cant get worse than it already is na mean.

[pinkcloud]

cmackay, on 25 April 2011 - 07:19 AM, said:

i think i would do the trial if nobody has certibile objections. it cant get worse than it already is na mean.

Very true and I never thought of it this way but I will start to.

Well if you do, I thank you for having a big part to play in seeing if this works.

[FlyPelicanFly]

This is not a proven therapy. This is NOT a clinical trial. This is why the therapy is administered outside of the US in Panama. The intravenous and intraethical administration of bone marrow stem cells and umbilical cord blood derived cells has not shown any evidence of efficacy despite the "anecdotal" evidence provided on the website.

Real human clinical trials are underway across the globe. Trials are underway in the US, Hong Kong and Switzerland. And also more trials are due to start this year in China, NZ and Spain to name but a few. Dont waste your hard-earned money now we are seeing real therapies in clinical trial. Save your money or donate to an SCI Organisation that is focused on curing paralysis.

[cmackay]

thats weird i thought that it wasnt allowed in the u.s. cause bush banned stem cell research. i know obama reopened it and all. where are they doing clinical trials in the us? you sound like you know what your talking about...

[FlyPelicanFly]

cmackay, on 25 April 2011 - 04:39 PM, said:

thats weird i thought that it wasnt allowed in the u.s. cause bush banned stem cell research. i know obama reopened it and all. where are they doing clinical trials in the us? you sound like you know what your talking about...

There are many different types of stem cells. The Stem Cell Institute aka Medistem use cells cultured from your own bone marrow (autologous) or from donated umbilical cord blood. They charge approx $30k for their treatment I think.

The Bush policy restricted funding for human embryonic stem cells which has now been lifted. However, the research has still progressed despite this.

All clinical trials are listed on http://clinicaltrials.gov

My personal opinion is to be patient (without sounding patronising) and keep your eye out for more trials to start in the near future. Im sure you will find more information in the Cure forum on here and in Rutgers CareCure forum where there are many knowledgeable research advocates.

[jass1]

I'm going to get treatment in clinic southern Germany were Farrah Fawcett got cancer treatment end of may

[FlyPelicanFly]

jass1, on 26 April 2011 - 06:04 AM, said:

I'm going to get treatment in clinic southern Germany were Farrah Fawcett got cancer treatment end of may

Which centre in Germany is this?

[Grinch83]

jass1, on 26 April 2011 - 06:04 AM, said:

I'm going to get treatment in clinic southern Germany were Farrah Fawcett got cancer treatment end of may

Please let us know how that goes!

I recently had the pleasure of listening in on a lecture given by Dr. Wise Young at the Kessler Institute in New Jersey. He had some very hopeful things to say about the advances they're making in embryonic stem cell treatments in China, and how he hopes to start bringing the trials over to the US soon.

One of the most fascinating pieces of information he gave was that they have just recently figured out that injecting lithium with the stem cells at both ends of the damaged cord acts as a sort of Miracle Grow for the stem cells, and helps in shutting the cells off after they have fulfilled their potential, which had been an issue prior to the lithium discovery. This is good news for a number of reasons, the biggest of which being that lithium has been used for ages, so the safety of the drug is well known and will not require additional extensive research by the FDA when the treatments finally do make their way here.

He told us they have fully healed rats with complete spinal cord injuries to the point of the animals being able to walk on a taunt string. Also, if I understood correctly, they've found that one only needs about 10% of the spinal cord to become functioning again. I found this encouraging as I have a few bone fragments in my cord (or did at the point of surgery) which would inhibit a 100% "cure" of the cord with the proper stem cell treatment.

I left the lecture feeling more optimistic than I've ever felt about my SCI. Now all we need is to convince the US gov't to continue funding, and to keep ourselves healthy enough to be quality candidates for the treatment when it does make its way here to the US.

These are the reasons I stay hopeful when thinking about the end of my SCI. I try not to hang myself up on miracle "cures" or mind over matter stuff, but when true science is being applied by dedicated doctors, the surety that one day a restorative treatment will be found has never been greater.

*EDIT: Here's the linkto a trial based on the lithium discovery I mentioned. It seems like this study was already completed, and there are some publications of results linked at the bottom of the page.

Edited by Grinch83, 26 April 2011 - 03:25 PM.

[pinkcloud]

Hi Grinch 83

I think you have a healthy way of looking into cure, a year ago i would never have dreamed of a cure for me pain, then comes botox for me. If people never try its never possible. Medicine moves so fast now and when big names in celebrity world get sci, even more gets done.

I accept the worst news about me condition, accept it for now but always look for ways to be better - coming on here for example is an example of this :-)

Keep posting any news you find if you would, if all it brings is hope, its better than nothing :-)